Treatment burden in multiple long-term conditions: a mixed-methods study protocol Article Swipe
Rachel Johnson
,
Anastasiia G. Kovalenko
,
Thomas Blakeman
,
Maria Panagioti
,
Michael Lawton
,
Shoba Dawson
,
Polly Duncan
,
Simon Fraser
,
José M Valderas
,
Simon Chilcott
,
Rebecca Goulding
,
Chris Salisbury
·
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.3399/bjgpo.2023.0097
YOU?
·
· 2023
· Open Access
·
· DOI: https://doi.org/10.3399/bjgpo.2023.0097
Background Treatment burden represents the work patients undertake because of their health care, and the impact of that effort on the patient. Most research has focused on older adults (aged >65 years) with multiple long-term conditions (multimorbidity) (MLTC-M), but there are now more younger adults (aged 18–65 years) living with MLTC-M and they may experience treatment burden differently. Understanding experiences of treatment burden, and identifying those most at risk of high treatment burden, are important for designing primary care services to meet their needs. Aim To understand the treatment burden associated with MLTC-M, for people aged 18–65 years, and how primary care services affect this burden. Design & setting Mixed-methods study in up to 33 primary care practices in two UK regions. Method The following two approaches will be used: (i) in-depth qualitative interviews with adults living with MLTC-M (approximately 40 participants) to understand their experiences of treatment burden and the impact of primary care, with a think-aloud aspect to explore face validity of a novel short treatment burden questionnaire (STBQ) for routine clinical use in the initial 15 interviews; (ii) cross-sectional patient survey (approximately 1000 participants), with linked routine medical record data to examine the factors associated with treatment burden for people living with MLTC-M, and to test the validity of STBQ. Conclusion This study will generate in-depth understanding of the treatment burden experienced by people aged 18–65 years living with MLTC-M, and how primary care services affect this burden. This will inform further development and testing of interventions to reduce treatment burden, and potentially influence MLTC-M trajectories and improve health outcomes.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.3399/bjgpo.2023.0097
- https://bjgpopen.org/content/bjgpoa/early/2023/06/08/BJGPO.2023.0097.full.pdf
- OA Status
- gold
- Cited By
- 1
- References
- 27
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4379986006
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4379986006Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.3399/bjgpo.2023.0097Digital Object Identifier
- Title
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Treatment burden in multiple long-term conditions: a mixed-methods study protocolWork title
- Type
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articleOpenAlex work type
- Language
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enPrimary language
- Publication year
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2023Year of publication
- Publication date
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2023-06-09Full publication date if available
- Authors
-
Rachel Johnson, Anastasiia G. Kovalenko, Thomas Blakeman, Maria Panagioti, Michael Lawton, Shoba Dawson, Polly Duncan, Simon Fraser, José M Valderas, Simon Chilcott, Rebecca Goulding, Chris SalisburyList of authors in order
- Landing page
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https://doi.org/10.3399/bjgpo.2023.0097Publisher landing page
- PDF URL
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https://bjgpopen.org/content/bjgpoa/early/2023/06/08/BJGPO.2023.0097.full.pdfDirect link to full text PDF
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YesWhether a free full text is available
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goldOpen access status per OpenAlex
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https://bjgpopen.org/content/bjgpoa/early/2023/06/08/BJGPO.2023.0097.full.pdfDirect OA link when available
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Medicine, Face validity, Activities of daily living, Qualitative research, Gerontology, Family medicine, Psychiatry, Clinical psychology, Psychometrics, Sociology, Social scienceTop concepts (fields/topics) attached by OpenAlex
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1Total citation count in OpenAlex
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2024: 1Per-year citation counts (last 5 years)
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10Other works algorithmically related by OpenAlex
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