A qualitative study of facilitators of medication adherence in systemic lupus erythematosus: Perspectives from rheumatology providers/staff and patients Article Swipe
Shannon Herndon
,
Amy Corneli
,
Carrie Dombeck
,
Teresa Swezey
,
Megan E. B. Clowse
,
Jennifer L Rogers
,
Lisa Criscione‐Schreiber
,
Rebecca E. Sadun
,
Jayanth Doss
,
Amanda M. Eudy
,
Hayden B. Bosworth
,
Kai Sun
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1177/09612033231225843
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1177/09612033231225843
Objective Systemic lupus erythematosus (SLE) disproportionately affects patients from racial and ethnic minority groups. Medication adherence is lower among these patient populations, and nonadherence is associated with worse health outcomes. We aimed to identify factors that enable adherence to immunosuppressive medications among patients with SLE from racial and ethnic minority groups. Methods Using a qualitative descriptive study design, we conducted in-depth interviews with purposefully selected (1) patients with SLE from racial and ethnic minority groups who were taking immunosuppressants and (2) lupus providers and staff. We focused on adherence facilitators, asking patients to describe approaches supporting adherence and for overcoming common adherence challenges and providers and staff to describe actions they can take to foster patient adherence. We used applied thematic analysis and categorized themes using the Capability, Opportunity, Motivation, Behavior (COM-B) model. Results We interviewed 12 patients (4 adherent and 8 nonadherent based on medication possession ratio) and 12 providers and staff. Although each patient described a unique set of facilitators, patients most often described social support, physical well-being, reminders, and ability to acquire medications as facilitators. Providers also commonly mentioned reminders and easy medication access as facilitators as well as patient education/communication and empowerment. Conclusion Using an established behavioral change model, we categorized a breadth of adherence facilitators within each domain of the COM-B model while highlighting patients’ individual approaches. Our findings suggest that an optimal adherence intervention may require a multi-modal and individually tailored approach including components from each behavioral domain—ensuring medication access (Capability) and utilizing reminders and social support (Opportunity), while coupled with internal motivation through improved communication and empowerment (Motivation).
Related Topics
Concepts
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1177/09612033231225843
- OA Status
- green
- Cited By
- 1
- References
- 34
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4390500141
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4390500141Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1177/09612033231225843Digital Object Identifier
- Title
-
A qualitative study of facilitators of medication adherence in systemic lupus erythematosus: Perspectives from rheumatology providers/staff and patientsWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2024Year of publication
- Publication date
-
2024-01-02Full publication date if available
- Authors
-
Shannon Herndon, Amy Corneli, Carrie Dombeck, Teresa Swezey, Megan E. B. Clowse, Jennifer L Rogers, Lisa Criscione‐Schreiber, Rebecca E. Sadun, Jayanth Doss, Amanda M. Eudy, Hayden B. Bosworth, Kai SunList of authors in order
- Landing page
-
https://doi.org/10.1177/09612033231225843Publisher landing page
- Open access
-
YesWhether a free full text is available
- OA status
-
greenOpen access status per OpenAlex
- OA URL
-
https://pmc.ncbi.nlm.nih.gov/articles/PMC10922388/pdf/nihms-1954719.pdfDirect OA link when available
- Concepts
-
Medicine, Ethnic group, Thematic analysis, Qualitative research, Medication adherence, Family medicine, Intervention (counseling), Systemic lupus erythematosus, Social support, Nursing, Internal medicine, Disease, Psychology, Anthropology, Social science, Psychotherapist, SociologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
1Total citation count in OpenAlex
- Citations by year (recent)
-
2025: 1Per-year citation counts (last 5 years)
- References (count)
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34Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.highlighting | 218 |
| abstract_inverted_index.individually | 235 |
| abstract_inverted_index.intervention | 229 |
| abstract_inverted_index.nonadherence | 23 |
| abstract_inverted_index.populations, | 21 |
| abstract_inverted_index.purposefully | 63 |
| abstract_inverted_index.(Motivation). | 264 |
| abstract_inverted_index.communication | 261 |
| abstract_inverted_index.erythematosus | 3 |
| abstract_inverted_index.facilitators, | 89, 161 |
| abstract_inverted_index.facilitators. | 177 |
| abstract_inverted_index.(Opportunity), | 253 |
| abstract_inverted_index.domain—ensuring | 243 |
| abstract_inverted_index.immunosuppressive | 39 |
| abstract_inverted_index.disproportionately | 5 |
| abstract_inverted_index.immunosuppressants | 78 |
| abstract_inverted_index.education/communication | 193 |
| cited_by_percentile_year.max | 95 |
| cited_by_percentile_year.min | 91 |
| corresponding_author_ids | https://openalex.org/A5000003180 |
| countries_distinct_count | 1 |
| institutions_distinct_count | 12 |
| corresponding_institution_ids | https://openalex.org/I170897317 |
| citation_normalized_percentile.value | 0.63255966 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | False |