Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Clinicians From 2010 to 2018 Article Swipe
Kiana R. Johnson
,
Cuoghi Edens
,
Rebecca E. Sadun
,
Peter Chira
,
Aimee O. Hersh
,
Y. Ingrid Goh
,
Joyce Hui‐Yuen
,
Nora G. Singer
,
Lynn Spiegel
,
Jennifer Stinson
,
Patience H. White
,
Erica Lawson
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3899/jrheum.200196
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3899/jrheum.200196
Objective Since 2010, the rheumatology community has developed guidelines and tools to improve healthcare transition. In this study, we aimed to compare current transition practices and beliefs among Childhood Arthritis and Rheumatology Research Alliance (CARRA) rheumatology providers with transition practices from a provider survey published in 2010. Methods In 2018, CARRA members completed a 25-item online survey about healthcare transition. Got Transition’s Current Assessment of Health Care Transition Activities was used to measure clinical transition processes on a scale of 1 (basic) to 4 (comprehensive). Bivariate analyses were used to compare 2010 and 2018 survey findings. Results Over half of CARRA members completed the survey (202/396), including pediatric rheumatologists, adult- and pediatric-trained rheumatologists, pediatric rheumatology fellows, and advanced practice providers. The most common target age to begin transition planning was 15–17 years (49%). Most providers transferred patients prior to age 21 years (75%). Few providers used the American College of Rheumatology transition tools (31%) or have a dedicated transition clinic (23%). Only 17% had a transition policy in place, and 63% did not consistently address healthcare transition with patients. When compared to the 2010 survey, improvement was noted in 3 of 12 transition barriers: availability of adult primary care providers, availability of adult rheumatologists, and pediatric staff transition knowledge and skills ( P < 0.001 for each). Nevertheless, the mean current assessment score was < 2 for each measurement. Conclusion This study demonstrates improvement in certain transition barriers and practices since 2010, although implementation of structured transition processes remains inconsistent.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3899/jrheum.200196
- https://www.jrheum.org/content/jrheum/48/9/1442.full.pdf
- OA Status
- bronze
- Cited By
- 14
- References
- 46
- Related Works
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- OpenAlex ID
- https://openalex.org/W3046210361
All OpenAlex metadata
Raw OpenAlex JSON
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https://openalex.org/W3046210361Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.3899/jrheum.200196Digital Object Identifier
- Title
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Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Clinicians From 2010 to 2018Work title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2021Year of publication
- Publication date
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2021-02-01Full publication date if available
- Authors
-
Kiana R. Johnson, Cuoghi Edens, Rebecca E. Sadun, Peter Chira, Aimee O. Hersh, Y. Ingrid Goh, Joyce Hui‐Yuen, Nora G. Singer, Lynn Spiegel, Jennifer Stinson, Patience H. White, Erica LawsonList of authors in order
- Landing page
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https://doi.org/10.3899/jrheum.200196Publisher landing page
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https://www.jrheum.org/content/jrheum/48/9/1442.full.pdfDirect link to full text PDF
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YesWhether a free full text is available
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bronzeOpen access status per OpenAlex
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https://www.jrheum.org/content/jrheum/48/9/1442.full.pdfDirect OA link when available
- Concepts
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Medicine, Rheumatology, Family medicine, Health care, Transition (genetics), Internal medicine, Biochemistry, Chemistry, Economics, Gene, Economic growthTop concepts (fields/topics) attached by OpenAlex
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14Total citation count in OpenAlex
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2025: 1, 2023: 2, 2022: 4, 2021: 6, 2019: 1Per-year citation counts (last 5 years)
- References (count)
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46Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.(202/396), | 105 |
| abstract_inverted_index.Activities | 68 |
| abstract_inverted_index.Assessment | 63 |
| abstract_inverted_index.Conclusion | 229 |
| abstract_inverted_index.Transition | 67 |
| abstract_inverted_index.assessment | 221 |
| abstract_inverted_index.guidelines | 8 |
| abstract_inverted_index.healthcare | 13, 58, 175 |
| abstract_inverted_index.providers, | 199 |
| abstract_inverted_index.providers. | 119 |
| abstract_inverted_index.structured | 245 |
| abstract_inverted_index.transition | 23, 38, 74, 127, 151, 158, 165, 176, 192, 207, 236, 246 |
| abstract_inverted_index.improvement | 185, 233 |
| abstract_inverted_index.transferred | 135 |
| abstract_inverted_index.transition. | 14, 59 |
| abstract_inverted_index.Rheumatology | 31, 150 |
| abstract_inverted_index.availability | 194, 200 |
| abstract_inverted_index.consistently | 173 |
| abstract_inverted_index.demonstrates | 232 |
| abstract_inverted_index.measurement. | 228 |
| abstract_inverted_index.rheumatology | 4, 35, 114 |
| abstract_inverted_index.Nevertheless, | 217 |
| abstract_inverted_index.inconsistent. | 249 |
| abstract_inverted_index.Transition’s | 61 |
| abstract_inverted_index.implementation | 243 |
| abstract_inverted_index.(comprehensive). | 84 |
| abstract_inverted_index.rheumatologists, | 108, 112, 203 |
| abstract_inverted_index.pediatric-trained | 111 |
| cited_by_percentile_year.max | 98 |
| cited_by_percentile_year.min | 90 |
| countries_distinct_count | 2 |
| institutions_distinct_count | 12 |
| citation_normalized_percentile.value | 0.9144965 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |