Validation and clinical application of the hereditary hemorrhagic telangiectasia-specific quality of life scale Article Swipe
Hanny Al‐Samkari
,
Raj S. Kasthuri
,
Vivek N. Iyer
,
Allyson M. Pishko
,
Jake E. Decker
,
Clifford R. Weiss
,
Kevin J. Whitehead
,
Miles Conrad
,
Marc Zumberg
,
Jenny Y. Zhou
,
Joseph G. Parambil
,
Benjamin Carper
,
Marianne S. Clancy
,
Sonia M. Thomas
,
Keith R. McCrae
·
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1016/j.jtha.2025.09.024
YOU?
·
· 2025
· Open Access
·
· DOI: https://doi.org/10.1016/j.jtha.2025.09.024
This study successfully externally validates the HHT-QoL. The HHT-QoL is a validated disease-specific HRQoL instrument with defined severity classification and minimal clinically important difference, making it ideal for use in clinical trials of bleeding in HHT.
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- https://doi.org/10.1016/j.jtha.2025.09.024
- OA Status
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- References
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- OpenAlex ID
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All OpenAlex metadata
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https://openalex.org/W4415226716Canonical identifier for this work in OpenAlex
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https://doi.org/10.1016/j.jtha.2025.09.024Digital Object Identifier
- Title
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Validation and clinical application of the hereditary hemorrhagic telangiectasia-specific quality of life scaleWork title
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articleOpenAlex work type
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2025Year of publication
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2025-10-01Full publication date if available
- Authors
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Hanny Al‐Samkari, Raj S. Kasthuri, Vivek N. Iyer, Allyson M. Pishko, Jake E. Decker, Clifford R. Weiss, Kevin J. Whitehead, Miles Conrad, Marc Zumberg, Jenny Y. Zhou, Joseph G. Parambil, Benjamin Carper, Marianne S. Clancy, Sonia M. Thomas, Keith R. McCraeList of authors in order
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https://doi.org/10.1016/j.jtha.2025.09.024Publisher landing page
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hybridOpen access status per OpenAlex
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https://doi.org/10.1016/j.jtha.2025.09.024Direct OA link when available
- Cited by
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0Total citation count in OpenAlex
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31Number of works referenced by this work
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| best_oa_location.source.host_organization_lineage | https://openalex.org/P4310320990 |
| best_oa_location.source.host_organization_lineage_names | Elsevier BV |
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| best_oa_location.is_published | True |
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| primary_location.source.host_organization_lineage_names | Elsevier BV |
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| primary_location.is_published | True |
| primary_location.raw_source_name | Journal of Thrombosis and Haemostasis |
| primary_location.landing_page_url | https://doi.org/10.1016/j.jtha.2025.09.024 |
| publication_date | 2025-10-01 |
| publication_year | 2025 |
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| citation_normalized_percentile.is_in_top_10_percent | False |