The International/Canadian Hereditary Angioedema Guideline Article Swipe
Stephen Betschel
,
Jacquie Badiou
,
Karen Binkley
,
Rozita Borici‐Mazi
,
Jacques Hébert
,
Amin Kanani
,
Paul K. Keith
,
Gina Lacuesta
,
Susan Waserman
,
Bill Yang
,
Emel Aygören‐Pürsün
,
Jonathan A. Bernstein
,
Konrad Bork
,
Teresa Caballero
,
Marco Cicardi
,
Timothy Craig
,
Henriette Farkas
,
Anete Sevciovic Grumach
,
Connie Katelaris
,
Hilary Longhurst
,
Marc A. Riedl
,
Bruce L. Zuraw
,
Magdelena Berger
,
Jean-Nicolas Boursiquot
,
Henrik Balle Boysen
,
Anthony J. Castaldo
,
Hugo Chapdelaine
,
Lori Connors
,
Lisa Fu
,
Dawn Goodyear
,
Alison Haynes
,
Palinder Kamra
,
Harold Kim
,
Kelly Lang‐Robertson
,
Eric Leith
,
Christine McCusker
,
Bill Moote
,
Andrew O’Keefe
,
Ibraheem Othman
,
Man-Chiu Poon
,
Bruce Ritchie
,
Charles St-Pierre
,
Donald Stark
,
Ellie Tsai
·
YOU?
·
· 2019
· Open Access
·
· DOI: https://doi.org/10.1186/s13223-019-0376-8
YOU?
·
· 2019
· Open Access
·
· DOI: https://doi.org/10.1186/s13223-019-0376-8
This is an update to the 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of hereditary angioedema (HAE) patients worldwide. It is a collaboration of Canadian and international HAE experts and patient groups led by the Canadian Hereditary Angioedema Network. The objective of this guideline is to provide evidence-based recommendations, using the GRADE system, for the management of patients with HAE. This includes the treatment of attacks, short-term prophylaxis, long-term prophylaxis, and recommendations for self-administration, individualized therapy, quality of life, and comprehensive care. New to the 2019 version of this guideline are sections covering the diagnosis and recommended therapies for acute treatment in HAE patients with normal C1-INH, as well as sections on pregnant and paediatric patients, patient associations and an HAE registry. Hereditary angioedema results in random and often unpredictable attacks of painful swelling typically affecting the extremities, bowel mucosa, genitals, face and upper airway. Attacks are associated with significant functional impairment, decreased health-related quality of life, and mortality in the case of laryngeal attacks. Caring for patients with HAE can be challenging due to the complexity of this disease. The care of patients with HAE in Canada, as in many countries, continues to be neither optimal nor uniform. It lags behind some other countries where there are more organized models for HAE management, and greater availability of additional licensed therapeutic options. It is anticipated that providing this guideline to caregivers, policy makers, patients, and advocates will not only optimize the management of HAE, but also promote the importance of individualized care. The primary target users of this guideline are healthcare providers who are managing patients with HAE. Other healthcare providers who may use this guideline are emergency and intensive care physicians, primary care physicians, gastroenterologists, dentists, otolaryngologists, paediatricians, and gynaecologists who will encounter patients with HAE and need to be aware of this condition. Hospital administrators, insurers and policy makers may also find this guideline helpful.
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Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1186/s13223-019-0376-8
- https://aacijournal.biomedcentral.com/track/pdf/10.1186/s13223-019-0376-8
- OA Status
- gold
- Cited By
- 187
- References
- 166
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W2989863136
All OpenAlex metadata
Raw OpenAlex JSON
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https://openalex.org/W2989863136Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1186/s13223-019-0376-8Digital Object Identifier
- Title
-
The International/Canadian Hereditary Angioedema GuidelineWork title
- Type
-
reviewOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2019Year of publication
- Publication date
-
2019-11-25Full publication date if available
- Authors
-
Stephen Betschel, Jacquie Badiou, Karen Binkley, Rozita Borici‐Mazi, Jacques Hébert, Amin Kanani, Paul K. Keith, Gina Lacuesta, Susan Waserman, Bill Yang, Emel Aygören‐Pürsün, Jonathan A. Bernstein, Konrad Bork, Teresa Caballero, Marco Cicardi, Timothy Craig, Henriette Farkas, Anete Sevciovic Grumach, Connie Katelaris, Hilary Longhurst, Marc A. Riedl, Bruce L. Zuraw, Magdelena Berger, Jean-Nicolas Boursiquot, Henrik Balle Boysen, Anthony J. Castaldo, Hugo Chapdelaine, Lori Connors, Lisa Fu, Dawn Goodyear, Alison Haynes, Palinder Kamra, Harold Kim, Kelly Lang‐Robertson, Eric Leith, Christine McCusker, Bill Moote, Andrew O’Keefe, Ibraheem Othman, Man-Chiu Poon, Bruce Ritchie, Charles St-Pierre, Donald Stark, Ellie TsaiList of authors in order
- Landing page
-
https://doi.org/10.1186/s13223-019-0376-8Publisher landing page
- PDF URL
-
https://aacijournal.biomedcentral.com/track/pdf/10.1186/s13223-019-0376-8Direct link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://aacijournal.biomedcentral.com/track/pdf/10.1186/s13223-019-0376-8Direct OA link when available
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Hereditary angioedema, Guideline, Medicine, Angioedema, Intensive care medicine, Disease, Quality of life (healthcare), Dermatology, Nursing, Internal medicine, PathologyTop concepts (fields/topics) attached by OpenAlex
- Cited by
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187Total citation count in OpenAlex
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2025: 26, 2024: 24, 2023: 27, 2022: 26, 2021: 48Per-year citation counts (last 5 years)
- References (count)
-
166Number of works referenced by this work
- Related works (count)
-
10Other works algorithmically related by OpenAlex
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