Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi survey Article Swipe
Sergei M. Hermelijn
,
Casper M. Kersten
,
Dhanya Mullassery
,
Nagarajan Muthialu
,
Nazan Çobanoğlu
,
Silvia Gärtner
,
Pietro Bagolan
,
Carmen Mesas Burgos
,
Alberto Sgrò
,
Stijn Heyman
,
Holger Till
,
Janne Suominen
,
Maarten Schurink
,
Liesbeth Desender
,
Paul D. Losty
,
Kjetil Næss Ertresvåg
,
Harm A.W.M. Tiddens
,
René Wijnen
,
J. Marco Schnater
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2020-044544
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2020-044544
Introduction A worldwide lack of consensus exists on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) even though the incidence is increasing. Either a surgical resection is performed or a wait-and-see policy is employed, depending on the treating physician. Management is largely based on expert opinion and scientific evidence is scarce. Wide variations in outcome measures are seen between studies making comparison difficult thus highlighting the lack of universal consensus in outcome measures as well. We aim to define a core outcome set which will include the most important core outcome parameters for paediatric patients with an asymptomatic CPAM. Methods and analysis This study will include a critical appraisal of the current literature followed by a three-stage Delphi process with two stakeholder groups. One surgical group including paediatric as well as thoracic surgeons, and a non-surgeon group including paediatric pulmonologists, intensive care and neonatal specialists. All participants will score outcome parameters according to their level of importance and the most important parameters will be determined by consensus. Ethics and dissemination Electronic informed consent will be obtained from all participants. Ethical approval is not required. After the core outcome set has been defined, we intend to design an international randomised controlled trial: the COllaborative Neonatal NEtwork for the first CPAM Trial, which will be aimed at determining the optimal management of patients with asymptomatic CPAM.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1136/bmjopen-2020-044544
- https://bmjopen.bmj.com/content/bmjopen/11/4/e044544.full.pdf
- OA Status
- gold
- Cited By
- 26
- References
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- Related Works
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- OpenAlex ID
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Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3155935105Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1136/bmjopen-2020-044544Digital Object Identifier
- Title
-
Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi surveyWork title
- Type
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articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2021Year of publication
- Publication date
-
2021-04-01Full publication date if available
- Authors
-
Sergei M. Hermelijn, Casper M. Kersten, Dhanya Mullassery, Nagarajan Muthialu, Nazan Çobanoğlu, Silvia Gärtner, Pietro Bagolan, Carmen Mesas Burgos, Alberto Sgrò, Stijn Heyman, Holger Till, Janne Suominen, Maarten Schurink, Liesbeth Desender, Paul D. Losty, Kjetil Næss Ertresvåg, Harm A.W.M. Tiddens, René Wijnen, J. Marco SchnaterList of authors in order
- Landing page
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https://doi.org/10.1136/bmjopen-2020-044544Publisher landing page
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https://bmjopen.bmj.com/content/bmjopen/11/4/e044544.full.pdfDirect link to full text PDF
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YesWhether a free full text is available
- OA status
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goldOpen access status per OpenAlex
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https://bmjopen.bmj.com/content/bmjopen/11/4/e044544.full.pdfDirect OA link when available
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Medicine, Pulmonologists, Delphi method, Outcome (game theory), Protocol (science), Asymptomatic, Pediatrics, Family medicine, Informed consent, Intensive care medicine, Surgery, Alternative medicine, Pathology, Mathematics, Mathematical economics, StatisticsTop concepts (fields/topics) attached by OpenAlex
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26Total citation count in OpenAlex
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2025: 1, 2024: 2, 2023: 21, 2022: 2Per-year citation counts (last 5 years)
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18Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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