Exploring self-experience practices in dementia care: A scoping review Article Swipe
Janina Wittmann
,
Anja Bieber
,
Joanne Carroll
,
Kealan Forristal
,
Louise Hopper
,
Niels Janssen
,
Gabriele Meyer
,
Marianna Riello
,
Marjolein de Vugt
,
Dorothee Bauernschmidt
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1371/journal.pone.0302929
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.1371/journal.pone.0302929
Background Recognised as essential for high-quality dementia service, person-centred care aims to understand and respect the unique needs of each individual. Self-experience practices may offer caregivers an opportunity to acquire knowledge, empathy, and skills related to person-centred care, especially through recreating experiences similar to dementia. Given the need to enhance the understanding of self-experience practices in dementia care, a more comprehensive investigation of these training interventions for (future) caregivers is needed. Methods We conducted a scoping review to map the evidence on the use of self-experience practices in dementia training. We systematically searched Cochrane Library, MEDLINE via PubMed, CINAHL, and Web of Science. We also searched for grey literature, as well as registry entries, and conducted backward citation tracking of included reviews. We analysed data on intervention characteristics, factors influencing the implementation, and learning outcomes based on Kirkpatrick’s model. Results We included 44 reports across 30 intervention programmes. The majority of reports (91%) were published from 2016 onwards, with 32% originating from the USA and 25% from the UK. We identified passive, interactive, immersive, and multicomponent self-experience interventions in dementia education and training. Learning outcomes based on Kirkpatrick’s model were fairly distributed across all identified modalities. Both consumers and providers emphasised aspects related to the development and implementation of practices, particularly organisational-related considerations such as temporal and spatial planning of trainings. Conclusions Our review highlights diverse interventions incorporating self-experience practices, with an increasing role for technological tools. While self-experience interventions engage participants, the impact on individuals with dementia and organisational levels remain largely unreported. Our overview, informed by current literature, underscores unique considerations and challenges associated with dementia-related self-experience practices. Implementing and evaluating complex training interventions using self-experience practices should consider ethical aspects. Trial registration Registry: Registered within the Open Science Framework (available at https://osf.io/fycxa/ ).
Related Topics
Concepts
Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1371/journal.pone.0302929
- https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0302929&type=printable
- OA Status
- gold
- Cited By
- 3
- References
- 89
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4396708356
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4396708356Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1371/journal.pone.0302929Digital Object Identifier
- Title
-
Exploring self-experience practices in dementia care: A scoping reviewWork title
- Type
-
reviewOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2024Year of publication
- Publication date
-
2024-05-07Full publication date if available
- Authors
-
Janina Wittmann, Anja Bieber, Joanne Carroll, Kealan Forristal, Louise Hopper, Niels Janssen, Gabriele Meyer, Marianna Riello, Marjolein de Vugt, Dorothee BauernschmidtList of authors in order
- Landing page
-
https://doi.org/10.1371/journal.pone.0302929Publisher landing page
- PDF URL
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https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0302929&type=printableDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
-
https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0302929&type=printableDirect OA link when available
- Concepts
-
CINAHL, Psychological intervention, Dementia, Grey literature, MEDLINE, Empathy, Modalities, Medical education, Intervention (counseling), Psychology, Medicine, Nursing, Cochrane Library, Meta-analysis, Psychiatry, Sociology, Pathology, Political science, Internal medicine, Law, Social science, DiseaseTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
