Fertility care among people with primary ciliary dyskinesia Article Swipe
Leonie D Schreck
,
Myrofora Goutaki
,
Philippa Jörger
,
Katie Dexter
,
Michele Manion
,
Sophie Christin‐Maître
,
Bernard Maître
,
Claudia E. Kuehni
,
Eva S.L. Pedersen
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1101/2023.07.04.23292228
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1101/2023.07.04.23292228
Introduction Fertility care is important for people living with primary ciliary dyskinesia (PCD) who are at increased risk of fertility problems. We investigated fertility care in an international participatory study. Methods Participants of the COVID-PCD study completed an online questionnaire addressing fertility issues. We used logistic regression to study factors associated with fertility specialist visits. Results Among 384 respondents (response rate 53%), 266 were adults [median age 44 years, interquartile range (IQR) 33–54), 68% female], 16 adolescents, and 102 parents of children with PCD. Half adult participants (128; 48%) received care from fertility specialists at a median age of 30 years (IQR 27–33)—a median of 10 years after PCD diagnosis. Fertility specialist visits were reported more often by adults with pregnancy attempts [odds ratio (OR) 9.1, 95% confidence interval (CI) 3.8–23.6] and among people who reported fertility as important for them (OR 5.9, 95% CI 2.6–14.6) and less often by females (OR 0.4, 95% CI 0.2–0.8). Only 56% of participants who talked with healthcare professionals about fertility were satisfied with information they received. They expressed needs for more comprehensive fertility information and reported dissatisfaction with physician knowledge about PCD and fertility. Conclusion People with PCD are inconsistently referred to fertility specialists. We recommend care from fertility specialists become standard in routine PCD care, and that PCD physicians provide initial fertility information either at diagnosis or no later than transition to adult care.
Related Topics
Concepts
Fertility
Medicine
Primary ciliary dyskinesia
Demography
Interquartile range
Family medicine
Fertility clinic
Odds ratio
Confidence interval
Population
Internal medicine
Environmental health
Lung
Bronchiectasis
Sociology
Metadata
- Type
- preprint
- Language
- en
- Landing Page
- https://doi.org/10.1101/2023.07.04.23292228
- https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdf
- OA Status
- green
- Cited By
- 2
- References
- 31
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4383218233
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
-
https://openalex.org/W4383218233Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1101/2023.07.04.23292228Digital Object Identifier
- Title
-
Fertility care among people with primary ciliary dyskinesiaWork title
- Type
-
preprintOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2023Year of publication
- Publication date
-
2023-07-05Full publication date if available
- Authors
-
Leonie D Schreck, Myrofora Goutaki, Philippa Jörger, Katie Dexter, Michele Manion, Sophie Christin‐Maître, Bernard Maître, Claudia E. Kuehni, Eva S.L. PedersenList of authors in order
- Landing page
-
https://doi.org/10.1101/2023.07.04.23292228Publisher landing page
- PDF URL
-
https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdfDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
greenOpen access status per OpenAlex
- OA URL
-
https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdfDirect OA link when available
- Concepts
-
Fertility, Medicine, Primary ciliary dyskinesia, Demography, Interquartile range, Family medicine, Fertility clinic, Odds ratio, Confidence interval, Population, Internal medicine, Environmental health, Lung, Bronchiectasis, SociologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
2Total citation count in OpenAlex
- Citations by year (recent)
-
2025: 1, 2024: 1Per-year citation counts (last 5 years)
- References (count)
-
31Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
Full payload
| id | https://openalex.org/W4383218233 |
|---|---|
| doi | https://doi.org/10.1101/2023.07.04.23292228 |
| ids.doi | https://doi.org/10.1101/2023.07.04.23292228 |
| ids.openalex | https://openalex.org/W4383218233 |
| fwci | 3.53271731 |
| type | preprint |
| title | Fertility care among people with primary ciliary dyskinesia |
| biblio.issue | |
| biblio.volume | |
| biblio.last_page | |
| biblio.first_page | |
| topics[0].id | https://openalex.org/T11732 |
| topics[0].field.id | https://openalex.org/fields/27 |
| topics[0].field.display_name | Medicine |
| topics[0].score | 0.9991999864578247 |
| topics[0].domain.id | https://openalex.org/domains/4 |
| topics[0].domain.display_name | Health Sciences |
| topics[0].subfield.id | https://openalex.org/subfields/2735 |
| topics[0].subfield.display_name | Pediatrics, Perinatology and Child Health |
| topics[0].display_name | Assisted Reproductive Technology and Twin Pregnancy |
| topics[1].id | https://openalex.org/T11156 |
| topics[1].field.id | https://openalex.org/fields/27 |
