A practical checklist for return of results from genomic research in the European context Article Swipe

PDF

Danya F. Vears , Nina Hallowell , Heidi Beate Bentzen , Bridget Ellul , Therese Haugdahl Nøst , Angeliki Kerasidou , Shona M. Kerr , Michaela Th. Mayrhofer , Signe Mežinska , Elizabeth Ormondroyd , Berge Solberg , Birgitte Wirum Sand , Isabelle Budin‐Ljøsne ·

YOU? · · 2023 · Open Access · · DOI: https://doi.org/10.1038/s41431-023-01328-6

Related Topics

Concepts

Checklist Biobank Context (archaeology) Research ethics Normative Informed consent Population Psychology Public relations Applied psychology Medical education Political science Medicine Law Alternative medicine Psychiatry Pathology Paleontology Environmental health Biology Genetics Cognitive psychology

Metadata

Type: article
Language: en
Landing Page: https://doi.org/10.1038/s41431-023-01328-6
PDF: https://www.nature.com/articles/s41431-023-01328-6.pdf
OA Status: hybrid
Cited By: 14
References: 45
Related Works: 10
OpenAlex ID: https://openalex.org/W4360600033

All OpenAlex metadata

Raw OpenAlex JSON

OpenAlex ID: https://openalex.org/W4360600033

Canonical identifier for this work in OpenAlex
DOI: https://doi.org/10.1038/s41431-023-01328-6

Digital Object Identifier
Title: A practical checklist for return of results from genomic research in the European context

Work title
Type: article

OpenAlex work type
Language: en

Primary language
Publication year: 2023

Year of publication
Publication date: 2023-03-22

Full publication date if available
Authors: Danya F. Vears, Nina Hallowell, Heidi Beate Bentzen, Bridget Ellul, Therese Haugdahl Nøst, Angeliki Kerasidou, Shona M. Kerr, Michaela Th. Mayrhofer, Signe Mežinska, Elizabeth Ormondroyd, Berge Solberg, Birgitte Wirum Sand, Isabelle Budin‐Ljøsne

List of authors in order
Landing page: https://doi.org/10.1038/s41431-023-01328-6

Publisher landing page
PDF URL: https://www.nature.com/articles/s41431-023-01328-6.pdf

Direct link to full text PDF
Open access: Yes

Whether a free full text is available
OA status: hybrid

Open access status per OpenAlex
OA URL: https://www.nature.com/articles/s41431-023-01328-6.pdf

Direct OA link when available
Concepts: Checklist, Biobank, Context (archaeology), Research ethics, Normative, Informed consent, Population, Psychology, Public relations, Applied psychology, Medical education, Political science, Medicine, Law, Alternative medicine, Psychiatry, Pathology, Paleontology, Environmental health, Biology, Genetics, Cognitive psychology

Top concepts (fields/topics) attached by OpenAlex
Cited by: 14

Total citation count in OpenAlex
Citations by year (recent): 2025: 4, 2024: 8, 2023: 2