3Total citation count in OpenAlex
- Citations by year (recent)
-
2025: 3Per-year citation counts (last 5 years)
- References (count)
-
89Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.for | 4, 66, 106, 234 |
| abstract_inverted_index.map | 78 |
| abstract_inverted_index.may | 23 |
| abstract_inverted_index.the | 15, 46, 50, 79, 82, 130, 162, 167, 204, 242, 288 |
| abstract_inverted_index.use | 83 |
| abstract_inverted_index.via | 96 |
| abstract_inverted_index.2016 | 156 |
| abstract_inverted_index.Both | 196 |
| abstract_inverted_index.Open | 289 |
| abstract_inverted_index.aims | 10 |
| abstract_inverted_index.also | 104 |
| abstract_inverted_index.care | 9 |
| abstract_inverted_index.data | 124 |
| abstract_inverted_index.each | 19 |
| abstract_inverted_index.from | 155, 161, 166 |
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| abstract_inverted_index.need | 47 |
| abstract_inverted_index.role | 233 |
| abstract_inverted_index.such | 213 |
| abstract_inverted_index.well | 110 |
| abstract_inverted_index.were | 153, 189 |
| abstract_inverted_index.with | 158, 230, 246, 266 |
| abstract_inverted_index.(91%) | 152 |
| abstract_inverted_index.Given | 45 |
| abstract_inverted_index.Trial | 283 |
| abstract_inverted_index.While | 237 |
| abstract_inverted_index.based | 135, 185 |
| abstract_inverted_index.care, | 37, 57 |
| abstract_inverted_index.model | 188 |
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| abstract_inverted_index.offer | 24 |
| abstract_inverted_index.these | 63 |
| abstract_inverted_index.using | 276 |
| abstract_inverted_index.across | 144, 192 |
| abstract_inverted_index.engage | 240 |
| abstract_inverted_index.fairly | 190 |
| abstract_inverted_index.impact | 243 |
| abstract_inverted_index.levels | 250 |
| abstract_inverted_index.model. | 138 |
| abstract_inverted_index.remain | 251 |
| abstract_inverted_index.review | 76, 223 |
| abstract_inverted_index.should | 279 |
| abstract_inverted_index.skills | 33 |
| abstract_inverted_index.tools. | 236 |
| abstract_inverted_index.unique | 16, 261 |
| abstract_inverted_index.within | 287 |
| abstract_inverted_index.CINAHL, | 98 |
| abstract_inverted_index.MEDLINE | 95 |
| abstract_inverted_index.Methods | 71 |
| abstract_inverted_index.PubMed, | 97 |
| abstract_inverted_index.Results | 139 |
| abstract_inverted_index.Science | 290 |
| abstract_inverted_index.acquire | 29 |
| abstract_inverted_index.aspects | 201 |
| abstract_inverted_index.complex | 273 |
| abstract_inverted_index.current | 258 |
| abstract_inverted_index.diverse | 225 |
| abstract_inverted_index.enhance | 49 |
| abstract_inverted_index.ethical | 281 |
| abstract_inverted_index.factors | 128 |
| abstract_inverted_index.largely | 252 |
| abstract_inverted_index.needed. | 70 |
| abstract_inverted_index.related | 34, 202 |
| abstract_inverted_index.reports | 143, 151 |
| abstract_inverted_index.respect | 14 |
| abstract_inverted_index.scoping | 75 |
| abstract_inverted_index.similar | 42 |
| abstract_inverted_index.spatial | 217 |
| abstract_inverted_index.through | 39 |
| abstract_inverted_index.(future) | 67 |
| abstract_inverted_index.Cochrane | 93 |
| abstract_inverted_index.Learning | 183 |
| abstract_inverted_index.Library, | 94 |
| abstract_inverted_index.Science. | 102 |
| abstract_inverted_index.analysed | 123 |
| abstract_inverted_index.aspects. | 282 |
| abstract_inverted_index.backward | 116 |
| abstract_inverted_index.citation | 117 |
| abstract_inverted_index.consider | 280 |
| abstract_inverted_index.dementia | 6, 56, 88, 179, 247 |
| abstract_inverted_index.empathy, | 31 |
| abstract_inverted_index.entries, | 113 |
| abstract_inverted_index.evidence | 80 |
| abstract_inverted_index.included | 120, 141 |
| abstract_inverted_index.informed | 256 |
| abstract_inverted_index.learning | 133 |
| abstract_inverted_index.majority | 149 |
| abstract_inverted_index.onwards, | 157 |
| abstract_inverted_index.outcomes | 134, 184 |
| abstract_inverted_index.passive, | 171 |
| abstract_inverted_index.planning | 218 |
| abstract_inverted_index.registry | 112 |
| abstract_inverted_index.reviews. | 121 |
| abstract_inverted_index.searched | 92, 105 |
