A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer Article Swipe
Nadia Khan
,
Ashika Maharaj
,
Sue Evans
,
Charles Pilgrim
,
John Zalcberg
,
Wendy A. Brown
,
Paul Cashin
,
Daniel Croagh
,
Natasha Michael
,
Jeremy Shapiro
,
Kate White
,
Liane Ioannou
·
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.1186/s12913-022-07625-y
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.1186/s12913-022-07625-y
Background Pancreatic and oesophagogastric (OG) cancers have a dismal prognosis and high symptom burden, with supportive care forming an integral component of the care provided to patients. This study aimed to explore the supportive care experiences of patients and caregivers living with pancreatic and OG cancers in order to identify perceived opportunities for improvement. Methods Semi-structured individual interviews were conducted with people living with pancreatic and OG cancers, and their caregivers, across Victoria, Australia during 2020. Interviews were thematically analysed to identify common themes. Results Forty-one participants were interviewed, including 30 patients and 11 caregivers. Three overarching themes, each with multiple sub-themes, were identified: (i) inadequate support for symptoms and issues across the cancer journey (ii) caregiver’s desire for greater support, and (iii) a multidisciplinary care team is the hallmark of a positive supportive care experience. Generally, those who had access to a cancer care coordinator and/or a palliative care team recounted more positive supportive care experiences. Conclusion Unmet needs are prevalent across the pancreatic and OG cancer journey, with supportive care provided to varying levels of satisfaction. Greater awareness of and access to high-quality multidisciplinary support services is greatly desired by both patients with pancreatic and OG cancer and their caregivers.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1186/s12913-022-07625-y
- https://bmchealthservres.biomedcentral.com/track/pdf/10.1186/s12913-022-07625-y
- OA Status
- gold
- Cited By
- 24
- References
- 36
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4212990840
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4212990840Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1186/s12913-022-07625-yDigital Object Identifier
- Title
-
A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancerWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
-
2022Year of publication
- Publication date
-
2022-02-17Full publication date if available
- Authors
-
Nadia Khan, Ashika Maharaj, Sue Evans, Charles Pilgrim, John Zalcberg, Wendy A. Brown, Paul Cashin, Daniel Croagh, Natasha Michael, Jeremy Shapiro, Kate White, Liane IoannouList of authors in order
- Landing page
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https://doi.org/10.1186/s12913-022-07625-yPublisher landing page
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https://bmchealthservres.biomedcentral.com/track/pdf/10.1186/s12913-022-07625-yDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://bmchealthservres.biomedcentral.com/track/pdf/10.1186/s12913-022-07625-yDirect OA link when available
- Concepts
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Medicine, Palliative care, Nursing research, Pancreatic cancer, Multidisciplinary approach, Nursing, Qualitative research, Quality of Life Research, Cancer, Family medicine, Public health, Internal medicine, Social science, SociologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
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24Total citation count in OpenAlex
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2025: 7, 2024: 13, 2023: 3, 2022: 1Per-year citation counts (last 5 years)
- References (count)
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36Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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