Per-year citation counts (last 5 years)
References (count): 45

Number of works referenced by this work
Related works (count): 10

Other works algorithmically related by OpenAlex

Full payload

id	https://openalex.org/W4360600033
doi	https://doi.org/10.1038/s41431-023-01328-6
ids.doi	https://doi.org/10.1038/s41431-023-01328-6
ids.pmid	https://pubmed.ncbi.nlm.nih.gov/36949262
ids.openalex	https://openalex.org/W4360600033
fwci	6.63131588
mesh[0].qualifier_ui
mesh[0].descriptor_ui	D006801
mesh[0].is_major_topic	False
mesh[0].qualifier_name
mesh[0].descriptor_name	Humans
mesh[1].qualifier_ui
mesh[1].descriptor_ui	D057189
mesh[1].is_major_topic	True
mesh[1].qualifier_name
mesh[1].descriptor_name	Checklist
mesh[2].qualifier_ui
mesh[2].descriptor_ui	D007258
mesh[2].is_major_topic	True
mesh[2].qualifier_name
mesh[2].descriptor_name	Informed Consent
mesh[3].qualifier_ui
mesh[3].descriptor_ui	D005060
mesh[3].is_major_topic	False
mesh[3].qualifier_name
mesh[3].descriptor_name	Europe
mesh[4].qualifier_ui
mesh[4].descriptor_ui	D023281
mesh[4].is_major_topic	False
mesh[4].qualifier_name
mesh[4].descriptor_name	Genomics
mesh[5].qualifier_ui
mesh[5].descriptor_ui	D011795
mesh[5].is_major_topic	False
mesh[5].qualifier_name
mesh[5].descriptor_name	Surveys and Questionnaires
mesh[6].qualifier_ui
mesh[6].descriptor_ui	D006801
mesh[6].is_major_topic	False
mesh[6].qualifier_name
mesh[6].descriptor_name	Humans
mesh[7].qualifier_ui
mesh[7].descriptor_ui	D057189
mesh[7].is_major_topic	True
mesh[7].qualifier_name
mesh[7].descriptor_name	Checklist
mesh[8].qualifier_ui
mesh[8].descriptor_ui	D007258
mesh[8].is_major_topic	True
mesh[8].qualifier_name
mesh[8].descriptor_name	Informed Consent
mesh[9].qualifier_ui
mesh[9].descriptor_ui	D005060
mesh[9].is_major_topic	False
mesh[9].qualifier_name
mesh[9].descriptor_name	Europe
mesh[10].qualifier_ui
mesh[10].descriptor_ui	D023281
mesh[10].is_major_topic	False
mesh[10].qualifier_name
mesh[10].descriptor_name	Genomics
mesh[11].qualifier_ui
mesh[11].descriptor_ui	D011795
mesh[11].is_major_topic	False
mesh[11].qualifier_name
mesh[11].descriptor_name	Surveys and Questionnaires
mesh[12].qualifier_ui
mesh[12].descriptor_ui	D006801
mesh[12].is_major_topic	False
mesh[12].qualifier_name
mesh[12].descriptor_name	Humans
mesh[13].qualifier_ui
mesh[13].descriptor_ui	D057189
mesh[13].is_major_topic	True
mesh[13].qualifier_name
mesh[13].descriptor_name	Checklist
mesh[14].qualifier_ui
mesh[14].descriptor_ui	D007258
mesh[14].is_major_topic	True
mesh[14].qualifier_name
mesh[14].descriptor_name	Informed Consent
mesh[15].qualifier_ui
mesh[15].descriptor_ui	D005060
mesh[15].is_major_topic	False
mesh[15].qualifier_name
mesh[15].descriptor_name	Europe
mesh[16].qualifier_ui
mesh[16].descriptor_ui	D023281
mesh[16].is_major_topic	False
mesh[16].qualifier_name
mesh[16].descriptor_name	Genomics
mesh[17].qualifier_ui
mesh[17].descriptor_ui	D011795
mesh[17].is_major_topic	False
mesh[17].qualifier_name
mesh[17].descriptor_name	Surveys and Questionnaires
mesh[18].qualifier_ui
mesh[18].descriptor_ui	D006801
mesh[18].is_major_topic	False
mesh[18].qualifier_name
mesh[18].descriptor_name	Humans
mesh[19].qualifier_ui
mesh[19].descriptor_ui	D057189
mesh[19].is_major_topic	True
mesh[19].qualifier_name
mesh[19].descriptor_name	Checklist
mesh[20].qualifier_ui
mesh[20].descriptor_ui	D007258
mesh[20].is_major_topic	True
mesh[20].qualifier_name
mesh[20].descriptor_name	Informed Consent
mesh[21].qualifier_ui
mesh[21].descriptor_ui	D005060
mesh[21].is_major_topic	False
mesh[21].qualifier_name
mesh[21].descriptor_name	Europe
mesh[22].qualifier_ui
mesh[22].descriptor_ui	D023281
mesh[22].is_major_topic	False
mesh[22].qualifier_name
mesh[22].descriptor_name	Genomics
mesh[23].qualifier_ui
mesh[23].descriptor_ui	D011795
mesh[23].is_major_topic	False
mesh[23].qualifier_name
mesh[23].descriptor_name	Surveys and Questionnaires
mesh[24].qualifier_ui
mesh[24].descriptor_ui	D006801
mesh[24].is_major_topic	False
mesh[24].qualifier_name
mesh[24].descriptor_name	Humans
mesh[25].qualifier_ui
mesh[25].descriptor_ui	D057189
mesh[25].is_major_topic	True
mesh[25].qualifier_name
mesh[25].descriptor_name	Checklist
mesh[26].qualifier_ui
mesh[26].descriptor_ui	D007258
mesh[26].is_major_topic	True
mesh[26].qualifier_name
mesh[26].descriptor_name	Informed Consent
mesh[27].qualifier_ui
mesh[27].descriptor_ui	D005060
mesh[27].is_major_topic	False
mesh[27].qualifier_name
mesh[27].descriptor_name	Europe
mesh[28].qualifier_ui
mesh[28].descriptor_ui	D023281
mesh[28].is_major_topic	False
mesh[28].qualifier_name
mesh[28].descriptor_name	Genomics
mesh[29].qualifier_ui
mesh[29].descriptor_ui	D011795
mesh[29].is_major_topic	False
mesh[29].qualifier_name
mesh[29].descriptor_name	Surveys and Questionnaires
type	article
title	A practical checklist for return of results from genomic research in the European context
biblio.issue	6
biblio.volume	31
biblio.last_page	695
biblio.first_page	687
topics[0].id	https://openalex.org/T10582
topics[0].field.id	https://openalex.org/fields/27
topics[0].field.display_name	Medicine
topics[0].score	0.9994999766349792
topics[0].domain.id	https://openalex.org/domains/4
topics[0].domain.display_name	Health Sciences
topics[0].subfield.id	https://openalex.org/subfields/2739
topics[0].subfield.display_name	Public Health, Environmental and Occupational Health
topics[0].display_name	Ethics in Clinical Research
topics[1].id	https://openalex.org/T11642
topics[1].field.id	https://openalex.org/fields/13
topics[1].field.display_name	Biochemistry, Genetics and Molecular Biology
topics[1].score	0.9965000152587891
topics[1].domain.id	https://openalex.org/domains/1
topics[1].domain.display_name	Life Sciences
topics[1].subfield.id	https://openalex.org/subfields/1311
topics[1].subfield.display_name	Genetics
topics[1].display_name	Genomics and Rare Diseases
topics[2].id	https://openalex.org/T11287
topics[2].field.id	https://openalex.org/fields/13