| abstract_inverted_index.service, | 7 |
| abstract_inverted_index.temporal | 215 |
| abstract_inverted_index.tracking | 118 |
| abstract_inverted_index.training | 64, 274 |
| abstract_inverted_index.Framework | 291 |
| abstract_inverted_index.Registry: | 285 |
| abstract_inverted_index.conducted | 73, 115 |
| abstract_inverted_index.consumers | 197 |
| abstract_inverted_index.dementia. | 44 |
| abstract_inverted_index.education | 180 |
| abstract_inverted_index.essential | 3 |
| abstract_inverted_index.overview, | 255 |
| abstract_inverted_index.practices | 22, 54, 86, 278 |
| abstract_inverted_index.providers | 199 |
| abstract_inverted_index.published | 154 |
| abstract_inverted_index.training. | 89, 182 |
| abstract_inverted_index.(available | 292 |
| abstract_inverted_index.Background | 0 |
| abstract_inverted_index.Recognised | 1 |
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| abstract_inverted_index.associated | 265 |
| abstract_inverted_index.caregivers | 25, 68 |
| abstract_inverted_index.challenges | 264 |
| abstract_inverted_index.emphasised | 200 |
| abstract_inverted_index.especially | 38 |
| abstract_inverted_index.evaluating | 272 |
| abstract_inverted_index.highlights | 224 |
| abstract_inverted_index.identified | 170, 194 |
| abstract_inverted_index.immersive, | 173 |
| abstract_inverted_index.increasing | 232 |
| abstract_inverted_index.knowledge, | 30 |
| abstract_inverted_index.practices, | 209, 229 |
| abstract_inverted_index.practices. | 269 |
| abstract_inverted_index.recreating | 40 |
| abstract_inverted_index.trainings. | 220 |
| abstract_inverted_index.understand | 12 |
| abstract_inverted_index.Conclusions | 221 |
| abstract_inverted_index.development | 205 |
| abstract_inverted_index.distributed | 191 |
| abstract_inverted_index.experiences | 41 |
| abstract_inverted_index.individual. | 20 |
| abstract_inverted_index.individuals | 245 |
| abstract_inverted_index.influencing | 129 |
| abstract_inverted_index.literature, | 108, 259 |
| abstract_inverted_index.modalities. | 195 |
| abstract_inverted_index.opportunity | 27 |
| abstract_inverted_index.originating | 160 |
| abstract_inverted_index.programmes. | 147 |
| abstract_inverted_index.underscores | 260 |
| abstract_inverted_index.unreported. | 253 |
| abstract_inverted_index.Implementing | 270 |
| abstract_inverted_index.high-quality | 5 |
| abstract_inverted_index.interactive, | 172 |
| abstract_inverted_index.intervention | 126, 146 |
| abstract_inverted_index.particularly | 210 |
| abstract_inverted_index.registration | 284 |
| abstract_inverted_index.comprehensive | 60 |
| abstract_inverted_index.incorporating | 227 |
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| abstract_inverted_index.investigation | 61 |
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| abstract_inverted_index.understanding | 51 |
| abstract_inverted_index.considerations | 212, 262 |
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| abstract_inverted_index.multicomponent | 175 |
| abstract_inverted_index.organisational | 249 |
| abstract_inverted_index.person-centred | 8, 36 |
| abstract_inverted_index.systematically | 91 |
| abstract_inverted_index.Kirkpatrick’s | 137, 187 |
| abstract_inverted_index.Self-experience | 21 |
| abstract_inverted_index.implementation, | 131 |
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| abstract_inverted_index.dementia-related | 267 |
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| abstract_inverted_index.organisational-related | 211 |
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| corresponding_author_ids | https://openalex.org/A5034629380, https://openalex.org/A5067893047, https://openalex.org/A5017589230, https://openalex.org/A5039337672, https://openalex.org/A5029090287, https://openalex.org/A5052630236, https://openalex.org/A5055448918, https://openalex.org/A5001936600, https://openalex.org/A5080924112, https://openalex.org/A5054206033 |
| countries_distinct_count | 4 |
| institutions_distinct_count | 10 |
| corresponding_institution_ids | https://openalex.org/I1310145721, https://openalex.org/I34352273, https://openalex.org/I42934936, https://openalex.org/I68956291 |
| citation_normalized_percentile.value | 0.91259867 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |