“A quality of heart, of presence, and of really caring”: toward affirmative intersex health communication in Canada Article Swipe
Terese Knoppers
,
Angelica Voutsinas
,
Nicole Palmour
,
Kaleb Saulnier
,
Morgan Holmes
,
Marilou Charron
,
Hortense Gallois
,
Nadia Jamali
,
Leslie Ordal
,
Yann Joly
·
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.3389/fpubh.2024.1436354
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.3389/fpubh.2024.1436354
Introduction This qualitative research study aimed to better understand and help improve the Canadian context for health communication with intersex adults by centering the voices of those directly involved and impacted. Methods We conducted 22 semi-structured interviews with intersex individuals (14) and healthcare practitioners (HCPs, 8) from diverse areas of care. Interviews were analyzed via template thematic analysis and filtered through a conceptual lens that brought together agency-based and social-ecological models of health communication. Results Findings produced three interlocking axes for change: HCP skills and approaches, structural access to care, and norms and discourses. Participant accounts depict a landscape for intersex health communication where practices are improving, but adverse experiences are still commonplace and intersex individuals cannot assume HCPs will be competent in intersex care. Rather, they utilize a variety of strategies and expend considerable efforts navigating structural gaps and barriers to access affirmative HCPs, who themselves often gained their expertise via individual initiative. Interviewees advocated for HCPs to get a baseline background in intersex care during their medical training, as well as skills in accessible health communication and person-centered and trauma-informed approaches. They also connected broader societal stigma and pathologization to harmful medical practices and called for naturalization and normalization of intersex variations. Conclusion This study highlights the need for collaborative efforts across multiple sectors and by multiple stakeholders to drive meaningful change. Findings can help guide HCPs, medical educators, researchers, advocates, and policymakers towards accessible, affirmative, and agency-based care.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3389/fpubh.2024.1436354
- https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2024.1436354/pdf
- OA Status
- gold
- Cited By
- 1
- References
- 48
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4406083078
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4406083078Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.3389/fpubh.2024.1436354Digital Object Identifier
- Title
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“A quality of heart, of presence, and of really caring”: toward affirmative intersex health communication in CanadaWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2025Year of publication
- Publication date
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2025-01-06Full publication date if available
- Authors
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Terese Knoppers, Angelica Voutsinas, Nicole Palmour, Kaleb Saulnier, Morgan Holmes, Marilou Charron, Hortense Gallois, Nadia Jamali, Leslie Ordal, Yann JolyList of authors in order
- Landing page
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https://doi.org/10.3389/fpubh.2024.1436354Publisher landing page
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https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2024.1436354/pdfDirect link to full text PDF
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2024.1436354/pdfDirect OA link when available
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Quality (philosophy), Medicine, Psychology, Family medicine, Philosophy, EpistemologyTop concepts (fields/topics) attached by OpenAlex
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1Total citation count in OpenAlex
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2025: 1Per-year citation counts (last 5 years)
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48Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.accounts | 95 |
| abstract_inverted_index.analysis | 57 |
| abstract_inverted_index.analyzed | 53 |
| abstract_inverted_index.barriers | 140 |
| abstract_inverted_index.baseline | 161 |
| abstract_inverted_index.directly | 27 |
| abstract_inverted_index.filtered | 59 |
| abstract_inverted_index.intersex | 19, 38, 100, 114, 123, 164, 202 |
| abstract_inverted_index.involved | 28 |
| abstract_inverted_index.multiple | 214, 218 |
| abstract_inverted_index.produced | 76 |
| abstract_inverted_index.research | 3 |
| abstract_inverted_index.societal | 187 |
| abstract_inverted_index.template | 55 |
| abstract_inverted_index.thematic | 56 |
| abstract_inverted_index.together | 66 |
| abstract_inverted_index.advocated | 155 |
| abstract_inverted_index.centering | 22 |
| abstract_inverted_index.competent | 121 |
| abstract_inverted_index.conducted | 33 |
| abstract_inverted_index.connected | 185 |
| abstract_inverted_index.expertise | 150 |
| abstract_inverted_index.impacted. | 30 |
| abstract_inverted_index.landscape | 98 |
| abstract_inverted_index.practices | 104, 194 |
| abstract_inverted_index.training, | 169 |
| abstract_inverted_index.Conclusion | 204 |
| abstract_inverted_index.Interviews | 51 |
| abstract_inverted_index.accessible | 175 |
| abstract_inverted_index.advocates, | 232 |
| abstract_inverted_index.background | 162 |
| abstract_inverted_index.conceptual | 62 |
| abstract_inverted_index.educators, | 230 |
| abstract_inverted_index.healthcare | 42 |
| abstract_inverted_index.highlights | 207 |
| abstract_inverted_index.improving, | 106 |
| abstract_inverted_index.individual | 152 |
| abstract_inverted_index.interviews | 36 |
| abstract_inverted_index.meaningful | 222 |
| abstract_inverted_index.navigating | 136 |
| abstract_inverted_index.strategies | 131 |
| abstract_inverted_index.structural | 86, 137 |
| abstract_inverted_index.themselves | 146 |
| abstract_inverted_index.understand | 8 |
| abstract_inverted_index.Participant | 94 |
| abstract_inverted_index.accessible, | 236 |
| abstract_inverted_index.affirmative | 143 |
| abstract_inverted_index.approaches, | 85 |
| abstract_inverted_index.approaches. | 182 |
| abstract_inverted_index.commonplace | 112 |
| abstract_inverted_index.discourses. | 93 |
| abstract_inverted_index.experiences | 109 |
| abstract_inverted_index.individuals | 39, 115 |
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| abstract_inverted_index.qualitative | 2 |
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| abstract_inverted_index.Interviewees | 154 |
| abstract_inverted_index.Introduction | 0 |
| abstract_inverted_index.affirmative, | 237 |
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| abstract_inverted_index.researchers, | 231 |
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| abstract_inverted_index.communication. | 73 |
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| abstract_inverted_index.trauma-informed | 181 |
| abstract_inverted_index.social-ecological | 69 |
| cited_by_percentile_year.max | 95 |
| cited_by_percentile_year.min | 91 |
| corresponding_author_ids | https://openalex.org/A5023963542 |
| countries_distinct_count | 2 |
| institutions_distinct_count | 10 |
| corresponding_institution_ids | https://openalex.org/I2801766832 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/4 |
| sustainable_development_goals[0].score | 0.46000000834465027 |
| sustainable_development_goals[0].display_name | Quality Education |
| citation_normalized_percentile.value | 0.74358518 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |