Supplementary Material for: The University of California, San Francisco Documentation System for Retinoblastoma: Preparing to Improve Staging Methods for This Disease Article Swipe
Bertil Damato
,
Armin R. Afshar
,
Everett Lee
,
Anuradha Banerjee
,
Steven W. Hetts
·
YOU?
·
· 2018
· Open Access
·
· DOI: https://doi.org/10.6084/m9.figshare.6530951
YOU?
·
· 2018
· Open Access
·
· DOI: https://doi.org/10.6084/m9.figshare.6530951
Background/Aims: Current retinoblastoma staging systems do not adequately describe the disease, especially in eyes with multiple tumors. The aims of this study were to develop methods for documenting individual tumors and to score disease burden over time. Methods: A coding system was devised to describe each tumor according to affected eye, meridian, anteroposterior location, activity, growth pattern, type of seed, and treatment. A scoring system for quantifying disease burden was developed, taking account of tumor number, size, spread, and secondary effects on the eye. Results: Our coding system allowed contemporaneous tumor documentation, producing datasets that enabled generation of fundus diagrams, Kaplan-Meier curves, and tables summarizing disease progression in individual tumors and eyes. Our data showed disparities between ocular and tumor documentation, e.g., indicating earlier tumor development in the left eye but younger age at presentation if disease was worse in the right eye. Actuarial rates of local treatment failure were lower when individual tumors were analyzed than when data were reported in terms of whole eyes. Conclusion: Our methods for documenting individual retinoblastomas have facilitated the review of patients’ progress in our routine practice and may provide data that could be used to refine retinoblastoma classifications in the future.
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Metadata
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- en
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- OA Status
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- OpenAlex ID
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All OpenAlex metadata
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https://openalex.org/W4394422594Canonical identifier for this work in OpenAlex
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https://doi.org/10.6084/m9.figshare.6530951Digital Object Identifier
- Title
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Supplementary Material for: The University of California, San Francisco Documentation System for Retinoblastoma: Preparing to Improve Staging Methods for This DiseaseWork title
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datasetOpenAlex work type
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enPrimary language
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2018Year of publication
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2018-01-01Full publication date if available
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Bertil Damato, Armin R. Afshar, Everett Lee, Anuradha Banerjee, Steven W. HettsList of authors in order
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https://doi.org/10.6084/m9.figshare.6530951Publisher landing page
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://doi.org/10.6084/m9.figshare.6530951Direct OA link when available
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Documentation, Retinoblastoma, Staging system, Medicine, Gerontology, Library science, Computer science, Operating system, Internal medicine, Biology, Cancer, Gene, BiochemistryTop concepts (fields/topics) attached by OpenAlex
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0Total citation count in OpenAlex
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10Other works algorithmically related by OpenAlex
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