IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey Article Swipe
Ismay A E de Beijer
,
Selina R. van den Oever
,
Eliana Charalambous
,
Giorgio Cangioli
,
Julia Balaguer
,
Edit Bárdi
,
Marie Alfes
,
Adela Cañete
,
Marisa Correcher
,
Tiago Pinto da Costa
,
Alexander Degelsegger-Márquez
,
Vanessa Düster
,
Anna‐Liesa Filbert
,
Desiree Grabow
,
Gerald Gredinger
,
Hannah Gsell
,
Riccardo Haupt
,
Maria Van Helvoirt
,
Ruth Ladenstein
,
Thorsten Langer
,
Anja Laschkolnig
,
Monica Muraca
,
Saskia M. F. Pluijm
,
Jelena Rascon
,
G. Schreier
,
Zuzana Tomášiková
,
Florian Trauner
,
Justas Trinkūnas
,
Kathrin Trunner
,
Anne Uyttebroeck
,
Leontien C.M. Kremer
,
Helena J. H. van der Pal
,
Catherine Chronaki
·
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.2196/49910
YOU?
·
· 2024
· Open Access
·
· DOI: https://doi.org/10.2196/49910
Background To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany. Objective We aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity. Methods IT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs. Results In total, 13/20 (65%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios. Conclusions This study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.2196/49910
- https://www.jmir.org/2024/1/e49910/PDF
- OA Status
- gold
- Cited By
- 4
- References
- 32
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4396579258
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4396579258Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.2196/49910Digital Object Identifier
- Title
-
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital SurveyWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2024Year of publication
- Publication date
-
2024-05-02Full publication date if available
- Authors
-
Ismay A E de Beijer, Selina R. van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bárdi, Marie Alfes, Adela Cañete, Marisa Correcher, Tiago Pinto da Costa, Alexander Degelsegger-Márquez, Vanessa Düster, Anna‐Liesa Filbert, Desiree Grabow, Gerald Gredinger, Hannah Gsell, Riccardo Haupt, Maria Van Helvoirt, Ruth Ladenstein, Thorsten Langer, Anja Laschkolnig, Monica Muraca, Saskia M. F. Pluijm, Jelena Rascon, G. Schreier, Zuzana Tomášiková, Florian Trauner, Justas Trinkūnas, Kathrin Trunner, Anne Uyttebroeck, Leontien C.M. Kremer, Helena J. H. van der Pal, Catherine ChronakiList of authors in order
- Landing page
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https://doi.org/10.2196/49910Publisher landing page
- PDF URL
-
https://www.jmir.org/2024/1/e49910/PDFDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
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goldOpen access status per OpenAlex
- OA URL
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https://www.jmir.org/2024/1/e49910/PDFDirect OA link when available
- Concepts
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Interoperability, eHealth, Survivorship curve, Health care, Health informatics, Digital health, Nursing, Computer science, Psychology, Medicine, Political science, World Wide Web, Environmental health, Public health, Population, LawTop concepts (fields/topics) attached by OpenAlex
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4Total citation count in OpenAlex
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2025: 2, 2024: 2Per-year citation counts (last 5 years)
- References (count)
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32Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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