Advance Care Planning Participation by People With Dementia: A Cross-Sectional Survey and Medical Record Audit Article Swipe
Jamie Bryant
,
Marcus Sellars
,
Amy Waller
,
Karen Detering
,
Craig Sinclair
,
Rasa Ruseckaite
,
Ben White
,
Linda Nolte
·
YOU?
·
· 2021
· Open Access
·
YOU?
·
· 2021
· Open Access
·
Objectives: To describe among individuals with dementia: (1) self-reported awareness of, and engagement in, advance care planning; (2) presence of advance care planning documentation in the health record and (3) concordance between self-reported completion of advance care planning and presence of documentation in the health record.
Methods: An Australian prospective multicentre audit and cross-sectional survey. Individuals diagnosed with dementia who were able to speak English and were judged by a healthcare provider as having decision-making capacity were recruited from self-selected hospitals, residential aged care facilities and general practices across Australia.
Results: Fifty-two people with dementia completed surveys and were included. Overall, 59.6% of participants had heard about advance care planning and 55.8% had discussed advance care planning with someone, most often a family member (48.1%). While 38.5% of participants had appointed a medical substitute decision maker, only 26.9% reported that they had written down their values and preferences for future care. Concordance between self-reported completion of advance care planning and presence of documentation in the health record was low (56.8%, κ=0.139; 57.7%, κ=0.053).
Conclusion: Effective models that promote discussion, documentation and accessible storage of advance care planning documents for people with dementia are needed.
Related Topics
Concepts
Documentation
Audit
Advance care planning
Concordance
Dementia
Medical record
Health care
Medicine
Family medicine
Cross-sectional study
Nursing
Psychology
Palliative care
Business
Disease
Economics
Programming language
Accounting
Computer science
Pathology
Economic growth
Internal medicine
Radiology
Metadata
- Type
- article
- Language
- en
- https://eprints.qut.edu.au/210094/1/2021_ACP_participation_by_people_with_dementia_audit_and_survey_early_online_BMJ_Supp_Pall_Care_.pdf
- OA Status
- green
- OpenAlex ID
- https://openalex.org/W3188816361
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3188816361Canonical identifier for this work in OpenAlex
- Title
-
Advance Care Planning Participation by People With Dementia: A Cross-Sectional Survey and Medical Record AuditWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2021Year of publication
- Publication date
-
2021-07-09Full publication date if available
- Authors
-
Jamie Bryant, Marcus Sellars, Amy Waller, Karen Detering, Craig Sinclair, Rasa Ruseckaite, Ben White, Linda NolteList of authors in order
- PDF URL
-
https://eprints.qut.edu.au/210094/1/2021_ACP_participation_by_people_with_dementia_audit_and_survey_early_online_BMJ_Supp_Pall_Care_.pdfDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
greenOpen access status per OpenAlex
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https://eprints.qut.edu.au/210094/1/2021_ACP_participation_by_people_with_dementia_audit_and_survey_early_online_BMJ_Supp_Pall_Care_.pdfDirect OA link when available
- Concepts
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Documentation, Audit, Advance care planning, Concordance, Dementia, Medical record, Health care, Medicine, Family medicine, Cross-sectional study, Nursing, Psychology, Palliative care, Business, Disease, Economics, Programming language, Accounting, Computer science, Pathology, Economic growth, Internal medicine, RadiologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
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0Total citation count in OpenAlex
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