A pilot study on sports activities in pediatric palliative care: just do it Article Swipe
Irene Avagnina
,
Anna Santini
,
Irene Maghini
,
Eleonora Salamon
,
Simonetta Papa
,
Luca Giacomelli
,
Giorgio Perilongo
,
Caterina Agosto
,
Franca Benini
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1186/s12904-023-01164-x
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1186/s12904-023-01164-x
Background There has been a growing interest in studying the value of physical exercise in children with disabilities or chronic health conditions because of evidence of improvement in quality of life, social acceptance, and physical functioning. However, only scant evidence exists for routine sports activities in children requiring pediatric palliative care (PPC), and in most cases, such evidence has been collected in oncological patients. The Pediatric Hospice of Padua is the referral center for PPC in the Veneto region (northern Italy). Starting from the experience of this PPC center, this pilot study aims to describe the personal experience of children and young people who practice physical activity and their caregivers’ perspectives, focusing particularly on the emotional and social impact of exercise and sports practice. Methods Patients involved in at least one regular and structured sports activity were included in the pilot analysis. Two different ICF-CY (International Classification of Functioning, Disability and Health-Children and Youth Version) scales (“Body Function” and “Activity and Participation”) were filled out to assess the children’s global functional competence. Two online ad hoc questionnaires were created and administered to children, when able to respond, and caregivers. Results A total of 9% of patients reported being involved in a sports activity. All children who played sports did not have indications of cognitive retardation. The most practiced sport was swimming. The use of standardized methods such as ICF-CY shown that severe motor impairments do not limit sports accessibility. Questionnaires result suggest that sports are a positive experience for both children needing PPC and their parents. Children encourage other children to do sports and can find the positive side even in difficulties. Conclusion Since PPC is encouraged as early as the diagnosis of incurable pathologies, the inclusion of sports activities in the context of a PPC plan should be considered from the perspective of improving quality of life.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1186/s12904-023-01164-x
- https://bmcpalliatcare.biomedcentral.com/counter/pdf/10.1186/s12904-023-01164-x
- OA Status
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- Cited By
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- Related Works
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- OpenAlex ID
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All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4366334392Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1186/s12904-023-01164-xDigital Object Identifier
- Title
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A pilot study on sports activities in pediatric palliative care: just do itWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2023Year of publication
- Publication date
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2023-04-19Full publication date if available
- Authors
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Irene Avagnina, Anna Santini, Irene Maghini, Eleonora Salamon, Simonetta Papa, Luca Giacomelli, Giorgio Perilongo, Caterina Agosto, Franca BeniniList of authors in order
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https://doi.org/10.1186/s12904-023-01164-xPublisher landing page
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https://bmcpalliatcare.biomedcentral.com/counter/pdf/10.1186/s12904-023-01164-xDirect link to full text PDF
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://bmcpalliatcare.biomedcentral.com/counter/pdf/10.1186/s12904-023-01164-xDirect OA link when available
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Palliative care, Quality of life (healthcare), Competence (human resources), Medicine, Referral, Pain medicine, Psychology, Family medicine, Physical therapy, Nursing, Psychiatry, Anesthesiology, Social psychologyTop concepts (fields/topics) attached by OpenAlex
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2Total citation count in OpenAlex
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2025: 1, 2023: 1Per-year citation counts (last 5 years)
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20Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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