Building a bridge for transition: A user-driven study on developing a transition clinic for adolescents with epilepsy Article Swipe
Christoph P. Beier
,
Anthony C Smith
,
Malene Kaas Larsen
,
Jane Clemensen
·
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1177/14604582251382024
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1177/14604582251382024
This study describes the development and design of the Joint Transition Clinic, a collaborative solution designed to support adolescents with epilepsy (AWE) in their transition from pediatric to adult healthcare. Using a participatory design (PD) approach, the study involved AWEs, parents, nurses, and physicians in an iterative development and co-design process. Through a series of workshops, users suggested three ideas: “The Bridge,” “The Knowledge Giraffe,” and “No rules app.” After considering all three ideas, the research team and participants agreed to proceed with the development of “The Bridge,” integrating elements from “The Knowledge Giraffe.” This process led to the creation of the Joint Transition Clinic, encompassing many of the AWEs’ needs and wishes. The PD approach proved effective in creating an organizational-based intervention that addresses patient needs and supports self-management while ensuring AWEs and their parents had a voice in its development, leading to a solution ready for pilot testing.
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Metadata
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- article
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- en
- Landing Page
- https://doi.org/10.1177/14604582251382024
- OA Status
- gold
- References
- 48
- OpenAlex ID
- https://openalex.org/W4416202629
All OpenAlex metadata
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https://doi.org/10.1177/14604582251382024Digital Object Identifier
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Building a bridge for transition: A user-driven study on developing a transition clinic for adolescents with epilepsyWork title
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articleOpenAlex work type
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enPrimary language
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2025Year of publication
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2025-10-01Full publication date if available
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Christoph P. Beier, Anthony C Smith, Malene Kaas Larsen, Jane ClemensenList of authors in order
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https://doi.org/10.1177/14604582251382024Publisher landing page
- Open access
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://doi.org/10.1177/14604582251382024Direct OA link when available
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0Total citation count in OpenAlex
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| abstract_inverted_index.physicians | 43 |
| abstract_inverted_index.transition | 24 |
| abstract_inverted_index.workshops, | 55 |
| abstract_inverted_index.Giraffe,” | 64 |
| abstract_inverted_index.Giraffe.” | 93 |
| abstract_inverted_index.adolescents | 18 |
| abstract_inverted_index.considering | 70 |
| abstract_inverted_index.development | 4, 47, 84 |
| abstract_inverted_index.healthcare. | 29 |
| abstract_inverted_index.integrating | 88 |
| abstract_inverted_index.development, | 141 |
| abstract_inverted_index.encompassing | 105 |
| abstract_inverted_index.intervention | 122 |
| abstract_inverted_index.participants | 78 |
| abstract_inverted_index.collaborative | 13 |
| abstract_inverted_index.participatory | 32 |
| abstract_inverted_index.self-management | 129 |
| abstract_inverted_index.organizational-based | 121 |
| cited_by_percentile_year | |
| countries_distinct_count | 2 |
| institutions_distinct_count | 4 |
| citation_normalized_percentile |