topics[2].field.display_name	Biochemistry, Genetics and Molecular Biology
topics[2].score	0.9921000003814697
topics[2].domain.id	https://openalex.org/domains/1
topics[2].domain.display_name	Life Sciences
topics[2].subfield.id	https://openalex.org/subfields/1306
topics[2].subfield.display_name	Cancer Research
topics[2].display_name	Cancer Genomics and Diagnostics
is_xpac	False
apc_list.value	2990
apc_list.currency	EUR
apc_list.value_usd	3690
apc_paid.value	2990
apc_paid.currency	EUR
apc_paid.value_usd	3690
concepts[0].id	https://openalex.org/C2779356329
concepts[0].level	2
concepts[0].score	0.9059546589851379
concepts[0].wikidata	https://www.wikidata.org/wiki/Q922625
concepts[0].display_name	Checklist
concepts[1].id	https://openalex.org/C116567970
concepts[1].level	2
concepts[1].score	0.6443992853164673
concepts[1].wikidata	https://www.wikidata.org/wiki/Q864217
concepts[1].display_name	Biobank
concepts[2].id	https://openalex.org/C2779343474
concepts[2].level	2
concepts[2].score	0.47030752897262573
concepts[2].wikidata	https://www.wikidata.org/wiki/Q3109175
concepts[2].display_name	Context (archaeology)
concepts[3].id	https://openalex.org/C153997805
concepts[3].level	2
concepts[3].score	0.458418071269989
concepts[3].wikidata	https://www.wikidata.org/wiki/Q42240
concepts[3].display_name	Research ethics
concepts[4].id	https://openalex.org/C44725695
concepts[4].level	2
concepts[4].score	0.4565943479537964
concepts[4].wikidata	https://www.wikidata.org/wiki/Q288156
concepts[4].display_name	Normative
concepts[5].id	https://openalex.org/C68122502
concepts[5].level	3
concepts[5].score	0.43911001086235046
concepts[5].wikidata	https://www.wikidata.org/wiki/Q764527
concepts[5].display_name	Informed consent
concepts[6].id	https://openalex.org/C2908647359
concepts[6].level	2
concepts[6].score	0.4258432984352112
concepts[6].wikidata	https://www.wikidata.org/wiki/Q2625603
concepts[6].display_name	Population
concepts[7].id	https://openalex.org/C15744967
concepts[7].level	0
concepts[7].score	0.4181726574897766
concepts[7].wikidata	https://www.wikidata.org/wiki/Q9418
concepts[7].display_name	Psychology
concepts[8].id	https://openalex.org/C39549134
concepts[8].level	1
concepts[8].score	0.3946472108364105
concepts[8].wikidata	https://www.wikidata.org/wiki/Q133080
concepts[8].display_name	Public relations
concepts[9].id	https://openalex.org/C75630572
concepts[9].level	1
concepts[9].score	0.3591674566268921
concepts[9].wikidata	https://www.wikidata.org/wiki/Q538904
concepts[9].display_name	Applied psychology
concepts[10].id	https://openalex.org/C509550671
concepts[10].level	1
concepts[10].score	0.3213158845901489
concepts[10].wikidata	https://www.wikidata.org/wiki/Q126945
concepts[10].display_name	Medical education
concepts[11].id	https://openalex.org/C17744445
concepts[11].level	0
concepts[11].score	0.23890098929405212
concepts[11].wikidata	https://www.wikidata.org/wiki/Q36442
concepts[11].display_name	Political science
concepts[12].id	https://openalex.org/C71924100
concepts[12].level	0
concepts[12].score	0.2114761471748352
concepts[12].wikidata	https://www.wikidata.org/wiki/Q11190
concepts[12].display_name	Medicine
concepts[13].id	https://openalex.org/C199539241
concepts[13].level	1
concepts[13].score	0.15671950578689575
concepts[13].wikidata	https://www.wikidata.org/wiki/Q7748
concepts[13].display_name	Law
concepts[14].id	https://openalex.org/C204787440
concepts[14].level	2
concepts[14].score	0.10078918933868408
concepts[14].wikidata	https://www.wikidata.org/wiki/Q188504
concepts[14].display_name	Alternative medicine
concepts[15].id	https://openalex.org/C118552586
concepts[15].level	1
concepts[15].score	0.0
concepts[15].wikidata	https://www.wikidata.org/wiki/Q7867
concepts[15].display_name	Psychiatry
concepts[16].id	https://openalex.org/C142724271
concepts[16].level	1
concepts[16].score	0.0
concepts[16].wikidata	https://www.wikidata.org/wiki/Q7208
concepts[16].display_name	Pathology
concepts[17].id	https://openalex.org/C151730666
concepts[17].level	1
concepts[17].score	0.0
concepts[17].wikidata	https://www.wikidata.org/wiki/Q7205
concepts[17].display_name	Paleontology
concepts[18].id	https://openalex.org/C99454951
concepts[18].level	1
concepts[18].score	0.0
concepts[18].wikidata	https://www.wikidata.org/wiki/Q932068
concepts[18].display_name	Environmental health
concepts[19].id	https://openalex.org/C86803240
concepts[19].level	0
concepts[19].score	0.0
concepts[19].wikidata	https://www.wikidata.org/wiki/Q420
concepts[19].display_name	Biology
concepts[20].id	https://openalex.org/C54355233
concepts[20].level	1
concepts[20].score	0.0
concepts[20].wikidata	https://www.wikidata.org/wiki/Q7162
concepts[20].display_name	Genetics
concepts[21].id	https://openalex.org/C180747234
concepts[21].level	1
concepts[21].score	0.0
concepts[21].wikidata	https://www.wikidata.org/wiki/Q23373
concepts[21].display_name	Cognitive psychology
keywords[0].id	https://openalex.org/keywords/checklist
keywords[0].score	0.9059546589851379
keywords[0].display_name	Checklist
keywords[1].id	https://openalex.org/keywords/biobank
keywords[1].score	0.6443992853164673
keywords[1].display_name	Biobank
keywords[2].id	https://openalex.org/keywords/context
keywords[2].score	0.47030752897262573
keywords[2].display_name	Context (archaeology)
keywords[3].id	https://openalex.org/keywords/research-ethics
keywords[3].score	0.458418071269989
keywords[3].display_name	Research ethics
keywords[4].id	https://openalex.org/keywords/normative
keywords[4].score	0.4565943479537964
keywords[4].display_name	Normative
keywords[5].id	https://openalex.org/keywords/informed-consent
keywords[5].score	0.43911001086235046
keywords[5].display_name	Informed consent
keywords[6].id	https://openalex.org/keywords/population
keywords[6].score	0.4258432984352112
keywords[6].display_name	Population
keywords[7].id	https://openalex.org/keywords/psychology
keywords[7].score	0.4181726574897766