| topics[1].field.display_name | Medicine |
| topics[1].score | 0.991100013256073 |
| topics[1].domain.id | https://openalex.org/domains/4 |
| topics[1].domain.display_name | Health Sciences |
| topics[1].subfield.id | https://openalex.org/subfields/2743 |
| topics[1].subfield.display_name | Reproductive Medicine |
| topics[1].display_name | Reproductive Health and Technologies |
| topics[2].id | https://openalex.org/T10978 |
| topics[2].field.id | https://openalex.org/fields/27 |
| topics[2].field.display_name | Medicine |
| topics[2].score | 0.9866999983787537 |
| topics[2].domain.id | https://openalex.org/domains/4 |
| topics[2].domain.display_name | Health Sciences |
| topics[2].subfield.id | https://openalex.org/subfields/2735 |
| topics[2].subfield.display_name | Pediatrics, Perinatology and Child Health |
| topics[2].display_name | Prenatal Screening and Diagnostics |
| is_xpac | False |
| apc_list | |
| apc_paid | |
| concepts[0].id | https://openalex.org/C518429986 |
| concepts[0].level | 3 |
| concepts[0].score | 0.904265284538269 |
| concepts[0].wikidata | https://www.wikidata.org/wiki/Q964401 |
| concepts[0].display_name | Fertility |
| concepts[1].id | https://openalex.org/C71924100 |
| concepts[1].level | 0 |
| concepts[1].score | 0.6406452655792236 |
| concepts[1].wikidata | https://www.wikidata.org/wiki/Q11190 |
| concepts[1].display_name | Medicine |
| concepts[2].id | https://openalex.org/C2778206077 |
| concepts[2].level | 4 |
| concepts[2].score | 0.5628036260604858 |
| concepts[2].wikidata | https://www.wikidata.org/wiki/Q1690779 |
| concepts[2].display_name | Primary ciliary dyskinesia |
| concepts[3].id | https://openalex.org/C149923435 |
| concepts[3].level | 1 |
| concepts[3].score | 0.5579141974449158 |
| concepts[3].wikidata | https://www.wikidata.org/wiki/Q37732 |
| concepts[3].display_name | Demography |
| concepts[4].id | https://openalex.org/C119060515 |
| concepts[4].level | 2 |
| concepts[4].score | 0.5170713067054749 |
| concepts[4].wikidata | https://www.wikidata.org/wiki/Q1916617 |
| concepts[4].display_name | Interquartile range |
| concepts[5].id | https://openalex.org/C512399662 |
| concepts[5].level | 1 |
| concepts[5].score | 0.4503372013568878 |
| concepts[5].wikidata | https://www.wikidata.org/wiki/Q3505712 |
| concepts[5].display_name | Family medicine |
| concepts[6].id | https://openalex.org/C204411529 |
| concepts[6].level | 4 |
| concepts[6].score | 0.4273134171962738 |
| concepts[6].wikidata | https://www.wikidata.org/wiki/Q5445579 |
| concepts[6].display_name | Fertility clinic |
| concepts[7].id | https://openalex.org/C156957248 |
| concepts[7].level | 2 |
| concepts[7].score | 0.41519197821617126 |
| concepts[7].wikidata | https://www.wikidata.org/wiki/Q1862216 |
| concepts[7].display_name | Odds ratio |
| concepts[8].id | https://openalex.org/C44249647 |
| concepts[8].level | 2 |
| concepts[8].score | 0.414528489112854 |
| concepts[8].wikidata | https://www.wikidata.org/wiki/Q208498 |
| concepts[8].display_name | Confidence interval |
| concepts[9].id | https://openalex.org/C2908647359 |
| concepts[9].level | 2 |
| concepts[9].score | 0.3103748559951782 |
| concepts[9].wikidata | https://www.wikidata.org/wiki/Q2625603 |
| concepts[9].display_name | Population |
| concepts[10].id | https://openalex.org/C126322002 |
| concepts[10].level | 1 |
| concepts[10].score | 0.10693326592445374 |
| concepts[10].wikidata | https://www.wikidata.org/wiki/Q11180 |
| concepts[10].display_name | Internal medicine |
| concepts[11].id | https://openalex.org/C99454951 |
| concepts[11].level | 1 |
| concepts[11].score | 0.1063864529132843 |
| concepts[11].wikidata | https://www.wikidata.org/wiki/Q932068 |
| concepts[11].display_name | Environmental health |
| concepts[12].id | https://openalex.org/C2777714996 |
| concepts[12].level | 2 |
| concepts[12].score | 0.0 |
| concepts[12].wikidata | https://www.wikidata.org/wiki/Q7886 |
| concepts[12].display_name | Lung |
| concepts[13].id | https://openalex.org/C2779379686 |
| concepts[13].level | 3 |
| concepts[13].score | 0.0 |
| concepts[13].wikidata | https://www.wikidata.org/wiki/Q32778 |
| concepts[13].display_name | Bronchiectasis |
| concepts[14].id | https://openalex.org/C144024400 |
| concepts[14].level | 0 |
| concepts[14].score | 0.0 |
| concepts[14].wikidata | https://www.wikidata.org/wiki/Q21201 |
| concepts[14].display_name | Sociology |
| keywords[0].id | https://openalex.org/keywords/fertility |
| keywords[0].score | 0.904265284538269 |
| keywords[0].display_name | Fertility |
| keywords[1].id | https://openalex.org/keywords/medicine |
| keywords[1].score | 0.6406452655792236 |
| keywords[1].display_name | Medicine |
| keywords[2].id | https://openalex.org/keywords/primary-ciliary-dyskinesia |
| keywords[2].score | 0.5628036260604858 |
| keywords[2].display_name | Primary ciliary dyskinesia |
| keywords[3].id | https://openalex.org/keywords/demography |
| keywords[3].score | 0.5579141974449158 |
| keywords[3].display_name | Demography |
