How to deal with the consent of adults with cognitive impairment involved in European geriatric living labs? Article Swipe
Guillaume Sacco
,
Frédéric Noublanche
,
F Blazek
,
Catherine Hue
,
Loïc Carballido
,
Marine Asfar
,
Philippe Allain
,
Cédric Annweiler
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1186/s13010-021-00101-1
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.1186/s13010-021-00101-1
Background Living labs are realistic environments designed to create links between technology developers and end-users (i.e. mostly older adults). Research in LLH (Living labs in health) covers a wide range of studies from non-interventional studies to CT (clinical trials) and should involve patients with neurocognitive disorders. However, the ethical issues raised by the design, development, and implementation of research and development projects in LLH have been the subject of only little interest thus far. Objective Our aim was to determine a pragmatic, ethical and regulatory correct approach to seek the informed consent of patients with neurocognitive disorders according to the different types of studies carried out in European LLH, with a focus on the French context. Methods A narrative review of regulatory texts and clinical articles was conducted, and a pragmatic procedure to determine the decision-making capacity of older adults in LLH was proposed. Results Individuals must be adequately informed and freely agree to participate in CT. The capacity to consent should be assessed in CT including cognitively impaired older adults. We propose the following steps: first to assess for delirium using the 4 ‘A’s Test (4AT) or the 3-min Diagnostic interview for Confusion Assessment Method (3D-CAM), second to search for medical history of major neurocognitive disorder, and third to assess the decision capacity using the University of California, San Diego Brief Assessment of Capacity to Consent (UBACC). Conclusions Including individuals with neurocognitive disorders in research implies using an efficient and pragmatic strategy to inform participants and obtain their consent. The tool we offer here may be useful in the routine operation of LLH but can also be extended to all CT with this population.
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Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1186/s13010-021-00101-1
- https://peh-med.biomedcentral.com/counter/pdf/10.1186/s13010-021-00101-1
- OA Status
- gold
- Cited By
- 5
- References
- 60
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W3170731372
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3170731372Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1186/s13010-021-00101-1Digital Object Identifier
- Title
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How to deal with the consent of adults with cognitive impairment involved in European geriatric living labs?Work title
- Type
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reviewOpenAlex work type
- Language
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enPrimary language
- Publication year
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2021Year of publication
- Publication date
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2021-06-16Full publication date if available
- Authors
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Guillaume Sacco, Frédéric Noublanche, F Blazek, Catherine Hue, Loïc Carballido, Marine Asfar, Philippe Allain, Cédric AnnweilerList of authors in order
- Landing page
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https://doi.org/10.1186/s13010-021-00101-1Publisher landing page
- PDF URL
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https://peh-med.biomedcentral.com/counter/pdf/10.1186/s13010-021-00101-1Direct link to full text PDF
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://peh-med.biomedcentral.com/counter/pdf/10.1186/s13010-021-00101-1Direct OA link when available
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Neurocognitive, Informed consent, Context (archaeology), Delirium, Psychology, Clinical trial, Cognition, Medicine, Gerontology, Medical education, Psychiatry, Alternative medicine, Pathology, Paleontology, BiologyTop concepts (fields/topics) attached by OpenAlex
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5Total citation count in OpenAlex
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2025: 1, 2024: 2, 2022: 1, 2021: 1Per-year citation counts (last 5 years)
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60Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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