keywords[7].display_name	Psychology
keywords[8].id	https://openalex.org/keywords/public-relations
keywords[8].score	0.3946472108364105
keywords[8].display_name	Public relations
keywords[9].id	https://openalex.org/keywords/applied-psychology
keywords[9].score	0.3591674566268921
keywords[9].display_name	Applied psychology
keywords[10].id	https://openalex.org/keywords/medical-education
keywords[10].score	0.3213158845901489
keywords[10].display_name	Medical education
keywords[11].id	https://openalex.org/keywords/political-science
keywords[11].score	0.23890098929405212
keywords[11].display_name	Political science
keywords[12].id	https://openalex.org/keywords/medicine
keywords[12].score	0.2114761471748352
keywords[12].display_name	Medicine
keywords[13].id	https://openalex.org/keywords/law
keywords[13].score	0.15671950578689575
keywords[13].display_name	Law
keywords[14].id	https://openalex.org/keywords/alternative-medicine
keywords[14].score	0.10078918933868408
keywords[14].display_name	Alternative medicine
language	en
locations[0].id	doi:10.1038/s41431-023-01328-6
locations[0].is_oa	True
locations[0].source.id	https://openalex.org/S121703463
locations[0].source.issn	1018-4813, 1476-5438
locations[0].source.type	journal
locations[0].source.is_oa	False
locations[0].source.issn_l	1018-4813
locations[0].source.is_core	True
locations[0].source.is_in_doaj	False
locations[0].source.display_name	European Journal of Human Genetics
locations[0].source.host_organization	https://openalex.org/P4310319965
locations[0].source.host_organization_name	Springer Nature
locations[0].source.host_organization_lineage	https://openalex.org/P4310319965
locations[0].license	cc-by
locations[0].pdf_url	https://www.nature.com/articles/s41431-023-01328-6.pdf
locations[0].version	publishedVersion
locations[0].raw_type	journal-article
locations[0].license_id	https://openalex.org/licenses/cc-by
locations[0].is_accepted	True
locations[0].is_published	True
locations[0].raw_source_name	European Journal of Human Genetics
locations[0].landing_page_url	https://doi.org/10.1038/s41431-023-01328-6
locations[1].id	pmid:36949262
locations[1].is_oa	False
locations[1].source.id	https://openalex.org/S4306525036
locations[1].source.issn
locations[1].source.type	repository
locations[1].source.is_oa	False
locations[1].source.issn_l
locations[1].source.is_core	False
locations[1].source.is_in_doaj	False
locations[1].source.display_name	PubMed
locations[1].source.host_organization	https://openalex.org/I1299303238
locations[1].source.host_organization_name	National Institutes of Health
locations[1].source.host_organization_lineage	https://openalex.org/I1299303238
locations[1].license
locations[1].pdf_url
locations[1].version	publishedVersion
locations[1].raw_type
locations[1].license_id
locations[1].is_accepted	True
locations[1].is_published	True
locations[1].raw_source_name	European journal of human genetics : EJHG
locations[1].landing_page_url	https://pubmed.ncbi.nlm.nih.gov/36949262
locations[2].id	pmh:oai:lirias2repo.kuleuven.be:20.500.12942/727601
locations[2].is_oa	True
locations[2].source.id	https://openalex.org/S4306401954
locations[2].source.issn
locations[2].source.type	repository
locations[2].source.is_oa	False
locations[2].source.issn_l
locations[2].source.is_core	False
locations[2].source.is_in_doaj	False
locations[2].source.display_name	Lirias (KU Leuven)
locations[2].source.host_organization	https://openalex.org/I99464096
locations[2].source.host_organization_name	KU Leuven
locations[2].source.host_organization_lineage	https://openalex.org/I99464096
locations[2].license	cc-by
locations[2].pdf_url
locations[2].version	acceptedVersion
locations[2].raw_type	info:eu-repo/semantics/article
locations[2].license_id	https://openalex.org/licenses/cc-by
locations[2].is_accepted	True
locations[2].is_published	False
locations[2].raw_source_name
locations[2].landing_page_url	https://lirias.kuleuven.be/handle/20.500.12942/727601
locations[3].id	pmh:oai:pubmedcentral.nih.gov:10250331
locations[3].is_oa	True
locations[3].source.id	https://openalex.org/S2764455111
locations[3].source.issn
locations[3].source.type	repository
locations[3].source.is_oa	False
locations[3].source.issn_l
locations[3].source.is_core	False
locations[3].source.is_in_doaj	False
locations[3].source.display_name	PubMed Central
locations[3].source.host_organization	https://openalex.org/I1299303238
locations[3].source.host_organization_name	National Institutes of Health
locations[3].source.host_organization_lineage	https://openalex.org/I1299303238
locations[3].license	cc-by
locations[3].pdf_url	https://pmc.ncbi.nlm.nih.gov/articles/PMC10250331/pdf/41431_2023_Article_1328.pdf
locations[3].version	submittedVersion
locations[3].raw_type	Text
locations[3].license_id	https://openalex.org/licenses/cc-by
locations[3].is_accepted	False
locations[3].is_published	False
locations[3].raw_source_name	Eur J Hum Genet
locations[3].landing_page_url	https://www.ncbi.nlm.nih.gov/pmc/articles/10250331
locations[4].id	pmh:oai:pure.ed.ac.uk:publications/0e994e24-e9cf-4fb3-9be5-3478178bfe8d
locations[4].is_oa	True
locations[4].source.id	https://openalex.org/S4306400320
locations[4].source.issn
locations[4].source.type	repository
locations[4].source.is_oa	False
locations[4].source.issn_l
locations[4].source.is_core	False
locations[4].source.is_in_doaj	False
locations[4].source.display_name	Edinburgh Research Explorer (University of Edinburgh)
locations[4].source.host_organization	https://openalex.org/I98677209
locations[4].source.host_organization_name	University of Edinburgh
locations[4].source.host_organization_lineage	https://openalex.org/I98677209
locations[4].license	cc-by
locations[4].pdf_url
locations[4].version	submittedVersion
locations[4].raw_type
locations[4].license_id	https://openalex.org/licenses/cc-by
locations[4].is_accepted	False
locations[4].is_published	False
locations[4].raw_source_name