| keywords[4].id | https://openalex.org/keywords/interquartile-range |
| keywords[4].score | 0.5170713067054749 |
| keywords[4].display_name | Interquartile range |
| keywords[5].id | https://openalex.org/keywords/family-medicine |
| keywords[5].score | 0.4503372013568878 |
| keywords[5].display_name | Family medicine |
| keywords[6].id | https://openalex.org/keywords/fertility-clinic |
| keywords[6].score | 0.4273134171962738 |
| keywords[6].display_name | Fertility clinic |
| keywords[7].id | https://openalex.org/keywords/odds-ratio |
| keywords[7].score | 0.41519197821617126 |
| keywords[7].display_name | Odds ratio |
| keywords[8].id | https://openalex.org/keywords/confidence-interval |
| keywords[8].score | 0.414528489112854 |
| keywords[8].display_name | Confidence interval |
| keywords[9].id | https://openalex.org/keywords/population |
| keywords[9].score | 0.3103748559951782 |
| keywords[9].display_name | Population |
| keywords[10].id | https://openalex.org/keywords/internal-medicine |
| keywords[10].score | 0.10693326592445374 |
| keywords[10].display_name | Internal medicine |
| keywords[11].id | https://openalex.org/keywords/environmental-health |
| keywords[11].score | 0.1063864529132843 |
| keywords[11].display_name | Environmental health |
| language | en |
| locations[0].id | doi:10.1101/2023.07.04.23292228 |
| locations[0].is_oa | True |
| locations[0].source.id | https://openalex.org/S4306402567 |
| locations[0].source.issn | |
| locations[0].source.type | repository |
| locations[0].source.is_oa | False |
| locations[0].source.issn_l | |
| locations[0].source.is_core | False |
| locations[0].source.is_in_doaj | False |
| locations[0].source.display_name | bioRxiv (Cold Spring Harbor Laboratory) |
| locations[0].source.host_organization | https://openalex.org/I2750212522 |
| locations[0].source.host_organization_name | Cold Spring Harbor Laboratory |
| locations[0].source.host_organization_lineage | https://openalex.org/I2750212522 |
| locations[0].license | cc-by |
| locations[0].pdf_url | https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdf |
| locations[0].version | acceptedVersion |
| locations[0].raw_type | posted-content |
| locations[0].license_id | https://openalex.org/licenses/cc-by |
| locations[0].is_accepted | True |
| locations[0].is_published | False |
| locations[0].raw_source_name | |
| locations[0].landing_page_url | https://doi.org/10.1101/2023.07.04.23292228 |
| indexed_in | crossref |
| authorships[0].author.id | https://openalex.org/A5036597642 |
| authorships[0].author.orcid | https://orcid.org/0000-0001-6180-692X |
| authorships[0].author.display_name | Leonie D Schreck |
| authorships[0].countries | CH |
| authorships[0].affiliations[0].institution_ids | https://openalex.org/I118564535 |
| authorships[0].affiliations[0].raw_affiliation_string | Graduate School for Health Sciences, University of Bern, Bern, Switzerland |
| authorships[0].affiliations[1].institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| authorships[0].affiliations[1].raw_affiliation_string | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[0].institutions[0].id | https://openalex.org/I4210135124 |
| authorships[0].institutions[0].ror | https://ror.org/038esz880 |
| authorships[0].institutions[0].type | facility |
| authorships[0].institutions[0].lineage | https://openalex.org/I2802229882, https://openalex.org/I4210135124, https://openalex.org/I97565354 |
| authorships[0].institutions[0].country_code | CH |
| authorships[0].institutions[0].display_name | Institute of Social and Preventive Medicine |
| authorships[0].institutions[1].id | https://openalex.org/I118564535 |
| authorships[0].institutions[1].ror | https://ror.org/02k7v4d05 |
| authorships[0].institutions[1].type | education |
| authorships[0].institutions[1].lineage | https://openalex.org/I118564535 |
| authorships[0].institutions[1].country_code | CH |
| authorships[0].institutions[1].display_name | University of Bern |
| authorships[0].author_position | first |
| authorships[0].raw_author_name | Leonie D Schreck |
| authorships[0].is_corresponding | False |
| authorships[0].raw_affiliation_strings | Graduate School for Health Sciences, University of Bern, Bern, Switzerland, Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[1].author.id | https://openalex.org/A5032426459 |
| authorships[1].author.orcid | https://orcid.org/0000-0001-8036-2092 |
| authorships[1].author.display_name | Myrofora Goutaki |
| authorships[1].countries | CH |
| authorships[1].affiliations[0].institution_ids | https://openalex.org/I118564535, https://openalex.org/I2801112126 |
| authorships[1].affiliations[0].raw_affiliation_string | Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland |
| authorships[1].affiliations[1].institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| authorships[1].affiliations[1].raw_affiliation_string | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[1].institutions[0].id | https://openalex.org/I4210135124 |
| authorships[1].institutions[0].ror | https://ror.org/038esz880 |
| authorships[1].institutions[0].type | facility |
| authorships[1].institutions[0].lineage | https://openalex.org/I2802229882, https://openalex.org/I4210135124, https://openalex.org/I97565354 |
| authorships[1].institutions[0].country_code | CH |
| authorships[1].institutions[0].display_name | Institute of Social and Preventive Medicine |
| authorships[1].institutions[1].id | https://openalex.org/I2801112126 |
| authorships[1].institutions[1].ror | https://ror.org/01q9sj412 |
| authorships[1].institutions[1].type | healthcare |
| authorships[1].institutions[1].lineage | https://openalex.org/I2801112126 |
| authorships[1].institutions[1].country_code | CH |
| authorships[1].institutions[1].display_name | University Hospital of Bern |
| authorships[1].institutions[2].id | https://openalex.org/I118564535 |
| authorships[1].institutions[2].ror | https://ror.org/02k7v4d05 |
| authorships[1].institutions[2].type | education |
| authorships[1].institutions[2].lineage | https://openalex.org/I118564535 |
| authorships[1].institutions[2].country_code | CH |
| authorships[1].institutions[2].display_name | University of Bern |
| authorships[1].author_position | middle |
| authorships[1].raw_author_name | Myrofora Goutaki |
| authorships[1].is_corresponding | False |
| authorships[1].raw_affiliation_strings | Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland, Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[2].author.id | https://openalex.org/A5058917860 |
| authorships[2].author.orcid | https://orcid.org/0000-0003-1867-6925 |
| authorships[2].author.display_name | Philippa Jörger |
| authorships[2].countries | CH |
| authorships[2].affiliations[0].institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| authorships[2].affiliations[0].raw_affiliation_string | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[2].institutions[0].id | https://openalex.org/I4210135124 |
| authorships[2].institutions[0].ror | https://ror.org/038esz880 |
| authorships[2].institutions[0].type | facility |
| authorships[2].institutions[0].lineage | https://openalex.org/I2802229882, https://openalex.org/I4210135124, https://openalex.org/I97565354 |
| authorships[2].institutions[0].country_code | CH |
| authorships[2].institutions[0].display_name | Institute of Social and Preventive Medicine |
| authorships[2].institutions[1].id | https://openalex.org/I118564535 |
| authorships[2].institutions[1].ror | https://ror.org/02k7v4d05 |
| authorships[2].institutions[1].type | education |
| authorships[2].institutions[1].lineage | https://openalex.org/I118564535 |
| authorships[2].institutions[1].country_code | CH |
| authorships[2].institutions[1].display_name | University of Bern |
| authorships[2].author_position | middle |
| authorships[2].raw_author_name | Philippa Jörger |
| authorships[2].is_corresponding | False |
| authorships[2].raw_affiliation_strings | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[3].author.id | https://openalex.org/A5021894742 |
| authorships[3].author.orcid | |
| authorships[3].author.display_name | Katie Dexter |
| authorships[3].affiliations[0].raw_affiliation_string | PCD Support UK, London, United Kingdom |
| authorships[3].author_position | middle |
| authorships[3].raw_author_name | Katie Dexter |
| authorships[3].is_corresponding | False |
| authorships[3].raw_affiliation_strings | PCD Support UK, London, United Kingdom |
| authorships[4].author.id | https://openalex.org/A5084141707 |
| authorships[4].author.orcid | |
| authorships[4].author.display_name | Michele Manion |
| authorships[4].affiliations[0].raw_affiliation_string | PCD Foundation, Minneapolis, USA |
| authorships[4].author_position | middle |
| authorships[4].raw_author_name | Michele Manion |
| authorships[4].is_corresponding | False |
| authorships[4].raw_affiliation_strings | PCD Foundation, Minneapolis, USA |
| authorships[5].author.id | https://openalex.org/A5032547581 |
| authorships[5].author.orcid | https://orcid.org/0000-0002-6057-6840 |
| authorships[5].author.display_name | Sophie Christin‐Maître |
| authorships[5].countries | FR |
| authorships[5].affiliations[0].institution_ids | https://openalex.org/I154526488, https://openalex.org/I39804081, https://openalex.org/I4389425373 |
| authorships[5].affiliations[0].raw_affiliation_string | Sorbonne University, INSERM UMR 933, 75012 Paris, France |
| authorships[5].institutions[0].id | https://openalex.org/I4389425373 |
| authorships[5].institutions[0].ror | https://ror.org/0387w4y93 |
| authorships[5].institutions[0].type | facility |
| authorships[5].institutions[0].lineage | https://openalex.org/I154526488, https://openalex.org/I39804081, https://openalex.org/I4389425373 |
| authorships[5].institutions[0].country_code | |
| authorships[5].institutions[0].display_name | Maladies génétiques d’expression pédiatrique |
| authorships[5].institutions[1].id | https://openalex.org/I154526488 |
| authorships[5].institutions[1].ror | https://ror.org/02vjkv261 |
| authorships[5].institutions[1].type | government |
