‘Including us, talking to us and creating a safe environment’—Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learned Article Swipe
Alison Gallagher
,
S. Maria O’Kane
,
Leanne C Doherty
,
Maria Faulkner
,
Gary McDermott
,
Russell Jago
,
Ian M. Lahart
,
Marie Murphy
,
Angela Carlin
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1111/hex.13885
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.1111/hex.13885
Background Young people have the right to be informed and consulted about decisions affecting their lives. Patient and public involvement (PPI) ensures that research is carried out ‘with’ or ‘by’ young people rather than ‘to’, ‘about’ or ‘for’ them. The aim of this paper is to outline how youth PPI can be embedded within a physical activity intervention, reflect on the impact of PPI and provide recommendations for future PPI in a similar context. Methods A Youth Advisory Group (YAG) was set up within the Walking In ScHools (WISH) Study to involve adolescent girls in the delivery, implementation and dissemination of a physical activity intervention targeted at adolescents. Schools invited pupils aged 12–14 years and 15–18 years to YAG meetings ( n 3, from 2019 to 2023). Participative methods were used to inform recruitment strategies and data collection methods for the WISH Study. Results Across the three YAG meetings, n 51 pupils from n 8 schools were involved. Pupils enjoyed the YAG meetings, felt that their feedback was valued and considered the meetings a good way to get young people involved in research. The YAG advised on specific issues and although measuring impact was not the primary aim of the YAG meetings, over the course of the study there were many examples of the impact of PPI. Recruitment targets for the WISH Study were exceeded, the attrition rate was low and pupils were engaged in data collection. Conclusion Youth PPI is a developing field and there are few physical activity studies that report the PPI work undertaken. Within the WISH Study, three YAG meetings were held successfully, and the views of adolescent girls were central to the development of the study. Considering the specific issues that the YAG advised on (study recruitment, attrition and data collection), there was evidence of a positive impact of PPI. Patient or Public Contribution Pupils from post‐primary schools interested/participating in the WISH Study were invited to attend YAG meetings. YAG meetings were set up to consult adolescent girls on the delivery, implementation and dissemination of the WISH intervention.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1111/hex.13885
- https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13885
- OA Status
- gold
- Cited By
- 6
- References
- 58
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4387420836
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4387420836Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1111/hex.13885Digital Object Identifier
- Title
-
‘Including us, talking to us and creating a safe environment’—Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learnedWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2023Year of publication
- Publication date
-
2023-10-06Full publication date if available
- Authors
-
Alison Gallagher, S. Maria O’Kane, Leanne C Doherty, Maria Faulkner, Gary McDermott, Russell Jago, Ian M. Lahart, Marie Murphy, Angela CarlinList of authors in order
- Landing page
-
https://doi.org/10.1111/hex.13885Publisher landing page
- PDF URL
-
https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13885Direct link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13885Direct OA link when available
- Concepts
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Wish, Context (archaeology), Intervention (counseling), Attrition, Data collection, Medical education, Medicine, Physical activity, Public involvement, Psychology, Nursing, Public relations, Political science, Physical therapy, Sociology, Anthropology, Dentistry, Paleontology, Social science, BiologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
6Total citation count in OpenAlex
- Citations by year (recent)
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2025: 2, 2024: 3, 2023: 1Per-year citation counts (last 5 years)
- References (count)
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58Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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| referenced_works | https://openalex.org/W3109916242, https://openalex.org/W2111834333, https://openalex.org/W2145702257, https://openalex.org/W2123840543, https://openalex.org/W2989617484, https://openalex.org/W3108106255, https://openalex.org/W2345522573, https://openalex.org/W2910032966, https://openalex.org/W2587742736, https://openalex.org/W2137035460, https://openalex.org/W2790271799, https://openalex.org/W2150150566, https://openalex.org/W1501945076, https://openalex.org/W2133814743, https://openalex.org/W2897486476, https://openalex.org/W2049504028, https://openalex.org/W2806855542, https://openalex.org/W2925011770, https://openalex.org/W3169946998, https://openalex.org/W2884056514, https://openalex.org/W2765870229, https://openalex.org/W2784720757, https://openalex.org/W2755224985, https://openalex.org/W2789849896, https://openalex.org/W3094294706, https://openalex.org/W1555329372, https://openalex.org/W2038685558, https://openalex.org/W2955195853, https://openalex.org/W2945612606, https://openalex.org/W2908763679, https://openalex.org/W2914408364, https://openalex.org/W2281424990, https://openalex.org/W3013941455, https://openalex.org/W2197344187, https://openalex.org/W2782892081, https://openalex.org/W2739751169, https://openalex.org/W4220835664, https://openalex.org/W2050282766, https://openalex.org/W2119404195, https://openalex.org/W2032015054, https://openalex.org/W2057113781, https://openalex.org/W2908500884, https://openalex.org/W2334175620, https://openalex.org/W2151487996, https://openalex.org/W3213419861, https://openalex.org/W2259261284, https://openalex.org/W3160480038, https://openalex.org/W2944505025, https://openalex.org/W2460297146, https://openalex.org/W2284910741, https://openalex.org/W2085001923, https://openalex.org/W2123524221, https://openalex.org/W3130382031, https://openalex.org/W4327906497, https://openalex.org/W2201573021, https://openalex.org/W4221100460, https://openalex.org/W4387420836, https://openalex.org/W4391947035 |
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