Utilizing a patient advocacy-led clinical network to engage diverse, community-based sites in implementation-effectiveness research Article Swipe

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Nursing research Health informatics Health administration Medicine Public health Health services research Nursing Quality of Life Research Community-based participatory research Sociology Participatory action research Anthropology

A. Ciupek , Lou-Anne Chichester , Rashmi Acharya , Elizabeth Schofield , A. Criswell , Donna Shelley , Jennifer C. King , Jamie S. Ostroff ·

YOU? · · 2024 · Open Access · · DOI: https://doi.org/10.1186/s12913-024-11376-3 · OA: W4401346291

Our results suggest that this model of field site recruitment leveraging an existing partnership between an academic research team and an informal clinical network maintained by a disease-specific patient advocacy organization can result in engagement of diverse, community-based field sites. Additionally, reported barriers to participation by sites indicate that solutions centered around providing additional resources to enable greater capacity for site staff may increase community-practice participation in research.