Exploring the quality of end-of-life care in the intensive care unit: a qualitative multiple case study approach with family members of Muslim patients Article Swipe
Ayah Nayfeh
,
Lesley Gotlib Conn
,
Craig Dale
,
Robert Fowler
·
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2024-087871
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1136/bmjopen-2024-087871
Objective Muslim patients are an underrepresented community in end-of-life care research, with little evidence around factors that influence the quality and experience of care. The aim of this study was to explore the quality of end-of-life care in the intensive care unit (ICU) from the perspective of next-of-kin family members of Muslim patients. Design A qualitative multiple case study design using semistructured interviews with family members of Muslim patients. Healthcare providers’ notes from the patient medical record were also used to contextualise the patient care experience and medical journey. Data were analysed using deductive content analysis. Setting A large academic tertiary care hospital in Toronto, Canada. Participants Next-of-kin family members of Muslim patients (≥18 years) who were admitted to the ICU and died in hospital between October 2019 and December 2021. Results Family members of five Muslim patients of South Asian descent were recruited for this study. Four central themes were identified: (1) trust and confidence in the healthcare team overseen by medical experts; (2) quality communication with medical experts; (3) achieving patient goals of care; and (4) dignity of care through cultural respect and emotional support. Culture, religion and religiosity did not appear to have a major influence on the medical decision-making process. Communication, emotional and psychological well-being for patients, and cultural respect were identified as possible areas for quality improvement. Conclusions Our findings identified central themes in the quality of end-of-life care for families of seriously ill Muslim patients. These insights can inform clinical processes and interventions to improve the quality of care and reduce psychological and emotional burden at the end of life.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1136/bmjopen-2024-087871
- OA Status
- gold
- References
- 16
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4406604717
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4406604717Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1136/bmjopen-2024-087871Digital Object Identifier
- Title
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Exploring the quality of end-of-life care in the intensive care unit: a qualitative multiple case study approach with family members of Muslim patientsWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2025Year of publication
- Publication date
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2025-01-01Full publication date if available
- Authors
-
Ayah Nayfeh, Lesley Gotlib Conn, Craig Dale, Robert FowlerList of authors in order
- Landing page
-
https://doi.org/10.1136/bmjopen-2024-087871Publisher landing page
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
-
https://doi.org/10.1136/bmjopen-2024-087871Direct OA link when available
- Concepts
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Dignity, Medicine, End-of-life care, Nursing, Health care, Qualitative research, Next of kin, Intensive care unit, Family medicine, Religiosity, Psychology, Palliative care, Psychiatry, Social psychology, Archaeology, Sociology, Law, Economic growth, History, Social science, Economics, Political scienceTop concepts (fields/topics) attached by OpenAlex
- Cited by
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0Total citation count in OpenAlex
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16Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.reduce | 256 |
| abstract_inverted_index.study. | 146 |
| abstract_inverted_index.themes | 149, 227 |
| abstract_inverted_index.years) | 114 |
| abstract_inverted_index.Canada. | 105 |
| abstract_inverted_index.October | 126 |
| abstract_inverted_index.Results | 131 |
| abstract_inverted_index.Setting | 96 |
| abstract_inverted_index.between | 125 |
| abstract_inverted_index.central | 148, 226 |
| abstract_inverted_index.content | 94 |
| abstract_inverted_index.descent | 141 |
| abstract_inverted_index.dignity | 178 |
| abstract_inverted_index.explore | 31 |
| abstract_inverted_index.factors | 15 |
| abstract_inverted_index.improve | 250 |
| abstract_inverted_index.medical | 75, 87, 162, 168, 201 |
| abstract_inverted_index.members | 49, 65, 109, 133 |
| abstract_inverted_index.patient | 74, 83, 172 |
| abstract_inverted_index.quality | 19, 33, 165, 220, 230, 252 |
| abstract_inverted_index.respect | 183, 213 |
| abstract_inverted_index.through | 181 |
| abstract_inverted_index.Culture, | 187 |
| abstract_inverted_index.December | 129 |
| abstract_inverted_index.Toronto, | 104 |
| abstract_inverted_index.academic | 99 |
| abstract_inverted_index.admitted | 117 |
| abstract_inverted_index.analysed | 91 |
| abstract_inverted_index.clinical | 245 |
| abstract_inverted_index.cultural | 182, 212 |
| abstract_inverted_index.evidence | 13 |
| abstract_inverted_index.experts; | 163, 169 |
| abstract_inverted_index.families | 235 |
| abstract_inverted_index.findings | 224 |
| abstract_inverted_index.hospital | 102, 124 |
| abstract_inverted_index.insights | 242 |
| abstract_inverted_index.journey. | 88 |
| abstract_inverted_index.multiple | 56 |
| abstract_inverted_index.overseen | 160 |
| abstract_inverted_index.patients | 2, 112, 137 |
| abstract_inverted_index.possible | 217 |
| abstract_inverted_index.process. | 203 |
| abstract_inverted_index.religion | 188 |
| abstract_inverted_index.support. | 186 |
| abstract_inverted_index.tertiary | 100 |
| abstract_inverted_index.Objective | 0 |
| abstract_inverted_index.achieving | 171 |
| abstract_inverted_index.analysis. | 95 |
| abstract_inverted_index.community | 6 |
| abstract_inverted_index.deductive | 93 |
| abstract_inverted_index.emotional | 185, 205, 259 |
| abstract_inverted_index.influence | 17, 198 |
| abstract_inverted_index.intensive | 39 |
| abstract_inverted_index.patients, | 210 |
| abstract_inverted_index.patients. | 52, 68, 240 |
| abstract_inverted_index.processes | 246 |
| abstract_inverted_index.recruited | 143 |
| abstract_inverted_index.research, | 10 |
| abstract_inverted_index.seriously | 237 |
| abstract_inverted_index.Healthcare | 69 |
| abstract_inverted_index.confidence | 155 |
| abstract_inverted_index.experience | 21, 85 |
| abstract_inverted_index.healthcare | 158 |
| abstract_inverted_index.identified | 215, 225 |
| abstract_inverted_index.interviews | 62 |
| abstract_inverted_index.well-being | 208 |
| abstract_inverted_index.Conclusions | 222 |
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| abstract_inverted_index.next-of-kin | 47 |
| abstract_inverted_index.perspective | 45 |
| abstract_inverted_index.qualitative | 55 |
| abstract_inverted_index.religiosity | 190 |
| abstract_inverted_index.Participants | 106 |
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| abstract_inverted_index.contextualise | 81 |
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| abstract_inverted_index.psychological | 207, 257 |
| abstract_inverted_index.Communication, | 204 |
| abstract_inverted_index.semistructured | 61 |
| abstract_inverted_index.decision-making | 202 |
| abstract_inverted_index.underrepresented | 5 |
| cited_by_percentile_year | |
| countries_distinct_count | 1 |
| institutions_distinct_count | 4 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/16 |
| sustainable_development_goals[0].score | 0.800000011920929 |
| sustainable_development_goals[0].display_name | Peace, Justice and strong institutions |
| citation_normalized_percentile.value | 0.0223043 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |