Community research liaison role in increasing participation of African Americans in cognitive research: A case study Article Swipe
Sharon A. Brangman
,
Kathy Royal
,
Colleen A Dillenbeck
,
Sarah McNamara
,
Nancy Smith
,
Eve De Rosa
,
Adam K. Anderson
,
Elizabeth Riley
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1002/alz.062941
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1002/alz.062941
Background Racial and ethnic underrepresentation in aging research and need for effective recruitment strategies is well documented. A Community Research Liaison (CRL) role created under a NIA award is demonstrating the value of embedding staff from underrepresented communities in the research infrastructure. Methods The role and qualifications for a CRL were developed with individuals from an African American community. The CRL hired from this community is engaging in outreach to understand barriers to and discuss the value of research with community members. Through the CRL, community input is being translated into changes in recruitment methods that reflect the concerns, interests and needs of potential African American participants. This case study reports on recruitment outcomes for a study on markers of cognitive decline in older adults requiring 2 hours in an MRI, 5 for testing, and 3 for travel. Recruitment data are compared 6 months before and 3 months after the CRL was engaged. Result In the 6 months prior to the CRL’s involvement, 309 individuals passed an initial screening and 156 were found potentially eligible after a second screening. Five (3.2%) of the 156 were African American. Of these, one was found ineligible, one was lost to follow‐up and the 3 participated in the study. In the first 3 months after the CRL was engaged, 35 were referred to the study after recruitment by the CRL. All were African American, 15 (43%) were eligible and enrolled, 9 (26%) were ineligible, and 9 (26%) are still in the screening process. Conclusion The case study demonstrates the promise of a CRL who is a member of an African American community in increasing African American participation in research. The CRL dramatically increased the number of older African Americans recruited despite potential participation barriers. The increase was due in large part to the CRL’s understanding of and recognition as a trusted member of the community and to changes she recommended to promotional materials and logistics based on community feedback. Data on recruitment effectiveness are continuing to be evaluated across a range of aging research studies and clinical trials in which the CRL is engaged.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1002/alz.062941
- https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/alz.062941
- OA Status
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- Cited By
- 1
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4380893974
All OpenAlex metadata
Raw OpenAlex JSON
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https://openalex.org/W4380893974Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1002/alz.062941Digital Object Identifier
- Title
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Community research liaison role in increasing participation of African Americans in cognitive research: A case studyWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2023Year of publication
- Publication date
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2023-06-01Full publication date if available
- Authors
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Sharon A. Brangman, Kathy Royal, Colleen A Dillenbeck, Sarah McNamara, Nancy Smith, Eve De Rosa, Adam K. Anderson, Elizabeth RileyList of authors in order
- Landing page
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https://doi.org/10.1002/alz.062941Publisher landing page
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https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/alz.062941Direct link to full text PDF
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YesWhether a free full text is available
- OA status
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bronzeOpen access status per OpenAlex
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https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/alz.062941Direct OA link when available
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African american, Ethnic group, Outreach, Gerontology, Medicine, Psychology, Family medicine, Political science, Sociology, Ethnology, LawTop concepts (fields/topics) attached by OpenAlex
- Cited by
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1Total citation count in OpenAlex
- Citations by year (recent)
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2025: 1Per-year citation counts (last 5 years)
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10Other works algorithmically related by OpenAlex
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| corresponding_institution_ids | https://openalex.org/I20388574 |
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