Acceptability and use of a patient-held communication tool for people living with dementia: a longitudinal qualitative study Article Swipe
Gerard Leavey
,
Dagmar Corry
,
Bethany Waterhouse‐Bradley
,
Emma Curran
,
Stephen Todd
,
Sonja McIlfatrick
,
Vivien Coates
,
Max Watson
,
Aine Abbott
,
Bernadine McCrory
,
Brendan McCormack
·
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2019-036249
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2019-036249
Objectives To assess the acceptability and use of a low-cost patient-held communication tool. Design Longitudinal qualitative interviews at three time points over 18 months and document content analysis. Setting Primary and community services. Participants Twenty-eight dyads: People living with dementia in Northern Ireland and their informal carers. Interventions A patient-held healthcare ‘passport’ for people living with dementia. Primary and secondary outcomes Acceptability and use of the passport—barriers and facilitators to successful engagement. Results There was a qualified appreciation of the healthcare passport and a much more nuanced, individualistic or personalised approach to its desirability and use. How people perceive it and what they actually do with it are strongly determined by individual contexts, dementia stage and other health problems, social and family needs and capacities. We noted concerns about privacy and ambivalence about engaging with health professionals. Conclusion Such tools may be of use but there is a need for demanding, thoughtful and nuanced programme delivery for future implementation in dementia care. The incentivisation and commitment of general practitioners is crucial. Altering the asymmetrical relationship between professionals and patients requires more extensive attention.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1136/bmjopen-2019-036249
- https://bmjopen.bmj.com/content/bmjopen/10/5/e036249.full.pdf
- OA Status
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- Cited By
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- References
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- Related Works
- 10
- OpenAlex ID
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All OpenAlex metadata
Raw OpenAlex JSON
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- DOI
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https://doi.org/10.1136/bmjopen-2019-036249Digital Object Identifier
- Title
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Acceptability and use of a patient-held communication tool for people living with dementia: a longitudinal qualitative studyWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2020Year of publication
- Publication date
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2020-05-01Full publication date if available
- Authors
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Gerard Leavey, Dagmar Corry, Bethany Waterhouse‐Bradley, Emma Curran, Stephen Todd, Sonja McIlfatrick, Vivien Coates, Max Watson, Aine Abbott, Bernadine McCrory, Brendan McCormackList of authors in order
- Landing page
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https://doi.org/10.1136/bmjopen-2019-036249Publisher landing page
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https://bmjopen.bmj.com/content/bmjopen/10/5/e036249.full.pdfDirect link to full text PDF
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://bmjopen.bmj.com/content/bmjopen/10/5/e036249.full.pdfDirect OA link when available
- Concepts
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Medicine, Dementia, Qualitative research, Ambivalence, Psychological intervention, Nursing, Gerontology, Psychology, Social psychology, Disease, Social science, Pathology, SociologyTop concepts (fields/topics) attached by OpenAlex
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2Total citation count in OpenAlex
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2023: 1, 2022: 1Per-year citation counts (last 5 years)
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.Twenty-eight | 34 |
| abstract_inverted_index.appreciation | 77 |
| abstract_inverted_index.asymmetrical | 173 |
| abstract_inverted_index.desirability | 93 |
| abstract_inverted_index.facilitators | 68 |
| abstract_inverted_index.patient-held | 10, 49 |
| abstract_inverted_index.personalised | 89 |
| abstract_inverted_index.relationship | 174 |
| abstract_inverted_index.Acceptability | 61 |
| abstract_inverted_index.Interventions | 47 |
| abstract_inverted_index.acceptability | 4 |
| abstract_inverted_index.communication | 11 |
| abstract_inverted_index.practitioners | 168 |
| abstract_inverted_index.professionals | 176 |
| abstract_inverted_index.implementation | 158 |
| abstract_inverted_index.professionals. | 136 |
| abstract_inverted_index.‘passport’ | 51 |
| abstract_inverted_index.incentivisation | 163 |
| abstract_inverted_index.individualistic | 87 |
| abstract_inverted_index.passport—barriers | 66 |
| cited_by_percentile_year.max | 94 |
| cited_by_percentile_year.min | 89 |
| corresponding_author_ids | https://openalex.org/A5000280912 |
| countries_distinct_count | 1 |
| institutions_distinct_count | 11 |
| corresponding_institution_ids | https://openalex.org/I138801177, https://openalex.org/I33618826 |
| citation_normalized_percentile.value | 0.74807008 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | False |