| authorships[5].institutions[1].lineage | https://openalex.org/I154526488 |
| authorships[5].institutions[1].country_code | FR |
| authorships[5].institutions[1].display_name | Inserm |
| authorships[5].institutions[2].id | https://openalex.org/I39804081 |
| authorships[5].institutions[2].ror | https://ror.org/02en5vm52 |
| authorships[5].institutions[2].type | education |
| authorships[5].institutions[2].lineage | https://openalex.org/I39804081 |
| authorships[5].institutions[2].country_code | FR |
| authorships[5].institutions[2].display_name | Sorbonne Université |
| authorships[5].author_position | middle |
| authorships[5].raw_author_name | Sophie Christin-Maitre |
| authorships[5].is_corresponding | False |
| authorships[5].raw_affiliation_strings | Sorbonne University, INSERM UMR 933, 75012 Paris, France |
| authorships[6].author.id | https://openalex.org/A5054386308 |
| authorships[6].author.orcid | https://orcid.org/0000-0002-8061-1252 |
| authorships[6].author.display_name | Bernard Maître |
| authorships[6].countries | FR |
| authorships[6].affiliations[0].institution_ids | https://openalex.org/I154526488, https://openalex.org/I197681013, https://openalex.org/I4210159433 |
| authorships[6].affiliations[0].raw_affiliation_string | Univ Paris Est-Créteil, Faculté de Santé, INSERM, IMRB, Créteil, France |
| authorships[6].affiliations[1].institution_ids | https://openalex.org/I4210159273 |
| authorships[6].affiliations[1].raw_affiliation_string | Pulmonary Department, Centre Hospitalier Intercommunal de Créteil, France |
| authorships[6].institutions[0].id | https://openalex.org/I4210159273 |
| authorships[6].institutions[0].ror | https://ror.org/04n1nkp35 |
| authorships[6].institutions[0].type | healthcare |
| authorships[6].institutions[0].lineage | https://openalex.org/I4210159273 |
| authorships[6].institutions[0].country_code | FR |
| authorships[6].institutions[0].display_name | Hôpital Intercommunal de Créteil |
| authorships[6].institutions[1].id | https://openalex.org/I154526488 |
| authorships[6].institutions[1].ror | https://ror.org/02vjkv261 |
| authorships[6].institutions[1].type | government |
| authorships[6].institutions[1].lineage | https://openalex.org/I154526488 |
| authorships[6].institutions[1].country_code | FR |
| authorships[6].institutions[1].display_name | Inserm |
| authorships[6].institutions[2].id | https://openalex.org/I4210159433 |
| authorships[6].institutions[2].ror | https://ror.org/04qe59j94 |
| authorships[6].institutions[2].type | facility |
| authorships[6].institutions[2].lineage | https://openalex.org/I154526488, https://openalex.org/I17606148, https://openalex.org/I197681013, https://openalex.org/I197681013, https://openalex.org/I4210159433 |
| authorships[6].institutions[2].country_code | FR |
| authorships[6].institutions[2].display_name | Institut Mondor de Recherche Biomédicale |
| authorships[6].institutions[3].id | https://openalex.org/I197681013 |
| authorships[6].institutions[3].ror | https://ror.org/05ggc9x40 |
| authorships[6].institutions[3].type | education |
| authorships[6].institutions[3].lineage | https://openalex.org/I197681013 |
| authorships[6].institutions[3].country_code | FR |
| authorships[6].institutions[3].display_name | Université Paris-Est Créteil |
| authorships[6].author_position | middle |
| authorships[6].raw_author_name | Bernard Maitre |
| authorships[6].is_corresponding | False |
| authorships[6].raw_affiliation_strings | Pulmonary Department, Centre Hospitalier Intercommunal de Créteil, France, Univ Paris Est-Créteil, Faculté de Santé, INSERM, IMRB, Créteil, France |
| authorships[7].author.id | https://openalex.org/A5011791214 |
| authorships[7].author.orcid | https://orcid.org/0000-0001-8957-2002 |
| authorships[7].author.display_name | Claudia E. Kuehni |
| authorships[7].countries | CH |
| authorships[7].affiliations[0].institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| authorships[7].affiliations[0].raw_affiliation_string | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[7].affiliations[1].institution_ids | https://openalex.org/I118564535, https://openalex.org/I2801112126 |
| authorships[7].affiliations[1].raw_affiliation_string | Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland |
| authorships[7].institutions[0].id | https://openalex.org/I4210135124 |
| authorships[7].institutions[0].ror | https://ror.org/038esz880 |
| authorships[7].institutions[0].type | facility |
| authorships[7].institutions[0].lineage | https://openalex.org/I2802229882, https://openalex.org/I4210135124, https://openalex.org/I97565354 |
| authorships[7].institutions[0].country_code | CH |
| authorships[7].institutions[0].display_name | Institute of Social and Preventive Medicine |
| authorships[7].institutions[1].id | https://openalex.org/I2801112126 |
| authorships[7].institutions[1].ror | https://ror.org/01q9sj412 |
| authorships[7].institutions[1].type | healthcare |
| authorships[7].institutions[1].lineage | https://openalex.org/I2801112126 |
| authorships[7].institutions[1].country_code | CH |
| authorships[7].institutions[1].display_name | University Hospital of Bern |
| authorships[7].institutions[2].id | https://openalex.org/I118564535 |
| authorships[7].institutions[2].ror | https://ror.org/02k7v4d05 |
| authorships[7].institutions[2].type | education |
| authorships[7].institutions[2].lineage | https://openalex.org/I118564535 |
| authorships[7].institutions[2].country_code | CH |
| authorships[7].institutions[2].display_name | University of Bern |
| authorships[7].author_position | middle |
| authorships[7].raw_author_name | Claudia E Kuehni |
| authorships[7].is_corresponding | False |
| authorships[7].raw_affiliation_strings | Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, University Hospital, University of Bern, Bern, Switzerland, Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[8].author.id | https://openalex.org/A5081367721 |
| authorships[8].author.orcid | https://orcid.org/0000-0003-0293-9954 |
| authorships[8].author.display_name | Eva S.L. Pedersen |
| authorships[8].countries | CH |
| authorships[8].affiliations[0].institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| authorships[8].affiliations[0].raw_affiliation_string | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| authorships[8].institutions[0].id | https://openalex.org/I4210135124 |
| authorships[8].institutions[0].ror | https://ror.org/038esz880 |
| authorships[8].institutions[0].type | facility |
| authorships[8].institutions[0].lineage | https://openalex.org/I2802229882, https://openalex.org/I4210135124, https://openalex.org/I97565354 |
| authorships[8].institutions[0].country_code | CH |
| authorships[8].institutions[0].display_name | Institute of Social and Preventive Medicine |
| authorships[8].institutions[1].id | https://openalex.org/I118564535 |
| authorships[8].institutions[1].ror | https://ror.org/02k7v4d05 |
| authorships[8].institutions[1].type | education |
| authorships[8].institutions[1].lineage | https://openalex.org/I118564535 |
| authorships[8].institutions[1].country_code | CH |
| authorships[8].institutions[1].display_name | University of Bern |
| authorships[8].author_position | last |
| authorships[8].raw_author_name | Eva SL Pedersen |
| authorships[8].is_corresponding | True |
| authorships[8].raw_affiliation_strings | Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland |
| has_content.pdf | True |
| has_content.grobid_xml | True |
| is_paratext | False |
| open_access.is_oa | True |
| open_access.oa_url | https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdf |
| open_access.oa_status | green |
| open_access.any_repository_has_fulltext | False |
| created_date | 2025-10-10T00:00:00 |
| display_name | Fertility care among people with primary ciliary dyskinesia |
| has_fulltext | True |
| is_retracted | False |
| updated_date | 2025-11-06T03:46:38.306776 |
| primary_topic.id | https://openalex.org/T11732 |
| primary_topic.field.id | https://openalex.org/fields/27 |
| primary_topic.field.display_name | Medicine |
| primary_topic.score | 0.9991999864578247 |
| primary_topic.domain.id | https://openalex.org/domains/4 |
| primary_topic.domain.display_name | Health Sciences |
| primary_topic.subfield.id | https://openalex.org/subfields/2735 |
| primary_topic.subfield.display_name | Pediatrics, Perinatology and Child Health |
| primary_topic.display_name | Assisted Reproductive Technology and Twin Pregnancy |
| related_works | https://openalex.org/W113427221, https://openalex.org/W3029503827, https://openalex.org/W3032883922, https://openalex.org/W35726690, https://openalex.org/W4214734643, https://openalex.org/W2039651213, https://openalex.org/W2563109676, https://openalex.org/W2888933831, https://openalex.org/W2130788853, https://openalex.org/W2186889397 |
| cited_by_count | 2 |
| counts_by_year[0].year | 2025 |
| counts_by_year[0].cited_by_count | 1 |
| counts_by_year[1].year | 2024 |
| counts_by_year[1].cited_by_count | 1 |
| locations_count | 1 |
| best_oa_location.id | doi:10.1101/2023.07.04.23292228 |
| best_oa_location.is_oa | True |
| best_oa_location.source.id | https://openalex.org/S4306402567 |
| best_oa_location.source.issn | |
| best_oa_location.source.type | repository |
| best_oa_location.source.is_oa | False |
| best_oa_location.source.issn_l | |
| best_oa_location.source.is_core | False |
| best_oa_location.source.is_in_doaj | False |
| best_oa_location.source.display_name | bioRxiv (Cold Spring Harbor Laboratory) |
| best_oa_location.source.host_organization | https://openalex.org/I2750212522 |
| best_oa_location.source.host_organization_name | Cold Spring Harbor Laboratory |
| best_oa_location.source.host_organization_lineage | https://openalex.org/I2750212522 |
| best_oa_location.license | cc-by |
| best_oa_location.pdf_url | https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdf |
| best_oa_location.version | acceptedVersion |
| best_oa_location.raw_type | posted-content |
| best_oa_location.license_id | https://openalex.org/licenses/cc-by |
| best_oa_location.is_accepted | True |
| best_oa_location.is_published | False |
| best_oa_location.raw_source_name | |
| best_oa_location.landing_page_url | https://doi.org/10.1101/2023.07.04.23292228 |
| primary_location.id | doi:10.1101/2023.07.04.23292228 |
| primary_location.is_oa | True |
| primary_location.source.id | https://openalex.org/S4306402567 |
| primary_location.source.issn | |
| primary_location.source.type | repository |
| primary_location.source.is_oa | False |
| primary_location.source.issn_l | |
| primary_location.source.is_core | False |
| primary_location.source.is_in_doaj | False |
| primary_location.source.display_name | bioRxiv (Cold Spring Harbor Laboratory) |
| primary_location.source.host_organization | https://openalex.org/I2750212522 |
| primary_location.source.host_organization_name | Cold Spring Harbor Laboratory |
| primary_location.source.host_organization_lineage | https://openalex.org/I2750212522 |
| primary_location.license | cc-by |
| primary_location.pdf_url | https://www.medrxiv.org/content/medrxiv/early/2023/07/05/2023.07.04.23292228.full.pdf |
| primary_location.version | acceptedVersion |
| primary_location.raw_type | posted-content |
| primary_location.license_id | https://openalex.org/licenses/cc-by |
| primary_location.is_accepted | True |
| primary_location.is_published | False |
| primary_location.raw_source_name | |
| primary_location.landing_page_url | https://doi.org/10.1101/2023.07.04.23292228 |
| publication_date | 2023-07-05 |
| publication_year | 2023 |
| referenced_works | https://openalex.org/W2164564297, https://openalex.org/W3128495269, https://openalex.org/W2989859078, https://openalex.org/W2205889218, https://openalex.org/W2498494766, https://openalex.org/W3129493904, https://openalex.org/W4285026226, https://openalex.org/W2739504526, https://openalex.org/W2142218173, https://openalex.org/W2885795390, https://openalex.org/W1566941255, https://openalex.org/W4211135382, https://openalex.org/W2738582810, https://openalex.org/W2108095963, https://openalex.org/W4214734643, https://openalex.org/W2944668337, https://openalex.org/W2800481453, https://openalex.org/W2516690458, https://openalex.org/W1975823452, https://openalex.org/W2060923451, https://openalex.org/W3203052233, https://openalex.org/W3127586606, https://openalex.org/W4292229870, https://openalex.org/W2093274439, https://openalex.org/W4205693615, https://openalex.org/W3197784235, https://openalex.org/W3193544648, https://openalex.org/W3193550842, https://openalex.org/W2984104015, https://openalex.org/W3087343225, https://openalex.org/W4308175316 |
| referenced_works_count | 31 |
| abstract_inverted_index.a | 96 |
| abstract_inverted_index.10 | 106 |
| abstract_inverted_index.16 | 76 |
| abstract_inverted_index.30 | 100 |
| abstract_inverted_index.44 | 68 |
| abstract_inverted_index.CI | 145, 155 |
| abstract_inverted_index.We | 22, 44, 202 |
| abstract_inverted_index.an | 27, 38 |
| abstract_inverted_index.as | 138 |
| abstract_inverted_index.at | 16, 95, 223 |
| abstract_inverted_index.by | 118, 150 |
| abstract_inverted_index.in | 26, 210 |
| abstract_inverted_index.is | 4 |
| abstract_inverted_index.no | 226 |
| abstract_inverted_index.of | 19, 33, 81, 99, 105, 159 |
| abstract_inverted_index.or | 225 |
| abstract_inverted_index.to | 48, 199, 230 |
| abstract_inverted_index.(OR | 142, 152 |
| abstract_inverted_index.102 | 79 |
| abstract_inverted_index.266 | 63 |
| abstract_inverted_index.384 | 58 |
| abstract_inverted_index.56% | 158 |
| abstract_inverted_index.68% | 74 |
| abstract_inverted_index.95% | 127, 144, 154 |
| abstract_inverted_index.PCD | 109, 189, 195, 212, 216 |
| abstract_inverted_index.age | 67, 98 |
| abstract_inverted_index.and | 78, 132, 147, 182, 190, 214 |
| abstract_inverted_index.are | 15, 196 |
| abstract_inverted_index.for | 6, 140, 177 |
| abstract_inverted_index.the | 34 |
| abstract_inverted_index.who | 14, 135, 161 |
| abstract_inverted_index.(CI) | 130 |
| abstract_inverted_index.(IQR | 102 |
| abstract_inverted_index.(OR) | 125 |
| abstract_inverted_index.0.4, | 153 |
| abstract_inverted_index.48%) | 89 |
| abstract_inverted_index.5.9, | 143 |
| abstract_inverted_index.9.1, | 126 |
| abstract_inverted_index.Half | 85 |
| abstract_inverted_index.Only | 157 |
| abstract_inverted_index.PCD. | 84 |
| abstract_inverted_index.They | 174 |
| abstract_inverted_index.care | 3, 25, 91, 204 |
| abstract_inverted_index.from | 92, 205 |
| abstract_inverted_index.less | 148 |
| abstract_inverted_index.more | 116, 178 |
| abstract_inverted_index.rate | 61 |
| abstract_inverted_index.risk | 18 |
| abstract_inverted_index.than | 228 |
| abstract_inverted_index.that | 215 |
| abstract_inverted_index.them | 141 |
| abstract_inverted_index.they | 172 |
| abstract_inverted_index.used | 45 |
| abstract_inverted_index.were | 64, 114, 168 |
| abstract_inverted_index.with | 9, 52, 83, 120, 163, 170, 185, 194 |
| abstract_inverted_index.(128; | 88 |
| abstract_inverted_index.(IQR) | 72 |
| abstract_inverted_index.(PCD) | 13 |
| abstract_inverted_index.53%), | 62 |
| abstract_inverted_index.Among | 57 |
| abstract_inverted_index.[odds | 123 |
| abstract_inverted_index.about | 166, 188 |
| abstract_inverted_index.adult | 86, 231 |
| abstract_inverted_index.after | 108 |
| abstract_inverted_index.among | 133 |
| abstract_inverted_index.care, | 213 |
| abstract_inverted_index.care. | 232 |
| abstract_inverted_index.later | 227 |
| abstract_inverted_index.needs | 176 |
| abstract_inverted_index.often | 117, 149 |
| abstract_inverted_index.range | 71 |
| abstract_inverted_index.ratio | 124 |
| abstract_inverted_index.study | 36, 49 |
| abstract_inverted_index.years | 101, 107 |
| abstract_inverted_index.People | 193 |
| abstract_inverted_index.adults | 65, 119 |
| abstract_inverted_index.become | 208 |
| abstract_inverted_index.either | 222 |
| abstract_inverted_index.living | 8 |
| abstract_inverted_index.median | 97, 104 |
| abstract_inverted_index.online | 39 |
| abstract_inverted_index.people | 7, 134 |
| abstract_inverted_index.study. | 30 |
| abstract_inverted_index.talked | 162 |
| abstract_inverted_index.visits | 113 |
| abstract_inverted_index.years, | 69 |
| abstract_inverted_index.Methods | 31 |
| abstract_inverted_index.Results | 56 |
| abstract_inverted_index.[median | 66 |
| abstract_inverted_index.ciliary | 11 |
| abstract_inverted_index.factors | 50 |
| abstract_inverted_index.females | 151 |
| abstract_inverted_index.initial | 219 |
| abstract_inverted_index.issues. | 43 |
| abstract_inverted_index.parents | 80 |
| abstract_inverted_index.primary | 10 |
| abstract_inverted_index.provide | 218 |
| abstract_inverted_index.routine | 211 |
| abstract_inverted_index.visits. | 55 |
| abstract_inverted_index.Abstract | 0 |
| abstract_inverted_index.attempts | 122 |
| abstract_inverted_index.children | 82 |
| abstract_inverted_index.female], | 75 |
| abstract_inverted_index.interval | 129 |
| abstract_inverted_index.logistic | 46 |
| abstract_inverted_index.received | 90 |
| abstract_inverted_index.referred | 198 |
| abstract_inverted_index.reported | 115, 136, 183 |
| abstract_inverted_index.standard | 209 |
| abstract_inverted_index.(response | 60 |
| abstract_inverted_index.33–54), | 73 |
| abstract_inverted_index.COVID-PCD | 35 |
| abstract_inverted_index.Fertility | 2, 111 |
| abstract_inverted_index.completed | 37 |
| abstract_inverted_index.diagnosis | 224 |
| abstract_inverted_index.expressed | 175 |
| abstract_inverted_index.fertility | 20, 24, 42, 53, 93, 137, 167, 180, 200, 206, 220 |
| abstract_inverted_index.important | 5, 139 |
| abstract_inverted_index.increased | 17 |
| abstract_inverted_index.knowledge | 187 |
| abstract_inverted_index.physician | 186 |
| abstract_inverted_index.pregnancy | 121 |
| abstract_inverted_index.problems. | 21 |
| abstract_inverted_index.received. | 173 |
| abstract_inverted_index.recommend | 203 |
| abstract_inverted_index.satisfied | 169 |
| abstract_inverted_index.Conclusion | 192 |
| abstract_inverted_index.addressing | 41 |
| abstract_inverted_index.associated | 51 |
| abstract_inverted_index.confidence | 128 |
| abstract_inverted_index.diagnosis. | 110 |
| abstract_inverted_index.dyskinesia | 12 |
| abstract_inverted_index.fertility. | 191 |
| abstract_inverted_index.healthcare | 164 |
| abstract_inverted_index.physicians | 217 |
| abstract_inverted_index.regression | 47 |
| abstract_inverted_index.specialist | 54, 112 |
| abstract_inverted_index.transition | 229 |
| abstract_inverted_index.0.2–0.8). | 156 |
| abstract_inverted_index.2.6–14.6) | 146 |
| abstract_inverted_index.3.8–23.6] | 131 |
| abstract_inverted_index.information | 171, 181, 221 |
| abstract_inverted_index.respondents | 59 |
| abstract_inverted_index.specialists | 94, 207 |
| abstract_inverted_index.27–33)—a | 103 |
| abstract_inverted_index.Introduction | 1 |
| abstract_inverted_index.Participants | 32 |
| abstract_inverted_index.adolescents, | 77 |
| abstract_inverted_index.investigated | 23 |
| abstract_inverted_index.participants | 87, 160 |
| abstract_inverted_index.specialists. | 201 |
| abstract_inverted_index.comprehensive | 179 |
| abstract_inverted_index.international | 28 |
| abstract_inverted_index.interquartile | 70 |
| abstract_inverted_index.participatory | 29 |
| abstract_inverted_index.professionals | 165 |
| abstract_inverted_index.questionnaire | 40 |
| abstract_inverted_index.inconsistently | 197 |
| abstract_inverted_index.dissatisfaction | 184 |
| cited_by_percentile_year.max | 95 |
| cited_by_percentile_year.min | 90 |
| corresponding_author_ids | https://openalex.org/A5081367721 |
| countries_distinct_count | 2 |
| institutions_distinct_count | 9 |
| corresponding_institution_ids | https://openalex.org/I118564535, https://openalex.org/I4210135124 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/3 |
| sustainable_development_goals[0].score | 0.5 |
| sustainable_development_goals[0].display_name | Good health and well-being |
| citation_normalized_percentile.value | 0.82128005 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |