Exploring the experiences of loneliness in adults with mental health problems: A participatory qualitative interview study Article Swipe
Mary Birken
,
Beverley Chipp
,
Prisha Shah
,
Rachel Rowan Olive
,
Patrick Nyikavaranda
,
Jackie Hardy
,
Anjie Chhapia
,
Nick Barber
,
Stephen Lee
,
Eiluned Pearce
,
Brynmor Lloyd‐Evans
,
Rosie Perkins
,
David McDaid
,
Theodora Stefanidou
,
Roz Shafran
,
Alexandra Pitman
,
Sonia Johnson
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1371/journal.pone.0280946
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1371/journal.pone.0280946
Background Loneliness is associated with many mental health conditions, as both a potential causal and an exacerbating factor. Richer evidence about how people with mental health problems experience loneliness, and about what makes it more or less severe, is needed to underpin research on strategies to help address loneliness. Methods Our aim was to explore experiences of loneliness, as well as what helps address it, among a diverse sample of adults living with mental health problems in the UK. We recruited purposively via online networks and community organisations, with most interviews conducted during the COVID-19 pandemic. Qualitative semi-structured interviews were conducted with 59 consenting participants face-to-face, by video call or telephone. Researchers with relevant lived experience were involved at all stages, including design, data collection, analysis and writing up of results. Findings Analysis led to identification of four overarching themes: 1. What the word “lonely” meant to participants, 2. Connections between loneliness and mental health, 3. Contributory factors to continuing loneliness, 4. Ways of reducing loneliness. Central aspects of loneliness were lack of meaningful connections with others and lack of a sense of belonging to valued groups and communities. Some drivers of loneliness, such as losses and transitions, were universal, but specific links were also made between living with mental health problems and being lonely. These included direct effects of mental health symptoms, the need to withdraw to cope with mental health problems, and impacts of stigma and poverty. Conclusions The multiplicity of contributors to loneliness that we identified, and of potential strategies for reducing it, suggest that a variety of approaches are relevant to reducing loneliness among people with mental health problems, including peer support and supported self-help, psychological and social interventions, and strategies to facilitate change at community and societal levels. The views and experiences of adults living with mental health problems are a rich source for understanding why loneliness is frequent in this context and what may address it. Co-produced approaches to developing and testing approaches to loneliness interventions can draw on this experiential knowledge.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1371/journal.pone.0280946
- https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0280946&type=printable
- OA Status
- gold
- Cited By
- 31
- References
- 37
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4323347369
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4323347369Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1371/journal.pone.0280946Digital Object Identifier
- Title
-
Exploring the experiences of loneliness in adults with mental health problems: A participatory qualitative interview studyWork title
- Type
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articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2023Year of publication
- Publication date
-
2023-03-07Full publication date if available
- Authors
-
Mary Birken, Beverley Chipp, Prisha Shah, Rachel Rowan Olive, Patrick Nyikavaranda, Jackie Hardy, Anjie Chhapia, Nick Barber, Stephen Lee, Eiluned Pearce, Brynmor Lloyd‐Evans, Rosie Perkins, David McDaid, Theodora Stefanidou, Roz Shafran, Alexandra Pitman, Sonia JohnsonList of authors in order
- Landing page
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https://doi.org/10.1371/journal.pone.0280946Publisher landing page
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https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0280946&type=printableDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0280946&type=printableDirect OA link when available
- Concepts
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Loneliness, Mental health, Qualitative research, Psychology, Psychosocial, Clinical psychology, Psychiatry, Sociology, Social scienceTop concepts (fields/topics) attached by OpenAlex
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31Total citation count in OpenAlex
- Citations by year (recent)
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2025: 17, 2024: 10, 2023: 4Per-year citation counts (last 5 years)
- References (count)
-
37Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| referenced_works | https://openalex.org/W3033485693, https://openalex.org/W2036889217, https://openalex.org/W1900061083, https://openalex.org/W2157607010, https://openalex.org/W2101196871, https://openalex.org/W2004761428, https://openalex.org/W2336497595, https://openalex.org/W2116398621, https://openalex.org/W2014936838, https://openalex.org/W4280537675, https://openalex.org/W3104865248, https://openalex.org/W2805201924, https://openalex.org/W3154881508, https://openalex.org/W2615658301, https://openalex.org/W2990748566, https://openalex.org/W2724967653, https://openalex.org/W2133492563, https://openalex.org/W3081255729, https://openalex.org/W2900600268, https://openalex.org/W3135305660, https://openalex.org/W2949935987, https://openalex.org/W3200155323, https://openalex.org/W4220984034, https://openalex.org/W2590250792, https://openalex.org/W2950504429, https://openalex.org/W2072957089, https://openalex.org/W2883829232, https://openalex.org/W2804839060, https://openalex.org/W2963446739, https://openalex.org/W3032994313, https://openalex.org/W2974322204, https://openalex.org/W2288241685, https://openalex.org/W2806693055, https://openalex.org/W3164972787, https://openalex.org/W2898232895, https://openalex.org/W3031225782, https://openalex.org/W4200575028 |
| referenced_works_count | 37 |
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| corresponding_author_ids | https://openalex.org/A5013563744, https://openalex.org/A5087544521, https://openalex.org/A5071197415, https://openalex.org/A5087768588, https://openalex.org/A5007675795, https://openalex.org/A5037078668, https://openalex.org/A5028548457, https://openalex.org/A5010860210, https://openalex.org/A5049307759, https://openalex.org/A5020016936, https://openalex.org/A5100650763, https://openalex.org/A5035891226, https://openalex.org/A5112076218, https://openalex.org/A5029233265, https://openalex.org/A5004804850, https://openalex.org/A5061717557, https://openalex.org/A5054627731 |
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