Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis: A qualitative study Article Swipe
Jenny Leese
,
Catherine L. Backman
,
K. Jasmin
,
Cheryl Koehn
,
Alison M. Hoens
,
Kelly English
,
Eileen Davidson
,
Shanon McQuitty
,
James P. Gavin
,
Jo Adams
,
Stephanie Therrien
,
Linda Li
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1111/hex.13341
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1111/hex.13341
Objectives This study aimed to explore the impact of the coronavirus disease 2019 (COVID‐19) pandemic on self‐care of individuals living with rheumatoid arthritis (RA). Methods Guided by a constructivist, qualitative design, we conducted one‐to‐one in‐depth telephone interviews between March and October 2020 with participants with RA purposively sampled for maximum variation in age, sex and education, who were participating in one of two ongoing randomized‐controlled trials. An inductive, reflexive thematic analysis approach was used. Results Twenty‐six participants (aged 27–73 years; 23 females) in British Columbia, Canada were interviewed. We identified three themes: (1) Adapting to maintain self‐care describes how participants took measures to continue self‐care activities while preventing virus transmissions. While spending more time at home, some participants reported improved self‐care. (2) Managing emotions describes resilience‐building strategies such as keeping perspective, positive reframing and avoiding negative thoughts. Participants described both letting go and maintaining a sense of control to accommodate difficulties and emotional responses. (3) Changing communication with health professionals outlined positive experiences of remote consultations with health professionals, particularly if good relationships had been established prepandemic. Conclusion The insights gained may inform clinicians and researchers on ways to support the self‐care strategies of individuals with RA and other chronic illnesses during and after the COVID‐19 pandemic. The findings reveal opportunities to further examine remote consultations to optimize patient engagement and care. Patient or Public Contribution This project is jointly designed and conducted with patient partners in British Columbia, Canada. Patient partners across the United Kingdom also played in a key role in providing interpretations of themes during data analysis.
Related Topics
Concepts
Thematic analysis
Medicine
Pandemic
Qualitative research
Randomized controlled trial
Health care
Cognitive reframing
Psychology
Family medicine
Nursing
Gerontology
Coronavirus disease 2019 (COVID-19)
Disease
Social psychology
Pathology
Surgery
Sociology
Social science
Infectious disease (medical specialty)
Economics
Economic growth
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1111/hex.13341
- https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13341
- OA Status
- gold
- Cited By
- 28
- References
- 43
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W3194324334
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3194324334Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1111/hex.13341Digital Object Identifier
- Title
-
Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis: A qualitative studyWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2021Year of publication
- Publication date
-
2021-08-17Full publication date if available
- Authors
-
Jenny Leese, Catherine L. Backman, K. Jasmin, Cheryl Koehn, Alison M. Hoens, Kelly English, Eileen Davidson, Shanon McQuitty, James P. Gavin, Jo Adams, Stephanie Therrien, Linda LiList of authors in order
- Landing page
-
https://doi.org/10.1111/hex.13341Publisher landing page
- PDF URL
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https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13341Direct link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
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https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13341Direct OA link when available
- Concepts
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Thematic analysis, Medicine, Pandemic, Qualitative research, Randomized controlled trial, Health care, Cognitive reframing, Psychology, Family medicine, Nursing, Gerontology, Coronavirus disease 2019 (COVID-19), Disease, Social psychology, Pathology, Surgery, Sociology, Social science, Infectious disease (medical specialty), Economics, Economic growthTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
28Total citation count in OpenAlex
- Citations by year (recent)
-
2025: 2, 2024: 11, 2023: 6, 2022: 6, 2021: 2Per-year citation counts (last 5 years)
- References (count)
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43Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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| referenced_works | https://openalex.org/W1905625654, https://openalex.org/W2155109530, https://openalex.org/W2114100740, https://openalex.org/W2213289322, https://openalex.org/W3035217827, https://openalex.org/W3016830949, https://openalex.org/W3049718996, https://openalex.org/W3014494473, https://openalex.org/W2995615359, https://openalex.org/W2081210368, https://openalex.org/W4243636675, https://openalex.org/W3093223973, https://openalex.org/W2996597775, https://openalex.org/W2562778769, https://openalex.org/W2887078884, https://openalex.org/W2762335731, https://openalex.org/W4232698832, https://openalex.org/W2669932351, https://openalex.org/W2171375784, https://openalex.org/W2610346322, https://openalex.org/W3033845731, https://openalex.org/W3029840069, https://openalex.org/W2114180684, https://openalex.org/W2036064663, https://openalex.org/W2117825440, https://openalex.org/W3131447502, https://openalex.org/W3106446719, https://openalex.org/W3089040753, https://openalex.org/W3081566499, https://openalex.org/W3108732802, https://openalex.org/W3040794752, https://openalex.org/W3108309696, https://openalex.org/W2048868531, https://openalex.org/W2737739349, https://openalex.org/W2958243817, https://openalex.org/W3019173743, https://openalex.org/W3102340183, https://openalex.org/W2904927769, https://openalex.org/W3194324334, https://openalex.org/W2033952602, https://openalex.org/W560541680, https://openalex.org/W2582717501, https://openalex.org/W2739751169 |
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