Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional survey Article Swipe
Chee Mun Chan
,
Amir Hamzah Abdul Latiff
,
Lokman Mohd Noh
,
Intan Hakimah Ismail
,
Intan Juliana Abd Hamid
,
Woei Kang Liew
,
Youjia Zhong
,
Narissara Suratannon
,
Rapisa Nantanee
,
Fatima Johanna Santos-Ocampo
,
Mary Anne R. Castor
,
Le Nguyen-Ngoc-Quynh
,
Anh Thi Van Nguyen
,
Huyen Thanh Thuc
,
Nguyễn Minh Tuấn
,
Dina Muktiarti
,
Rizqi Amalia
,
Sophâl Chean
,
Lytheang Try
,
Adli Ali
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.3389/fimmu.2023.1209315
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.3389/fimmu.2023.1209315
Introduction With increased diagnostic capabilities and treatment modalities in the field of primary immunodeficiencies (PID), many pediatric patients survive beyond childhood and experience a change of care to the adult-oriented healthcare system. Unfortunately, the transition pathways for PID are less clearly defined, resulting in deterioration of quality of care in adulthood. Hence, this is the first regional study to address PID clinicians’ opinions on practices and challenges of transition care in 7 Southeast Asia (SEA) countries. Methods We adopted a cross-sectional study design through an online survey platform to enquire opinions of transition practices from expert representatives in 7 SEA countries. Results Regionally, 3 out 7 countries reported having no practice of transition care. Among cited challenges were reluctant adaptation by patients and caregivers to unfamiliarized adult healthcare systems, inadequate ratio of adult immunologists to patients and lack of facilities for transfer. Discussion and conclusion Our study provides evidence to advocate policy makers on the importance of standardized integration of transition practice towards betterment of transiting PID patients into adulthood.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3389/fimmu.2023.1209315
- https://www.frontiersin.org/articles/10.3389/fimmu.2023.1209315/pdf
- OA Status
- gold
- Cited By
- 8
- References
- 31
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4384340923
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4384340923Canonical identifier for this work in OpenAlex
- DOI
-
https://doi.org/10.3389/fimmu.2023.1209315Digital Object Identifier
- Title
-
Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional surveyWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2023Year of publication
- Publication date
-
2023-07-13Full publication date if available
- Authors
-
Chee Mun Chan, Amir Hamzah Abdul Latiff, Lokman Mohd Noh, Intan Hakimah Ismail, Intan Juliana Abd Hamid, Woei Kang Liew, Youjia Zhong, Narissara Suratannon, Rapisa Nantanee, Fatima Johanna Santos-Ocampo, Mary Anne R. Castor, Le Nguyen-Ngoc-Quynh, Anh Thi Van Nguyen, Huyen Thanh Thuc, Nguyễn Minh Tuấn, Dina Muktiarti, Rizqi Amalia, Sophâl Chean, Lytheang Try, Adli AliList of authors in order
- Landing page
-
https://doi.org/10.3389/fimmu.2023.1209315Publisher landing page
- PDF URL
-
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1209315/pdfDirect link to full text PDF
- Open access
-
YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
- OA URL
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https://www.frontiersin.org/articles/10.3389/fimmu.2023.1209315/pdfDirect OA link when available
- Concepts
-
Modalities, Health care, Southeast asia, Medicine, Family medicine, Adult care, Transition (genetics), Quality (philosophy), Young adult, Nursing, Political science, Pediatrics, Gerontology, Sociology, Ethnology, Gene, Epistemology, Social science, Biochemistry, Philosophy, Law, ChemistryTop concepts (fields/topics) attached by OpenAlex
- Cited by
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8Total citation count in OpenAlex
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2025: 3, 2024: 4, 2023: 1Per-year citation counts (last 5 years)
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31Number of works referenced by this work
- Related works (count)
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10Other works algorithmically related by OpenAlex
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