locations[4].landing_page_url	https://www.research.ed.ac.uk/en/publications/0e994e24-e9cf-4fb3-9be5-3478178bfe8d
locations[5].id	pmh:oai:www.duo.uio.no:10852/101956
locations[5].is_oa	True
locations[5].source.id	https://openalex.org/S4306401717
locations[5].source.issn
locations[5].source.type	repository
locations[5].source.is_oa	False
locations[5].source.issn_l
locations[5].source.is_core	False
locations[5].source.is_in_doaj	False
locations[5].source.display_name	Duo Research Archive (University of Oslo)
locations[5].source.host_organization	https://openalex.org/I184942183
locations[5].source.host_organization_name	University of Oslo
locations[5].source.host_organization_lineage	https://openalex.org/I184942183
locations[5].license	cc-by
locations[5].pdf_url
locations[5].version	submittedVersion
locations[5].raw_type	info:eu-repo/semantics/article
locations[5].license_id	https://openalex.org/licenses/cc-by
locations[5].is_accepted	False
locations[5].is_published	False
locations[5].raw_source_name	1018-4813
locations[5].landing_page_url	http://hdl.handle.net/10852/101956
indexed_in	crossref, pubmed
authorships[0].author.id	https://openalex.org/A5082467704
authorships[0].author.orcid	https://orcid.org/0000-0002-6290-545X
authorships[0].author.display_name	Danya F. Vears
authorships[0].countries	AU
authorships[0].affiliations[0].institution_ids	https://openalex.org/I4210150290
authorships[0].affiliations[0].raw_affiliation_string	Biomedical Ethics Research Group, Murdoch Children's Research Institute, Parkville, VIC, 3052, Australia
authorships[0].institutions[0].id	https://openalex.org/I4210150290
authorships[0].institutions[0].ror	https://ror.org/048fyec77
authorships[0].institutions[0].type	nonprofit
authorships[0].institutions[0].lineage	https://openalex.org/I4210150290
authorships[0].institutions[0].country_code	AU
authorships[0].institutions[0].display_name	Murdoch Children's Research Institute
authorships[0].author_position	first
authorships[0].raw_author_name	Danya F. Vears
authorships[0].is_corresponding	True
authorships[0].raw_affiliation_strings	Biomedical Ethics Research Group, Murdoch Children's Research Institute, Parkville, VIC, 3052, Australia
authorships[1].author.id	https://openalex.org/A5010384424
authorships[1].author.orcid	https://orcid.org/0000-0002-7647-8524
authorships[1].author.display_name	Nina Hallowell
authorships[1].countries	GB
authorships[1].affiliations[0].institution_ids	https://openalex.org/I40120149, https://openalex.org/I4210162189
authorships[1].affiliations[0].raw_affiliation_string	Ethox Centre and Wellcome Centre for Ethics and Humanities, Nuffield department of Population Health, University of Oxford, Oxford, OX3 7RF, UK
authorships[1].institutions[0].id	https://openalex.org/I40120149
authorships[1].institutions[0].ror	https://ror.org/052gg0110
authorships[1].institutions[0].type	education
authorships[1].institutions[0].lineage	https://openalex.org/I40120149
authorships[1].institutions[0].country_code	GB
authorships[1].institutions[0].display_name	University of Oxford
authorships[1].institutions[1].id	https://openalex.org/I4210162189
authorships[1].institutions[1].ror	https://ror.org/05crdvn36
authorships[1].institutions[1].type	facility
authorships[1].institutions[1].lineage	https://openalex.org/I40120149, https://openalex.org/I4210162189, https://openalex.org/I87048295
authorships[1].institutions[1].country_code	GB
authorships[1].institutions[1].display_name	Wellcome Centre for Ethics and Humanities
authorships[1].author_position	middle
authorships[1].raw_author_name	Nina Hallowell
authorships[1].is_corresponding	False
authorships[1].raw_affiliation_strings	Ethox Centre and Wellcome Centre for Ethics and Humanities, Nuffield department of Population Health, University of Oxford, Oxford, OX3 7RF, UK
authorships[2].author.id	https://openalex.org/A5019731339
authorships[2].author.orcid	https://orcid.org/0000-0001-8285-818X
authorships[2].author.display_name	Heidi Beate Bentzen
authorships[2].countries	NO
authorships[2].affiliations[0].institution_ids	https://openalex.org/I184942183
authorships[2].affiliations[0].raw_affiliation_string	Centre for Medical Ethics, Faculty of Medicine, University of Oslo, Oslo, Norway
authorships[2].institutions[0].id	https://openalex.org/I184942183
authorships[2].institutions[0].ror	https://ror.org/01xtthb56
authorships[2].institutions[0].type	education
authorships[2].institutions[0].lineage	https://openalex.org/I184942183
authorships[2].institutions[0].country_code	NO
authorships[2].institutions[0].display_name	University of Oslo
authorships[2].author_position	middle
authorships[2].raw_author_name	Heidi Beate Bentzen
authorships[2].is_corresponding	False
authorships[2].raw_affiliation_strings	Centre for Medical Ethics, Faculty of Medicine, University of Oslo, Oslo, Norway
authorships[3].author.id	https://openalex.org/A5102903312
authorships[3].author.orcid	https://orcid.org/0000-0003-4146-0663
authorships[3].author.display_name	Bridget Ellul
authorships[3].countries	MT
authorships[3].affiliations[0].institution_ids	https://openalex.org/I197854408
authorships[3].affiliations[0].raw_affiliation_string	Centre for Molecular Medicine and Biobanking, University of Malta, Msida, Malta
authorships[3].institutions[0].id	https://openalex.org/I197854408
authorships[3].institutions[0].ror	https://ror.org/03a62bv60
authorships[3].institutions[0].type	education
authorships[3].institutions[0].lineage	https://openalex.org/I197854408
authorships[3].institutions[0].country_code	MT
authorships[3].institutions[0].display_name	University of Malta
authorships[3].author_position	middle
authorships[3].raw_author_name	Bridget Ellul
authorships[3].is_corresponding	False
authorships[3].raw_affiliation_strings	Centre for Molecular Medicine and Biobanking, University of Malta, Msida, Malta
authorships[4].author.id	https://openalex.org/A5065490864
