Development and Pilot-test of Blockchain based MyHealthData Platform (Preprint) Article Swipe
Hyung‐Jin Yoon
,
Ye Seul Bae
,
Yujin Park
,
Taekhoon Kim
,
Taehoon Ko
,
Min‐Soo Kim
,
Eunsol Lee
,
Hee Chan Kim
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.2196/preprints.31221
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.2196/preprints.31221
BACKGROUND The concept of MyData emerged as a paradigm shift in personal data management and the process of seeking to transform the current organization-centered system. MyData enables the utilization of one’s own personal information that is scattered among various institutions as a system for data subjects to exercise rights of self-determination. OBJECTIVE We aimed to develop and demonstrate a MyData platform (MyHealthData) that allows data subjects to download and manage health-related personal data stored in various medical institutions. METHODS The platform consists of a mobile app for users, API (application program interface) for data conversion and exchange installed in the hospital information system (HIS), and a relay server connected to the blockchain to prove data integrity. User surveys were conducted to explore perceived usefulness, perceived ease of use, and satisfaction. RESULTS We provided four services to users through the platform developed in this study: inquiring about medical and health checkup records, health coaching, checking conditions of participation in clinical research, and claims, by using an app. A total of 1,228 participants signed for the service and the overall user satisfaction was high, especially with ‘inquire about medical and health checkup records.’ CONCLUSIONS MyData brings a user-centered paradigm in which data subjects can directly participate in the use of their own data. MyData will improve healthcare data interoperability, allowing it to be used not only in research areas but also in other areas by sharing and integrating various healthcare data.
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https://openalex.org/W4242506583Canonical identifier for this work in OpenAlex
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https://doi.org/10.2196/preprints.31221Digital Object Identifier
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Development and Pilot-test of Blockchain based MyHealthData Platform (Preprint)Work title
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preprintOpenAlex work type
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enPrimary language
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2021Year of publication
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2021-06-14Full publication date if available
- Authors
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Hyung‐Jin Yoon, Ye Seul Bae, Yujin Park, Taekhoon Kim, Taehoon Ko, Min‐Soo Kim, Eunsol Lee, Hee Chan KimList of authors in order
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https://doi.org/10.2196/preprints.31221Publisher landing page
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://doi.org/10.2196/preprints.31221Direct OA link when available
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Preprint, Upload, Download, Interoperability, Computer science, World Wide Web, Data exchange, Internet privacyTop concepts (fields/topics) attached by OpenAlex
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0Total citation count in OpenAlex
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10Other works algorithmically related by OpenAlex
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