Demographic and biographical data from cancer patients of a national online self-help forum Article Swipe
Antonia Hentze
,
Christian Keinki
,
Stefanie Walter
,
Jutta Hübner
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.21203/rs.3.rs-4231206/v1
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.21203/rs.3.rs-4231206/v1
Purpose : Our study aimed to identify the members of Germany’s largest self-help forum, understanding their characteristics, and addressing their needs effectively. Methods : The sociodemographic and cancer-specific data of 7,171 members were extracted from the forum, categorised, and analysed in January 2023. Results : The members had an average age of 51.5 years, with 84% women and 1.8% men. In terms of occupation, 18.7% worked in administration and office work, 17.7% in healthcare and 11.7% in education and research. Regarding leisure activities, 49.9% were involved in sports and 41.3% in knowledge building. The most common cancers were breast cancer (71.9%), adnexal tumours (6.3%), and gastrointestinal tumours (4.1%). Common metastases included bone (31.3%), liver (22.1%), and lung (11.6%). Most cases had low T-stages, intermediate grading, and low lymph node involvement. The hormone receptor status showed 38.8% were oestrogen receptor positive, 50.6% triple-negative, and 22.9% HER2/neu receptor positive. Cancer treatment compromised surgery (87.2%), cancer drugs (45.7%), endocrine therapy (27.8%), and radiotherapy (34.7%). Conclusion : The FSH online forum supports a diverse group of cancer patients, especially those with breast cancer. Moderation ensures a secure environment for sharing and finding like-minded individuals. As barriers to digital information use may decrease over time, healthcare professionals should recommend online forums for cancer support. Physicians, nurses, and cancer centres can help by including these forums in their recommended resources for patients. Implications for Cancer Survivors: Online cancer self-help forums offer valuable information for cancer survivors and enable mutual exchange, using well-moderated, high-quality platforms.
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Metadata
- Type
- preprint
- Language
- en
- Landing Page
- https://doi.org/10.21203/rs.3.rs-4231206/v1
- https://www.researchsquare.com/article/rs-4231206/latest.pdf
- OA Status
- green
- References
- 32
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4394753989
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4394753989Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.21203/rs.3.rs-4231206/v1Digital Object Identifier
- Title
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Demographic and biographical data from cancer patients of a national online self-help forumWork title
- Type
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preprintOpenAlex work type
- Language
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enPrimary language
- Publication year
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2024Year of publication
- Publication date
-
2024-04-12Full publication date if available
- Authors
-
Antonia Hentze, Christian Keinki, Stefanie Walter, Jutta HübnerList of authors in order
- Landing page
-
https://doi.org/10.21203/rs.3.rs-4231206/v1Publisher landing page
- PDF URL
-
https://www.researchsquare.com/article/rs-4231206/latest.pdfDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
greenOpen access status per OpenAlex
- OA URL
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https://www.researchsquare.com/article/rs-4231206/latest.pdfDirect OA link when available
- Concepts
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Breast cancer, Medicine, Cancer, Family medicine, Lung cancer, Grading (engineering), Health care, Internal medicine, Radiation therapy, Moderation, Oncology, Health professionals, Psychology, Engineering, Social psychology, Civil engineering, Economic growth, EconomicsTop concepts (fields/topics) attached by OpenAlex
- Cited by
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0Total citation count in OpenAlex
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32Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| referenced_works | https://openalex.org/W3165720345, https://openalex.org/W3128646645, https://openalex.org/W2064339633, https://openalex.org/W2003555953, https://openalex.org/W2623502567, https://openalex.org/W4295903891, https://openalex.org/W2021636805, https://openalex.org/W2008133916, https://openalex.org/W1503739865, https://openalex.org/W2060536886, https://openalex.org/W3005200863, https://openalex.org/W2564367474, https://openalex.org/W1968998821, https://openalex.org/W1976863544, https://openalex.org/W3193508961, https://openalex.org/W2141085468, https://openalex.org/W4200117253, https://openalex.org/W4220983840, https://openalex.org/W2610156881, https://openalex.org/W2727553907, https://openalex.org/W4383500201, https://openalex.org/W2752020028, https://openalex.org/W2981525457, https://openalex.org/W4388961084, https://openalex.org/W4312066927, https://openalex.org/W2480262180, https://openalex.org/W2047259303, https://openalex.org/W2004280628, https://openalex.org/W3005501493, https://openalex.org/W1630057917, https://openalex.org/W4223937729, https://openalex.org/W2170602872 |
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