authorships[4].author.orcid	https://orcid.org/0000-0001-6805-3094
authorships[4].author.display_name	Therese Haugdahl Nøst
authorships[4].countries	NO
authorships[4].affiliations[0].institution_ids	https://openalex.org/I78037679
authorships[4].affiliations[0].raw_affiliation_string	Department of Community Medicine, Faculty of Health Sciences, UiT The Arctic University of Norway, N-9037, Tromsø, Norway
authorships[4].institutions[0].id	https://openalex.org/I78037679
authorships[4].institutions[0].ror	https://ror.org/00wge5k78
authorships[4].institutions[0].type	education
authorships[4].institutions[0].lineage	https://openalex.org/I78037679
authorships[4].institutions[0].country_code	NO
authorships[4].institutions[0].display_name	UiT The Arctic University of Norway
authorships[4].author_position	middle
authorships[4].raw_author_name	Therese Haugdahl Nøst
authorships[4].is_corresponding	False
authorships[4].raw_affiliation_strings	Department of Community Medicine, Faculty of Health Sciences, UiT The Arctic University of Norway, N-9037, Tromsø, Norway
authorships[5].author.id	https://openalex.org/A5010025118
authorships[5].author.orcid	https://orcid.org/0000-0001-9344-3297
authorships[5].author.display_name	Angeliki Kerasidou
authorships[5].countries	GB
authorships[5].affiliations[0].institution_ids	https://openalex.org/I40120149, https://openalex.org/I4210162189
authorships[5].affiliations[0].raw_affiliation_string	Ethox Centre and Wellcome Centre for Ethics and Humanities, Nuffield department of Population Health, University of Oxford, Oxford, OX3 7RF, UK
authorships[5].institutions[0].id	https://openalex.org/I40120149
authorships[5].institutions[0].ror	https://ror.org/052gg0110
authorships[5].institutions[0].type	education
authorships[5].institutions[0].lineage	https://openalex.org/I40120149
authorships[5].institutions[0].country_code	GB
authorships[5].institutions[0].display_name	University of Oxford
authorships[5].institutions[1].id	https://openalex.org/I4210162189
authorships[5].institutions[1].ror	https://ror.org/05crdvn36
authorships[5].institutions[1].type	facility
authorships[5].institutions[1].lineage	https://openalex.org/I40120149, https://openalex.org/I4210162189, https://openalex.org/I87048295
authorships[5].institutions[1].country_code	GB
authorships[5].institutions[1].display_name	Wellcome Centre for Ethics and Humanities
authorships[5].author_position	middle
authorships[5].raw_author_name	Angeliki Kerasidou
authorships[5].is_corresponding	False
authorships[5].raw_affiliation_strings	Ethox Centre and Wellcome Centre for Ethics and Humanities, Nuffield department of Population Health, University of Oxford, Oxford, OX3 7RF, UK
authorships[6].author.id	https://openalex.org/A5011332407
authorships[6].author.orcid	https://orcid.org/0000-0002-4137-1495
authorships[6].author.display_name	Shona M. Kerr
authorships[6].countries	GB
authorships[6].affiliations[0].institution_ids	https://openalex.org/I2800150677, https://openalex.org/I4210158898, https://openalex.org/I98677209
authorships[6].affiliations[0].raw_affiliation_string	MRC Human Genetics Unit, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital, Edinburgh, EH4 2XU, UK
authorships[6].institutions[0].id	https://openalex.org/I4210158898
authorships[6].institutions[0].ror	https://ror.org/05hygey35
authorships[6].institutions[0].type	facility
authorships[6].institutions[0].lineage	https://openalex.org/I4210087105, https://openalex.org/I4210158898, https://openalex.org/I90344618, https://openalex.org/I98677209
authorships[6].institutions[0].country_code	GB
authorships[6].institutions[0].display_name	Institute of Genetics and Cancer
authorships[6].institutions[1].id	https://openalex.org/I98677209
authorships[6].institutions[1].ror	https://ror.org/01nrxwf90
authorships[6].institutions[1].type	education
authorships[6].institutions[1].lineage	https://openalex.org/I98677209
authorships[6].institutions[1].country_code	GB
authorships[6].institutions[1].display_name	University of Edinburgh
authorships[6].institutions[2].id	https://openalex.org/I2800150677
authorships[6].institutions[2].ror	https://ror.org/009kr6r15
authorships[6].institutions[2].type	healthcare
authorships[6].institutions[2].lineage	https://openalex.org/I1324252669, https://openalex.org/I2800150677
authorships[6].institutions[2].country_code	GB
authorships[6].institutions[2].display_name	Western General Hospital
authorships[6].author_position	middle
authorships[6].raw_author_name	Shona M. Kerr
authorships[6].is_corresponding	False
authorships[6].raw_affiliation_strings	MRC Human Genetics Unit, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital, Edinburgh, EH4 2XU, UK
authorships[7].author.id	https://openalex.org/A5091071740
authorships[7].author.orcid	https://orcid.org/0000-0001-6932-0473
authorships[7].author.display_name	Michaela Th. Mayrhofer
authorships[7].countries	AT
authorships[7].affiliations[0].institution_ids	https://openalex.org/I4210094377
authorships[7].affiliations[0].raw_affiliation_string	BBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria
authorships[7].institutions[0].id	https://openalex.org/I4210094377
authorships[7].institutions[0].ror	https://ror.org/00pwncn89
authorships[7].institutions[0].type	other
authorships[7].institutions[0].lineage	https://openalex.org/I4210094377
authorships[7].institutions[0].country_code	AT
authorships[7].institutions[0].display_name	Biobanking and Biomolecular Resources Research Infrastructure Consortium
authorships[7].author_position	middle
authorships[7].raw_author_name	Michaela Th. Mayrhofer
authorships[7].is_corresponding	False
authorships[7].raw_affiliation_strings	BBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria
authorships[8].author.id	https://openalex.org/A5083720322
authorships[8].author.orcid	https://orcid.org/0000-0002-3190-100X
authorships[8].author.display_name	Signe Mežinska
authorships[8].countries	LV
