Patient-generated health data and electronic health record integration: a scoping review Article Swipe
Victoria L. Tiase
,
William Hull
,
Mary McFarland
,
Katherine Sward
,
Guilherme Del Fiol
,
Catherine J. Staes
,
Charlene Weir
,
Mollie Cummins
·
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1093/jamiaopen/ooaa052
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1093/jamiaopen/ooaa052
Objectives Patient-generated health data (PGHD) are clinically relevant data captured by patients outside of the traditional care setting. Clinical use of PGHD has emerged as an essential issue. This study explored the evidence to determine the extent of and describe the characteristics of PGHD integration into electronic health records (EHRs). Methods In August 2019, we conducted a systematic scoping review. We included studies with complete, partial, or in-progress PGHD and EHR integration within a clinical setting. The retrieved articles were screened for eligibility by 2 researchers, and data from eligible articles were abstracted, coded, and analyzed. Results A total of 19 studies met inclusion criteria after screening 9463 abstracts. Most of the study designs were pilots and all were published between 2013 and 2019. Types of PGHD were biometric and patient activity (57.9%), questionnaires and surveys (36.8%), and health history (5.3%). Diabetes was the most common patient condition (42.1%) for PGHD collection. Active integration (57.9%) was slightly more common than passive integration (31.6%). We categorized emergent themes into the 3 steps of PGHD flow. Themes emerged concerning resource requirements, data delivery to the EHR, and preferences for review. Discussion PGHD integration into EHRs appears to be at an early stage. PGHD have the potential to close health care gaps and support personalized medicine. Efforts are needed to understand how to optimize PGHD integration into EHRs considering resources, standards for EHR delivery, and clinical workflows.
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Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1093/jamiaopen/ooaa052
- OA Status
- gold
- Cited By
- 80
- References
- 46
- Related Works
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- OpenAlex ID
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All OpenAlex metadata
Raw OpenAlex JSON
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https://openalex.org/W3109446994Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1093/jamiaopen/ooaa052Digital Object Identifier
- Title
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Patient-generated health data and electronic health record integration: a scoping reviewWork title
- Type
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reviewOpenAlex work type
- Language
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enPrimary language
- Publication year
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2020Year of publication
- Publication date
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2020-11-24Full publication date if available
- Authors
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Victoria L. Tiase, William Hull, Mary McFarland, Katherine Sward, Guilherme Del Fiol, Catherine J. Staes, Charlene Weir, Mollie CumminsList of authors in order
- Landing page
-
https://doi.org/10.1093/jamiaopen/ooaa052Publisher landing page
- Open access
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YesWhether a free full text is available
- OA status
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goldOpen access status per OpenAlex
- OA URL
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https://doi.org/10.1093/jamiaopen/ooaa052Direct OA link when available
- Concepts
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Workflow, Health records, Data collection, Data integration, Electronic health record, Resource (disambiguation), Health care, Data science, Medicine, Computer science, Data mining, Database, Statistics, Computer network, Economics, Mathematics, Economic growthTop concepts (fields/topics) attached by OpenAlex
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2025: 19, 2024: 21, 2023: 17, 2022: 15, 2021: 7Per-year citation counts (last 5 years)
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10Other works algorithmically related by OpenAlex
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