Data sharing ethics toolkit: The Human Cell Atlas Article Swipe
Emily Kirby
,
Alexander Bernier
,
Roderic Guigó
,
B Wold
,
Fabiana Arzuaga
,
Mayumi Kusunose
,
Ma’n H. Zawati
,
Bartha Maria Knoppers
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1038/s41467-024-54300-3
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1038/s41467-024-54300-3
Striving to build an exhaustive guidebook of the types and properties of human cells, the Human Cell Atlas’ (HCA) success relies on the sampling of diverse populations, developmental stages, and tissue types. Its open science philosophy preconizes the rapid, seamless sharing of data – as openly as possible. In light of the scope and ambition of such an international initiative, the HCA Ethics Working Group (EWG) has been working to build a solid foundation to address the complexities of data collection and sharing as part of Atlas development. Indeed, a particular challenge of the HCA is the diversity of sampling scenarios (e.g., living participants, deceased donors, pediatric populations, culturally diverse backgrounds, tissues from various developmental stages, etc.), and associated ethical and legal norms, which vary across countries contributing to the effort. Hence, to the extent possible, the EWG set out to provide harmonised, international and interoperable policies and tools, to guide its research community. This paper provides a high-level overview of the types of challenges and approaches proposed by the EWG.
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Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1038/s41467-024-54300-3
- OA Status
- gold
- Cited By
- 5
- References
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- Related Works
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- OpenAlex ID
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All OpenAlex metadata
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https://openalex.org/W4404566630Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1038/s41467-024-54300-3Digital Object Identifier
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Data sharing ethics toolkit: The Human Cell AtlasWork title
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reviewOpenAlex work type
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enPrimary language
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2024Year of publication
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2024-11-20Full publication date if available
- Authors
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Emily Kirby, Alexander Bernier, Roderic Guigó, B Wold, Fabiana Arzuaga, Mayumi Kusunose, Ma’n H. Zawati, Bartha Maria KnoppersList of authors in order
- Landing page
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https://doi.org/10.1038/s41467-024-54300-3Publisher landing page
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://doi.org/10.1038/s41467-024-54300-3Direct OA link when available
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Interoperability, Data sharing, Scope (computer science), Data science, Computer science, Atlas (anatomy), Engineering ethics, Diversity (politics), Knowledge management, World Wide Web, Political science, Biology, Medicine, Engineering, Programming language, Alternative medicine, Paleontology, Law, PathologyTop concepts (fields/topics) attached by OpenAlex
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5Total citation count in OpenAlex
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2025: 4, 2024: 1Per-year citation counts (last 5 years)
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10Other works algorithmically related by OpenAlex
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