authorships[8].affiliations[0].institution_ids	https://openalex.org/I91123046
authorships[8].affiliations[0].raw_affiliation_string	Institute of Clinical and Preventive Medicine, University of Latvia, Riga, Latvia
authorships[8].institutions[0].id	https://openalex.org/I91123046
authorships[8].institutions[0].ror	https://ror.org/05g3mes96
authorships[8].institutions[0].type	education
authorships[8].institutions[0].lineage	https://openalex.org/I91123046
authorships[8].institutions[0].country_code	LV
authorships[8].institutions[0].display_name	University of Latvia
authorships[8].author_position	middle
authorships[8].raw_author_name	Signe Mežinska
authorships[8].is_corresponding	False
authorships[8].raw_affiliation_strings	Institute of Clinical and Preventive Medicine, University of Latvia, Riga, Latvia
authorships[9].author.id	https://openalex.org/A5043594526
authorships[9].author.orcid	https://orcid.org/0000-0002-9116-4064
authorships[9].author.display_name	Elizabeth Ormondroyd
authorships[9].countries	GB
authorships[9].affiliations[0].institution_ids	https://openalex.org/I40120149, https://openalex.org/I4210146357
authorships[9].affiliations[0].raw_affiliation_string	Radcliffe Department of Medicine, NIHR Oxford Biomedical Research Centre United Kingdom, University of Oxford, Oxford, UK
authorships[9].institutions[0].id	https://openalex.org/I4210146357
authorships[9].institutions[0].ror	https://ror.org/03dp0vf82
authorships[9].institutions[0].type	company
authorships[9].institutions[0].lineage	https://openalex.org/I4210146357
authorships[9].institutions[0].country_code	GB
authorships[9].institutions[0].display_name	Oxford BioMedica (United Kingdom)
authorships[9].institutions[1].id	https://openalex.org/I40120149
authorships[9].institutions[1].ror	https://ror.org/052gg0110
authorships[9].institutions[1].type	education
authorships[9].institutions[1].lineage	https://openalex.org/I40120149
authorships[9].institutions[1].country_code	GB
authorships[9].institutions[1].display_name	University of Oxford
authorships[9].author_position	middle
authorships[9].raw_author_name	Elizabeth Ormondroyd
authorships[9].is_corresponding	False
authorships[9].raw_affiliation_strings	Radcliffe Department of Medicine, NIHR Oxford Biomedical Research Centre United Kingdom, University of Oxford, Oxford, UK
authorships[10].author.id	https://openalex.org/A5005215753
authorships[10].author.orcid	https://orcid.org/0000-0001-6434-082X
authorships[10].author.display_name	Berge Solberg
authorships[10].countries	NO
authorships[10].affiliations[0].institution_ids	https://openalex.org/I204778367
authorships[10].affiliations[0].raw_affiliation_string	Department of Public Health and Nursing, The Norwegian University of Science and Technology (NTNU), Trondheim, Norway
authorships[10].institutions[0].id	https://openalex.org/I204778367
authorships[10].institutions[0].ror	https://ror.org/05xg72x27
authorships[10].institutions[0].type	education
authorships[10].institutions[0].lineage	https://openalex.org/I204778367
authorships[10].institutions[0].country_code	NO
authorships[10].institutions[0].display_name	Norwegian University of Science and Technology
authorships[10].author_position	middle
authorships[10].raw_author_name	Berge Solberg
authorships[10].is_corresponding	False
authorships[10].raw_affiliation_strings	Department of Public Health and Nursing, The Norwegian University of Science and Technology (NTNU), Trondheim, Norway
authorships[11].author.id	https://openalex.org/A5054372914
authorships[11].author.orcid
authorships[11].author.display_name	Birgitte Wirum Sand
authorships[11].countries	NO
authorships[11].affiliations[0].institution_ids	https://openalex.org/I1333353642
authorships[11].affiliations[0].raw_affiliation_string	Norwegian Institute of Public Health, Legal department, Oslo, Norway
authorships[11].institutions[0].id	https://openalex.org/I1333353642
authorships[11].institutions[0].ror	https://ror.org/046nvst19
authorships[11].institutions[0].type	government
authorships[11].institutions[0].lineage	https://openalex.org/I1333353642, https://openalex.org/I4210149801, https://openalex.org/I4210163359
authorships[11].institutions[0].country_code	NO
authorships[11].institutions[0].display_name	Norwegian Institute of Public Health
authorships[11].author_position	middle
authorships[11].raw_author_name	Birgitte Wirum Sand
authorships[11].is_corresponding	False
authorships[11].raw_affiliation_strings	Norwegian Institute of Public Health, Legal department, Oslo, Norway
authorships[12].author.id	https://openalex.org/A5010013023
authorships[12].author.orcid	https://orcid.org/0000-0002-4610-1662
authorships[12].author.display_name	Isabelle Budin‐Ljøsne
authorships[12].countries	NO
authorships[12].affiliations[0].institution_ids	https://openalex.org/I1333353642
authorships[12].affiliations[0].raw_affiliation_string	Division of Climate and Environmental Health, Department of Food Safety, Norwegian Institute of Public Health, Oslo, Norway
authorships[12].institutions[0].id	https://openalex.org/I1333353642
authorships[12].institutions[0].ror	https://ror.org/046nvst19
authorships[12].institutions[0].type	government
authorships[12].institutions[0].lineage	https://openalex.org/I1333353642, https://openalex.org/I4210149801, https://openalex.org/I4210163359
authorships[12].institutions[0].country_code	NO
authorships[12].institutions[0].display_name	Norwegian Institute of Public Health
authorships[12].author_position	last
authorships[12].raw_author_name	Isabelle Budin-Ljøsne
authorships[12].is_corresponding	False
authorships[12].raw_affiliation_strings	Division of Climate and Environmental Health, Department of Food Safety, Norwegian Institute of Public Health, Oslo, Norway
has_content.pdf	True
has_content.grobid_xml	True
is_paratext	False
open_access.is_oa	True
open_access.oa_url	https://www.nature.com/articles/s41431-023-01328-6.pdf
