AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative Care Article Swipe
Stefan Hoffmann
,
Robert Schraut
,
Thomas Kröll
,
Wiebke Scholz
,
T. N. Belova
,
Johann Erhardt
,
Daniel Gollmer
,
Christian Mauck
,
George Zacharioudakis
,
Marcel Meyerheim
,
Panos Bonotis
,
Christine Kakalou
,
Maria Chatzimina
,
Christina Karamanidou
,
Annette Sander
,
Jana Didi
,
Norbert Graf
,
Pantelis Natsiavas
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3389/fdgth.2021.730948
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3389/fdgth.2021.730948
MyPal is a European initiative focusing on the use of the electronic patient reported outcome (ePRO) measures to enhance patient engagement in palliative cancer care via digital self-reporting palliative care for patients with cancer. As a part of its approach, MyPal also focuses on pediatric patients, implementing a specific digital health platform including a serious game to facilitate the reporting of the symptoms and overall status regarding their quality of life (QoL). To this end, the reduction of psychological burden related to frequent reporting, a.k.a. as “reporting fatigue” has been identified as a priority. In this study, we present the MyPal-CHILD platform, emphasizing on the serious game named AquaScouts and its key design decisions, while also emphasizing on the respective challenges. More specifically, we provide insights on the participatory design approach applied during the design of the platform and the high-level goals defined based on end-user input. In addition, the validation process applied before the use of the platform under real-world conditions is also presented. Finally, we discuss a number of challenges and the prospects of deploying eHealth interventions to support palliative care.
Related Topics
Concepts
eHealth
Palliative care
Psychological intervention
Participatory design
Digital health
Quality of life (healthcare)
Citizen journalism
Process (computing)
Psychology
Quality (philosophy)
Process management
Nursing
Medicine
Health care
Computer science
Business
Operations management
Engineering
World Wide Web
Economics
Philosophy
Epistemology
Economic growth
Operating system
Parallels
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3389/fdgth.2021.730948
- https://www.frontiersin.org/articles/10.3389/fdgth.2021.730948/pdf
- OA Status
- gold
- Cited By
- 18
- References
- 17
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4200442598
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4200442598Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.3389/fdgth.2021.730948Digital Object Identifier
- Title
-
AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative CareWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2021Year of publication
- Publication date
-
2021-12-08Full publication date if available
- Authors
-
Stefan Hoffmann, Robert Schraut, Thomas Kröll, Wiebke Scholz, T. N. Belova, Johann Erhardt, Daniel Gollmer, Christian Mauck, George Zacharioudakis, Marcel Meyerheim, Panos Bonotis, Christine Kakalou, Maria Chatzimina, Christina Karamanidou, Annette Sander, Jana Didi, Norbert Graf, Pantelis NatsiavasList of authors in order
- Landing page
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https://doi.org/10.3389/fdgth.2021.730948Publisher landing page
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https://www.frontiersin.org/articles/10.3389/fdgth.2021.730948/pdfDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
-
https://www.frontiersin.org/articles/10.3389/fdgth.2021.730948/pdfDirect OA link when available
- Concepts
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eHealth, Palliative care, Psychological intervention, Participatory design, Digital health, Quality of life (healthcare), Citizen journalism, Process (computing), Psychology, Quality (philosophy), Process management, Nursing, Medicine, Health care, Computer science, Business, Operations management, Engineering, World Wide Web, Economics, Philosophy, Epistemology, Economic growth, Operating system, ParallelsTop concepts (fields/topics) attached by OpenAlex
- Cited by
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18Total citation count in OpenAlex
- Citations by year (recent)
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2025: 3, 2024: 6, 2023: 5, 2022: 4Per-year citation counts (last 5 years)
- References (count)
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17Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.AquaScouts | 108 |
| abstract_inverted_index.challenges | 171 |
| abstract_inverted_index.conditions | 161 |
| abstract_inverted_index.decisions, | 113 |
| abstract_inverted_index.electronic | 11 |
| abstract_inverted_index.engagement | 20 |
| abstract_inverted_index.facilitate | 57 |
| abstract_inverted_index.fatigue” | 87 |
| abstract_inverted_index.high-level | 140 |
| abstract_inverted_index.identified | 90 |
| abstract_inverted_index.initiative | 4 |
| abstract_inverted_index.palliative | 22, 28, 181 |
| abstract_inverted_index.presented. | 164 |
| abstract_inverted_index.real-world | 160 |
| abstract_inverted_index.reporting, | 83 |
| abstract_inverted_index.respective | 119 |
| abstract_inverted_index.validation | 150 |
| abstract_inverted_index.MyPal-CHILD | 100 |
| abstract_inverted_index.challenges. | 120 |
| abstract_inverted_index.emphasizing | 102, 116 |
| abstract_inverted_index.implementing | 46 |
| abstract_inverted_index.“reporting | 86 |
| abstract_inverted_index.interventions | 178 |
| abstract_inverted_index.participatory | 128 |
| abstract_inverted_index.psychological | 78 |
| abstract_inverted_index.specifically, | 122 |
| abstract_inverted_index.self-reporting | 27 |
| cited_by_percentile_year.max | 98 |
| cited_by_percentile_year.min | 97 |
| corresponding_author_ids | https://openalex.org/A5076846514 |
| countries_distinct_count | 3 |
| institutions_distinct_count | 18 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/17 |
| sustainable_development_goals[0].score | 0.5 |
| sustainable_development_goals[0].display_name | Partnerships for the goals |
| citation_normalized_percentile.value | 0.95291689 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |