Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trial Article Swipe
Sumedha Verma
,
Prerna Varma
,
Aimee Brown
,
Bei Bei
,
Rosemary Gibson
,
Tom Valenta
,
Ann Pietsch
,
Marina Cavuoto
,
Mark Woodward
,
Susan M. McCurry
,
Melinda L. Jackson
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.7717/peerj.16543
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.7717/peerj.16543
Background Disturbed sleep is common among people living with dementia and their informal caregivers, and is associated with negative health outcomes. Dyadic, multi-modal interventions targeting caregiver and care-recipient sleep have been recommended yet remain limited. This protocol details the development of a single-arm feasibility trial of a multi-modal, therapist-led, six-week intervention targeting sleep disturbance in dyads of people living with dementia and their primary caregiver. Methods We aim to recruit 24 co-residing, community-dwelling dyads of people living with dementia and their primary informal caregiver ( n = 48) with sleep concerns (Pittsburgh Sleep Quality Index ≥5 for caregivers, and caregiver-endorsed sleep concerns for the person living with dementia). People who live in residential care settings, are employed in night shift work, or are diagnosed with current, severe mental health conditions or narcolepsy, will be excluded. Participants will wear an actigraph and complete sleep diaries for two weeks prior, and during the last two weeks, of active intervention. The intervention is therapist-led and includes a mix of weekly small group video sessions and personalised, dyadic sessions (up to 90 min each) over six weeks. Sessions are supported by a 37-page workbook offering strategies and spaces for reflections/notes. Primary feasibility outcomes are caregiver: session attendance, attrition, and self-reported project satisfaction. Secondary outcomes include dyadic self-reported and objectively-assessed sleep, depression and anxiety symptoms, quality of life, and social support. Self-report outcomes will be assessed at pre- and post-intervention. Discussion If feasible, this intervention could be tested in a larger randomised controlled trial to investigate its efficacy, and, upon further testing, may potentially represent a non-pharmacological approach to reduce sleep disturbance among people living with dementia and their caregivers. ANZCTR Trial registration ACTRN12622000144718: https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=382960&showOriginal=true&isReview=true
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Concepts
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.7717/peerj.16543
- OA Status
- gold
- Cited By
- 1
- References
- 56
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4389741830
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4389741830Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.7717/peerj.16543Digital Object Identifier
- Title
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Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trialWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2023Year of publication
- Publication date
-
2023-12-14Full publication date if available
- Authors
-
Sumedha Verma, Prerna Varma, Aimee Brown, Bei Bei, Rosemary Gibson, Tom Valenta, Ann Pietsch, Marina Cavuoto, Mark Woodward, Susan M. McCurry, Melinda L. JacksonList of authors in order
- Landing page
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https://doi.org/10.7717/peerj.16543Publisher landing page
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YesWhether a free full text is available
- OA status
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goldOpen access status per OpenAlex
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https://doi.org/10.7717/peerj.16543Direct OA link when available
- Concepts
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Dementia, Intervention (counseling), Attendance, Psychological intervention, Quality of life (healthcare), Sleep disorder, Medicine, Caregiver burden, Psychology, Anxiety, Gerontology, Physical therapy, Psychiatry, Clinical psychology, Insomnia, Nursing, Disease, Economics, Economic growth, PathologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
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1Total citation count in OpenAlex
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2024: 1Per-year citation counts (last 5 years)
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56Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.caregiver. | 64 |
| abstract_inverted_index.caregiver: | 200 |
| abstract_inverted_index.conditions | 129 |
| abstract_inverted_index.controlled | 247 |
| abstract_inverted_index.dementia). | 107 |
| abstract_inverted_index.depression | 216 |
| abstract_inverted_index.randomised | 246 |
| abstract_inverted_index.single-arm | 42 |
| abstract_inverted_index.strategies | 191 |
| abstract_inverted_index.(Pittsburgh | 91 |
| abstract_inverted_index.Self-report | 226 |
| abstract_inverted_index.attendance, | 202 |
| abstract_inverted_index.caregivers, | 13, 97 |
| abstract_inverted_index.caregivers. | 274 |
| abstract_inverted_index.development | 39 |
| abstract_inverted_index.disturbance | 53, 266 |
| abstract_inverted_index.feasibility | 43, 197 |
| abstract_inverted_index.investigate | 250 |
| abstract_inverted_index.multi-modal | 22 |
| abstract_inverted_index.narcolepsy, | 131 |
| abstract_inverted_index.potentially | 258 |
| abstract_inverted_index.recommended | 31 |
| abstract_inverted_index.residential | 112 |
| abstract_inverted_index.Participants | 135 |
| abstract_inverted_index.co-residing, | 71 |
| abstract_inverted_index.intervention | 50, 158, 239 |
| abstract_inverted_index.multi-modal, | 47 |
| abstract_inverted_index.registration | 277 |
| abstract_inverted_index.intervention. | 156 |
| abstract_inverted_index.interventions | 23 |
| abstract_inverted_index.personalised, | 172 |
| abstract_inverted_index.satisfaction. | 207 |
| abstract_inverted_index.self-reported | 205, 212 |
| abstract_inverted_index.therapist-led | 160 |
| abstract_inverted_index.care-recipient | 27 |
| abstract_inverted_index.therapist-led, | 48 |
| abstract_inverted_index.caregiver-endorsed | 99 |
| abstract_inverted_index.community-dwelling | 72 |
| abstract_inverted_index.post-intervention. | 234 |
| abstract_inverted_index.reflections/notes. | 195 |
| abstract_inverted_index.non-pharmacological | 261 |
| abstract_inverted_index.ACTRN12622000144718: | 278 |
| abstract_inverted_index.objectively-assessed | 214 |
| abstract_inverted_index.https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=382960&showOriginal=true&isReview=true | 279 |
| cited_by_percentile_year.max | 94 |
| cited_by_percentile_year.min | 90 |
| countries_distinct_count | 3 |
| institutions_distinct_count | 11 |
| citation_normalized_percentile.value | 0.63799025 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | False |