Recruiting diversity where it exists: The Alabama Genomic Health Initiative Article Swipe
Thomas May
,
Ashley Cannon
,
Irene Moss
,
Mariko Nakano‐Okuno
,
Sharonda Hardy
,
Edrika L. Miskell
,
Whitley V. Kelley
,
William A. Curry
,
Kelly M. East
,
Aras Acemgil
,
Julie Schach
,
Stephen Sodeke
,
Mona N. Fouad
,
Robert D. Johnson
,
James J. Cimino
,
Jaimie L. Richards
,
Sara J. Knight
,
Bruce R. Korf
·
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1002/jgc4.1258
YOU?
·
· 2020
· Open Access
·
· DOI: https://doi.org/10.1002/jgc4.1258
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%–27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.1002/jgc4.1258
- OA Status
- green
- Cited By
- 17
- References
- 23
- Related Works
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- OpenAlex ID
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All OpenAlex metadata
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https://openalex.org/W3013264901Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1002/jgc4.1258Digital Object Identifier
- Title
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Recruiting diversity where it exists: The Alabama Genomic Health InitiativeWork title
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2020Year of publication
- Publication date
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2020-03-27Full publication date if available
- Authors
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Thomas May, Ashley Cannon, Irene Moss, Mariko Nakano‐Okuno, Sharonda Hardy, Edrika L. Miskell, Whitley V. Kelley, William A. Curry, Kelly M. East, Aras Acemgil, Julie Schach, Stephen Sodeke, Mona N. Fouad, Robert D. Johnson, James J. Cimino, Jaimie L. Richards, Sara J. Knight, Bruce R. KorfList of authors in order
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https://doi.org/10.1002/jgc4.1258Publisher landing page
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YesWhether a free full text is available
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greenOpen access status per OpenAlex
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https://www.ncbi.nlm.nih.gov/pmc/articles/7484696Direct OA link when available
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Public health, Diversity (politics), Genomic medicine, Human genetics, Medicine, Genetic counseling, Family medicine, Genetics, Biology, Sociology, Nursing, Computational biology, Gene, AnthropologyTop concepts (fields/topics) attached by OpenAlex
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17Total citation count in OpenAlex
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2025: 1, 2024: 5, 2023: 4, 2022: 4, 2021: 1Per-year citation counts (last 5 years)
- References (count)
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23Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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| abstract_inverted_index.resulted | 47 |
| abstract_inverted_index.testing. | 15 |
| abstract_inverted_index.Alabama's | 73 |
| abstract_inverted_index.community | 25, 68 |
| abstract_inverted_index.diversity | 3 |
| abstract_inverted_index.exceeding | 83 |
| abstract_inverted_index.Americans. | 87 |
| abstract_inverted_index.Initiative | 23 |
| abstract_inverted_index.engagement | 26, 41, 95 |
| abstract_inverted_index.percentage | 71 |
| abstract_inverted_index.population | 75 |
| abstract_inverted_index.strategies | 27 |
| abstract_inverted_index.techniques | 42 |
| abstract_inverted_index.disparities | 10 |
| abstract_inverted_index.improvement | 50 |
| abstract_inverted_index.populations | 31, 100 |
| abstract_inverted_index.recruitment | 44, 97 |
| abstract_inverted_index.significant | 49 |
| abstract_inverted_index.strategies, | 45 |
| abstract_inverted_index.(26%–27%), | 76 |
| abstract_inverted_index.demonstrates | 91 |
| abstract_inverted_index.participants | 7 |
| abstract_inverted_index.participants. | 56 |
| abstract_inverted_index.participation | 60 |
| abstract_inverted_index.representation | 52, 65, 82 |
| cited_by_percentile_year.max | 98 |
| cited_by_percentile_year.min | 89 |
| corresponding_author_ids | https://openalex.org/A5013133362 |
| countries_distinct_count | 1 |
| institutions_distinct_count | 18 |
| corresponding_institution_ids | https://openalex.org/I137317281, https://openalex.org/I4210145894, https://openalex.org/I97610503 |
| citation_normalized_percentile.value | 0.86116803 |
| citation_normalized_percentile.is_in_top_1_percent | False |
| citation_normalized_percentile.is_in_top_10_percent | False |