open_access.oa_status	hybrid
open_access.any_repository_has_fulltext	False
created_date	2025-10-10T00:00:00
display_name	A practical checklist for return of results from genomic research in the European context
has_fulltext	True
is_retracted	False
updated_date	2025-11-06T03:46:38.306776
primary_topic.id	https://openalex.org/T10582
primary_topic.field.id	https://openalex.org/fields/27
primary_topic.field.display_name	Medicine
primary_topic.score	0.9994999766349792
primary_topic.domain.id	https://openalex.org/domains/4
primary_topic.domain.display_name	Health Sciences
primary_topic.subfield.id	https://openalex.org/subfields/2739
primary_topic.subfield.display_name	Public Health, Environmental and Occupational Health
primary_topic.display_name	Ethics in Clinical Research
related_works	https://openalex.org/W4285087457, https://openalex.org/W2105971613, https://openalex.org/W3113746618, https://openalex.org/W4226051228, https://openalex.org/W2114908695, https://openalex.org/W2066053837, https://openalex.org/W2744989144, https://openalex.org/W1999517643, https://openalex.org/W2756318640, https://openalex.org/W3203993952
cited_by_count	14
counts_by_year[0].year	2025
counts_by_year[0].cited_by_count	4
counts_by_year[1].year	2024
counts_by_year[1].cited_by_count	8
counts_by_year[2].year	2023
counts_by_year[2].cited_by_count	2
locations_count	6
best_oa_location.id	doi:10.1038/s41431-023-01328-6
best_oa_location.is_oa	True
best_oa_location.source.id	https://openalex.org/S121703463
best_oa_location.source.issn	1018-4813, 1476-5438
best_oa_location.source.type	journal
best_oa_location.source.is_oa	False
best_oa_location.source.issn_l	1018-4813
best_oa_location.source.is_core	True
best_oa_location.source.is_in_doaj	False
best_oa_location.source.display_name	European Journal of Human Genetics
best_oa_location.source.host_organization	https://openalex.org/P4310319965
best_oa_location.source.host_organization_name	Springer Nature
best_oa_location.source.host_organization_lineage	https://openalex.org/P4310319965
best_oa_location.license	cc-by
best_oa_location.pdf_url	https://www.nature.com/articles/s41431-023-01328-6.pdf
best_oa_location.version	publishedVersion
best_oa_location.raw_type	journal-article
best_oa_location.license_id	https://openalex.org/licenses/cc-by
best_oa_location.is_accepted	True
best_oa_location.is_published	True
best_oa_location.raw_source_name	European Journal of Human Genetics
best_oa_location.landing_page_url	https://doi.org/10.1038/s41431-023-01328-6
primary_location.id	doi:10.1038/s41431-023-01328-6
primary_location.is_oa	True
primary_location.source.id	https://openalex.org/S121703463
primary_location.source.issn	1018-4813, 1476-5438
primary_location.source.type	journal
primary_location.source.is_oa	False
primary_location.source.issn_l	1018-4813
primary_location.source.is_core	True
primary_location.source.is_in_doaj	False
primary_location.source.display_name	European Journal of Human Genetics
primary_location.source.host_organization	https://openalex.org/P4310319965
primary_location.source.host_organization_name	Springer Nature
primary_location.source.host_organization_lineage	https://openalex.org/P4310319965
primary_location.license	cc-by
primary_location.pdf_url	https://www.nature.com/articles/s41431-023-01328-6.pdf
primary_location.version	publishedVersion
primary_location.raw_type	journal-article
primary_location.license_id	https://openalex.org/licenses/cc-by
primary_location.is_accepted	True
primary_location.is_published	True
primary_location.raw_source_name	European Journal of Human Genetics
primary_location.landing_page_url	https://doi.org/10.1038/s41431-023-01328-6
publication_date	2023-03-22
publication_year	2023
referenced_works	https://openalex.org/W2964588347, https://openalex.org/W3106679649, https://openalex.org/W3032978456, https://openalex.org/W3208534178, https://openalex.org/W3087035643, https://openalex.org/W2770011202, https://openalex.org/W2782490876, https://openalex.org/W2077832026, https://openalex.org/W3213227864, https://openalex.org/W2517276995, https://openalex.org/W2793907050, https://openalex.org/W2808076104, https://openalex.org/W2898492530, https://openalex.org/W2972171142, https://openalex.org/W3090817927, https://openalex.org/W2002029139, https://openalex.org/W2016047412, https://openalex.org/W4246867795, https://openalex.org/W2911081517, https://openalex.org/W2003159632, https://openalex.org/W2121637116, https://openalex.org/W3110213700, https://openalex.org/W2155131570, https://openalex.org/W3025148138, https://openalex.org/W2989673129, https://openalex.org/W3036064564, https://openalex.org/W2951672808, https://openalex.org/W4238285403, https://openalex.org/W4321429306, https://openalex.org/W3107941938, https://openalex.org/W2341635170, https://openalex.org/W4220751443, https://openalex.org/W2770026599, https://openalex.org/W2051978340, https://openalex.org/W2751841665, https://openalex.org/W3212584598, https://openalex.org/W3180133480, https://openalex.org/W3201745002, https://openalex.org/W4210940568, https://openalex.org/W4225757263, https://openalex.org/W3186563055, https://openalex.org/W3161833585, https://openalex.org/W2138994599, https://openalex.org/W4210835581, https://openalex.org/W2171718922
referenced_works_count	45
abstract_inverted_index
cited_by_percentile_year.max	99
cited_by_percentile_year.min	94
corresponding_author_ids	https://openalex.org/A5082467704
countries_distinct_count	6
institutions_distinct_count	13
corresponding_institution_ids	https://openalex.org/I4210150290
sustainable_development_goals[0].id	https://metadata.un.org/sdg/17
sustainable_development_goals[0].score	0.4099999964237213
sustainable_development_goals[0].display_name	Partnerships for the goals
citation_normalized_percentile.value	0.94912364
citation_normalized_percentile.is_in_top_1_percent	False
citation_normalized_percentile.is_in_top_10_percent	True