Practices of Care in Participatory Design With Older Adults During the COVID-19 Pandemic: Digitally Mediated Study Article Swipe
Richard Paluch
,
Kateřina Černá
,
Dennis Kirschsieper
,
Cláudia Müller
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.2196/45750
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.2196/45750
Background Participatory Design (PD), albeit an established approach in User-Centered Design, comes with specific challenges when working with older adults as research participants. Addressing these challenges relates to the reflection and negotiation of the positionalities of the researchers and research participants and includes various acts of giving and receiving help. During the COVID-19 pandemic, facets of positionalities and (mutual) care became particularly evident in qualitative and participatory research settings. Objective The aim of this paper was to systematically analyze care practices of participatory (design) research, which are to different extents practices of the latter. Using a multiyear PD project with older people that had to take place remotely over many months, we specify different practices of care; how they relate to collaborative work in the design project; and represent foundational practices for sustainable, long-term co-design. Our research questions were “How can digitally-mediated PD work during COVID-19 and can we understand such digital PD as ‘care’?” Methods Our data comes from the Joint Programming Initiative “More Years, Better Lives” (JPI MYBL), a European Union project that aims to promote digital literacy and technology appropriation among older adults in domestic settings. It targeted the cocreation, by older adults and university researchers, of a mobile demo kit website with cocreated resources, aimed at improving the understanding of use options of digital tools. Through a series of workshops, a range of current IT products was explored by a group of 21 older adults, which served as the basis for joint cocreative work on generating design ideas and prototypes. We reflect on the PD process and examine how the actors enact and manifest care. Results The use of digital technology allowed the participatory project to continue during the COVID-19 pandemic and accentuated the digital skills of older adults and the improvement of digital literacy as part of “care.” We provide empirically based evidence of PD with older adults developing digital literacy and sensitizing concepts, based on the notion of care by Tronto for differentiating aspects and processes of care. The data suggest that it is not enough to focus solely on the technologies and how they are used; it is also necessary to focus on the social structures in which help is available and in which technologies offer opportunities to do care work. Conclusions We document that the cocreation of different digital media tools can be used to provide a community with mutual care. Our study demonstrates how research participants effectively enact different forms of care and how such “care” is a necessary basis for a genuinely participatory approach, which became especially meaningful as a form of support during COVID-19. We reflect on how notions of “care” and “caring” that were central to the pandemic response are also central to PD.
Related Topics
Concepts
Participatory design
Participatory action research
Appropriation
Citizen journalism
Work (physics)
Digital literacy
Health care
Medical education
Psychology
Public relations
Nursing
Sociology
Medicine
Computer science
Engineering
Political science
Pedagogy
World Wide Web
Anthropology
Philosophy
Mechanical engineering
Law
Linguistics
Parallels
Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.2196/45750
- https://www.jmir.org/2023/1/e45750/PDF
- OA Status
- gold
- Cited By
- 4
- References
- 55
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4384561338
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4384561338Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.2196/45750Digital Object Identifier
- Title
-
Practices of Care in Participatory Design With Older Adults During the COVID-19 Pandemic: Digitally Mediated StudyWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2023Year of publication
- Publication date
-
2023-07-17Full publication date if available
- Authors
-
Richard Paluch, Kateřina Černá, Dennis Kirschsieper, Cláudia MüllerList of authors in order
- Landing page
-
https://doi.org/10.2196/45750Publisher landing page
- PDF URL
-
https://www.jmir.org/2023/1/e45750/PDFDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://www.jmir.org/2023/1/e45750/PDFDirect OA link when available
- Concepts
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Participatory design, Participatory action research, Appropriation, Citizen journalism, Work (physics), Digital literacy, Health care, Medical education, Psychology, Public relations, Nursing, Sociology, Medicine, Computer science, Engineering, Political science, Pedagogy, World Wide Web, Anthropology, Philosophy, Mechanical engineering, Law, Linguistics, ParallelsTop concepts (fields/topics) attached by OpenAlex
- Cited by
-
4Total citation count in OpenAlex
- Citations by year (recent)
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2025: 2, 2024: 2Per-year citation counts (last 5 years)
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55Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.participants. | 22 |
| abstract_inverted_index.participatory | 66, 82, 277, 422 |
| abstract_inverted_index.understanding | 212 |
| abstract_inverted_index.systematically | 77 |
| abstract_inverted_index.‘care’?” | 154 |
| abstract_inverted_index.differentiating | 328 |
| abstract_inverted_index.positionalities | 34, 56 |
| abstract_inverted_index.digitally-mediated | 141 |
| cited_by_percentile_year.max | 97 |
| cited_by_percentile_year.min | 94 |
| corresponding_author_ids | https://openalex.org/A5074301480 |
| countries_distinct_count | 2 |
| institutions_distinct_count | 4 |
| corresponding_institution_ids | https://openalex.org/I206895457 |
| sustainable_development_goals[0].id | https://metadata.un.org/sdg/4 |
| sustainable_development_goals[0].score | 0.8299999833106995 |
| sustainable_development_goals[0].display_name | Quality Education |
| citation_normalized_percentile.value | 0.9372398 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | True |