Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context Article Swipe
JESSICA FINNEY
,
Verna Fargas
,
Tina Gonzalez
,
Natalie Taylor
,
Claire E. Wakefield
,
Kathy Tucker
,
Erin Turbitt
,
Rachel Williams
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1002/jgc4.1982
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1002/jgc4.1982
The demand for direct‐to‐patient (DTP) telegenetics (genetics services delivered via videoconferencing) in genetic counseling practice has rapidly increased, particularly since the COVID‐19 pandemic. Recent telegenetics literature is mostly quantitative and not in the Australian context. A qualitative interview study was conducted to address this gap. This research investigated the experiences of patients and genetic counselors (GCs), enrolled in a randomized controlled trial, using telegenetics and telephone for cancer genetic counseling appointments. Twenty‐eight semi‐structured interviews with patients ( n = 22) and GCs ( n = 6) were conducted following patient randomization to either a telephone or telegenetics genetic counseling appointment. The interviews explored participant's experiences of telegenetics and compared DTP telegenetics with telephone and in‐person delivery. Codebook thematic analysis was used to develop topic summaries from the data. Patient and GC participants noted positive experiences of telegenetics; with key benefits reported as reduced travel time, time and cost saving, ease, convenience, efficiency, and comfortability. Technical issues and privacy concerns were highlighted as potential disadvantages of telegenetics. All but one patient felt sufficiently emotionally supported while using telegenetics. Telegenetics has both benefits and limitations; however, generally, this cohort found telegenetics to be a suitable and acceptable mode of delivery for genetic counseling with many advantages over in‐person or telephone appointments. Further studies should be conducted to provide evidence for the long‐term implementation of telegenetics, regardless of any future COVID‐19 pandemic lockdown restrictions.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1002/jgc4.1982
- OA Status
- hybrid
- Cited By
- 3
- References
- 49
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4403202529
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4403202529Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1002/jgc4.1982Digital Object Identifier
- Title
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Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics contextWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2024Year of publication
- Publication date
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2024-10-06Full publication date if available
- Authors
-
JESSICA FINNEY, Verna Fargas, Tina Gonzalez, Natalie Taylor, Claire E. Wakefield, Kathy Tucker, Erin Turbitt, Rachel WilliamsList of authors in order
- Landing page
-
https://doi.org/10.1002/jgc4.1982Publisher landing page
- Open access
-
YesWhether a free full text is available
- OA status
-
hybridOpen access status per OpenAlex
- OA URL
-
https://doi.org/10.1002/jgc4.1982Direct OA link when available
- Concepts
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Genetic counseling, Context (archaeology), Thematic analysis, Medicine, Genetic testing, Qualitative research, Family medicine, Nursing, Psychology, Genetics, Paleontology, Social science, Biology, Internal medicine, SociologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
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3Total citation count in OpenAlex
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2025: 3Per-year citation counts (last 5 years)
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49Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.saving, | 149 |
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| abstract_inverted_index.telegenetics. | 166, 177 |
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| cited_by_percentile_year.min | 96 |
| corresponding_author_ids | https://openalex.org/A5058179557 |
| countries_distinct_count | 1 |
| institutions_distinct_count | 8 |
| corresponding_institution_ids | https://openalex.org/I31746571, https://openalex.org/I4210108821 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/3 |
| sustainable_development_goals[0].score | 0.6600000262260437 |
| sustainable_development_goals[0].display_name | Good health and well-being |
| citation_normalized_percentile.value | 0.88444661 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |