Financing of Rare Diseases and Orphan Drugs in A Sanctioned Country: A Qualitative Study Article Swipe
Seyran Naghdi
,
Mohammadreza Maleki
,
Soudabeh Vatankhah
·
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.47176/mjiri.36.48
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.47176/mjiri.36.48
Background: Rare diseases-related services, care, and drugs (Orphan Drugs) in a lower-middle-income country such as Iran with international limitations due to the sanctions is a challenging issue in terms of their financing and providing. This study aims to address financing issues related to rare diseases in a lower-middle-income country that is under international sanctions. Methods: This is a qualitative study that has been conducted through 14 interviews with experts from different stakeholders in the country to find the challenges of financing rare diseases and orphan drugs in Iran through a content analysis according to Mayring's approach. We accomplished this study based on the World Health Organization's universal health coverage model. Results: We achieved four themes and 12 sub-themes. The themes are the unstable and sanctioned economy including 4 sub-themes; extending the covered population by the social security net in the country including 2 sub-themes; reducing the cost-sharing for the covered population including 4 sub-themes; including more orphan drugs and services including 2 sub-themes. Conclusion: The financing of rare diseases and orphan drugs in Iran is challenged by several contextual and internal factors. The political issues seem to have the main contribution of the challenge to develop an efficient and effective financing mechanism for rare diseases and orphan drugs. This is especially can be related to the politicians' commitments and pursuing an effective plan to allocate the financial resources to rare diseases. However, the country's economic situation, especially at the macro level because of international limitations, has intensified the problem.
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Concepts
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.47176/mjiri.36.48
- http://mjiri.iums.ac.ir/files/site1/user_files_e9487e/s_naghdi-A-10-7282-1-f788d09.pdf
- OA Status
- diamond
- Cited By
- 3
- References
- 21
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4220832196
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4220832196Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.47176/mjiri.36.48Digital Object Identifier
- Title
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Financing of Rare Diseases and Orphan Drugs in A Sanctioned Country: A Qualitative StudyWork title
- Type
-
articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2022Year of publication
- Publication date
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2022-02-15Full publication date if available
- Authors
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Seyran Naghdi, Mohammadreza Maleki, Soudabeh VatankhahList of authors in order
- Landing page
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https://doi.org/10.47176/mjiri.36.48Publisher landing page
- PDF URL
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https://mjiri.iums.ac.ir/files/site1/user_files_e9487e/s_naghdi-A-10-7282-1-f788d09.pdfDirect link to full text PDF
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YesWhether a free full text is available
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diamondOpen access status per OpenAlex
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https://mjiri.iums.ac.ir/files/site1/user_files_e9487e/s_naghdi-A-10-7282-1-f788d09.pdfDirect OA link when available
- Concepts
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Orphan drug, Sanctions, Business, Population, Health care, Finance, Economic growth, Medicine, Political science, Economics, Environmental health, Biology, Law, BioinformaticsTop concepts (fields/topics) attached by OpenAlex
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3Total citation count in OpenAlex
- Citations by year (recent)
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2025: 2, 2022: 1Per-year citation counts (last 5 years)
- References (count)
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21Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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| referenced_works | https://openalex.org/W6600103761, https://openalex.org/W3047195263, https://openalex.org/W2950693828, https://openalex.org/W3087696663, https://openalex.org/W2092086165, https://openalex.org/W2110779546, https://openalex.org/W2593395519, https://openalex.org/W2999258267, https://openalex.org/W2138664283, https://openalex.org/W3138153224, https://openalex.org/W2575178131, https://openalex.org/W3117150715, https://openalex.org/W3004233329, https://openalex.org/W3158587244, https://openalex.org/W3017064379, https://openalex.org/W2788486023, https://openalex.org/W3014983286, https://openalex.org/W2999368733, https://openalex.org/W2901240465, https://openalex.org/W2027616812, https://openalex.org/W2859951655 |
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