‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting Article Swipe
Yakubu Salifu
,
Kathryn Almack
,
Glenys Caswell
·
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1177/0269216320951107
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1177/0269216320951107
Background: Family caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, where there are increasing palliative cases without adequate palliative care institutions. Aim: The study explored palliative and end-of-life care experiences of family caregivers and patients living at home in a resource-poor context in Ghana. Design: This is a qualitative study using thematic analysis of face-to-face interviews at two-time points. Participants: Men living with advanced prostate cancer ( n = 23), family caregivers ( n = 23), healthcare professionals ( n = 12). Findings: Men with advanced prostate cancer face complex issues, including lack of access to professional care and a lack of resources for homecare. Family caregivers do not have easy access to professional support; they often have limited knowledge of disease progression. Patients have inadequate access to medication and other practical resources for homecare. Caregivers may be overburdened and perform the role of the patient’s ‘doctor’ at home-assessing patient’s symptoms, administering drugs, and providing hands-on care. Conclusion: Home-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1177/0269216320951107
- https://journals.sagepub.com/doi/pdf/10.1177/0269216320951107
- OA Status
- hybrid
- Cited By
- 71
- References
- 75
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W3087534975
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3087534975Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.1177/0269216320951107Digital Object Identifier
- Title
-
‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor settingWork title
- Type
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articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2020Year of publication
- Publication date
-
2020-09-18Full publication date if available
- Authors
-
Yakubu Salifu, Kathryn Almack, Glenys CaswellList of authors in order
- Landing page
-
https://doi.org/10.1177/0269216320951107Publisher landing page
- PDF URL
-
https://journals.sagepub.com/doi/pdf/10.1177/0269216320951107Direct link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
hybridOpen access status per OpenAlex
- OA URL
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https://journals.sagepub.com/doi/pdf/10.1177/0269216320951107Direct OA link when available
- Concepts
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Palliative care, Medicine, Family caregivers, Thematic analysis, Context (archaeology), Nursing, Resource (disambiguation), Qualitative research, Health care, Family medicine, Social science, Computer science, Paleontology, Sociology, Biology, Economic growth, Economics, Computer networkTop concepts (fields/topics) attached by OpenAlex
- Cited by
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71Total citation count in OpenAlex
- Citations by year (recent)
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2025: 14, 2024: 16, 2023: 25, 2022: 11, 2021: 5Per-year citation counts (last 5 years)
- References (count)
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75Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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