Profiles of eHealth Adoption in Persons with Multiple Sclerosis and Their Caregivers Article Swipe
Rocco Haase
,
Isabel Voigt
,
Maria Scholz
,
Hannes Schlieter
,
Martin Benedict
,
Marcel Susky
,
Anja Dillenseger
,
Tjalf Ziemssen
·
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3390/brainsci11081087
YOU?
·
· 2021
· Open Access
·
· DOI: https://doi.org/10.3390/brainsci11081087
(1) Background: Persons with multiple sclerosis (pwMS) are often characterized as ideal adopters of new digital healthcare trends, but it is worth thinking about whether and which pwMS will be targeted and served by a particular eHealth service like a patient portal. With our study, we wanted to explore needs and barriers for subgroups of pwMS and their caregivers when interacting with eHealth services in care and daily living. (2) Methods: This study comprises results from two surveys: one collecting data from pwMS and their relatives (as informal caregivers) and another one providing information on the opinions and attitudes of healthcare professionals (HCPs). Data were analyzed descriptively and via generalized linear models. (3) Results: 185 pwMS, 25 informal caregivers, and 24 HCPs in the field of MS participated. Nine out of ten pwMS used information technology on a daily base. Individual impairments like in vision and cognition resulted in individual needs like the desire to actively monitor their disease course or communicate with their physician in person. HCPs reported that a complete medication overview, additional medication information, overview of future visits and a reminder of medication intake would be very helpful eHealth features for pwMS, while they themselves preferred features organizing and enriching future visits. (4) Conclusions: A closer look at the various profiles of eHealth adoption in pwMS and their caregivers indicated that there is a broad and robust enthusiasm across several subgroups that does not exclude anyone in general, but constitutes specific areas of interest. For pwMS, the focus was on eHealth services that connect previously collected information and make them easily accessible and understandable.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3390/brainsci11081087
- https://www.mdpi.com/2076-3425/11/8/1087/pdf
- OA Status
- gold
- Cited By
- 21
- References
- 31
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W3194262772
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W3194262772Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.3390/brainsci11081087Digital Object Identifier
- Title
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Profiles of eHealth Adoption in Persons with Multiple Sclerosis and Their CaregiversWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2021Year of publication
- Publication date
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2021-08-18Full publication date if available
- Authors
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Rocco Haase, Isabel Voigt, Maria Scholz, Hannes Schlieter, Martin Benedict, Marcel Susky, Anja Dillenseger, Tjalf ZiemssenList of authors in order
- Landing page
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https://doi.org/10.3390/brainsci11081087Publisher landing page
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https://www.mdpi.com/2076-3425/11/8/1087/pdfDirect link to full text PDF
- Open access
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://www.mdpi.com/2076-3425/11/8/1087/pdfDirect OA link when available
- Concepts
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eHealth, Patient portal, Enthusiasm, Medicine, Service (business), Health care, Health professionals, Nursing, Psychology, Social psychology, Economic growth, Economics, EconomyTop concepts (fields/topics) attached by OpenAlex
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21Total citation count in OpenAlex
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2025: 5, 2024: 7, 2023: 3, 2022: 4, 2021: 2Per-year citation counts (last 5 years)
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31Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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