Validation Parameters of Patient-Generated Data for Digitally Recorded Allergic Rhinitis Symptom and Medication Scores in the @IT.2020 Project: Exploratory Study Article Swipe
Stephanie Dramburg
,
Serena Perna
,
Marco Di Fraia
,
Salvatore Tripodi
,
Stefania Arasi
,
S Castelli
,
Danilo Villalta
,
Francesca Buzzulini
,
Ifigenia Sfika
,
Valeria Villella
,
Ekaterina Potapova
,
Maria Antonia Brighetti
,
Alessandro Travaglini
,
Pierluigi Verardo
,
Simone Pelosi
,
Paolo Maria Matricardi
·
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.2196/31491
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.2196/31491
Background Mobile health technologies enable allergists to monitor disease trends by collecting daily patient-reported outcomes of allergic rhinitis. To this end, patients with allergies are usually required to enter their symptoms and medication repetitively over long time periods, which may present a risk to data completeness and quality in the case of insufficient effort reporting. Completeness of patient’s recording is easily measured. In contrast, the intrinsic quality and accuracy of the data entered by the patients are more elusive. Objective The aim of this study was to explore the association of adherence to digital symptom recording with a predefined set of parameters of the patient-generated symptom and medication scores and to identify parameters that may serve as proxy measure of the quality and reliability of the information recorded by the patient. Methods The @IT.2020 project investigates the diagnostic synergy of mobile health and molecular allergology in patients with seasonal allergic rhinitis. In its pilot phase, 101 children with seasonal allergic rhinitis were recruited in Rome and instructed to record their symptoms, medication intake, and general conditions daily via a mobile app (AllergyMonitor) during the relevant pollen season. We measured adherence to daily recording as the percentage of days with data recording in the observation period. We examined the patient’s trajectories of 3 disease indices (Rhinoconjunctivitis Total Symptom Score [RTSS], Combined Symptom and Medication Score [CSMS], and Visual Analogue Scale [VAS]) as putative proxies of data quality with the following 4 parameters: (1) intravariation index, (2) percentage of zero values, (3) coefficient of variation, and (4) percentage of changes in trend. Lastly, we examined the relationship between adherence to recording and each of the 4 proxy measures. Results Adherence to recording ranged from 20% (11/56) to 100% (56/56), with 64.4% (65/101) and 35.6% (36/101) of the patients’ values above (highly adherent patients) or below (low adherent patients) the threshold of 80%, respectively. The percentage of zero values, the coefficient of variation, and the intravariation index did not significantly change with the adherence to recording. By contrast, the proportion of changes in trend was significantly higher among highly adherent patients, independently from the analyzed score (RTSS, CSMS, and VAS). Conclusions The percentage of changes in the trend of RTSS, CSMS, and VAS is a valuable candidate to validate the quality and accuracy of the data recorded by patients with allergic rhinitis during the pollen season. The performance of this parameter must be further investigated in real-life conditions before it can be recommended for routine use in apps and electronic diaries devoted to the management of patients with allergic rhinitis.
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Metadata
- Type
- article
- Language
- en
- Landing Page
- https://doi.org/10.2196/31491
- https://mhealth.jmir.org/2022/6/e31491/PDF
- OA Status
- gold
- Cited By
- 3
- References
- 32
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4281613329
All OpenAlex metadata
Raw OpenAlex JSON
- OpenAlex ID
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https://openalex.org/W4281613329Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.2196/31491Digital Object Identifier
- Title
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Validation Parameters of Patient-Generated Data for Digitally Recorded Allergic Rhinitis Symptom and Medication Scores in the @IT.2020 Project: Exploratory StudyWork title
- Type
-
articleOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2022Year of publication
- Publication date
-
2022-06-03Full publication date if available
- Authors
-
Stephanie Dramburg, Serena Perna, Marco Di Fraia, Salvatore Tripodi, Stefania Arasi, S Castelli, Danilo Villalta, Francesca Buzzulini, Ifigenia Sfika, Valeria Villella, Ekaterina Potapova, Maria Antonia Brighetti, Alessandro Travaglini, Pierluigi Verardo, Simone Pelosi, Paolo Maria MatricardiList of authors in order
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https://doi.org/10.2196/31491Publisher landing page
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https://mhealth.jmir.org/2022/6/e31491/PDFDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
-
goldOpen access status per OpenAlex
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https://mhealth.jmir.org/2022/6/e31491/PDFDirect OA link when available
- Concepts
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Medicine, Quality of life (healthcare), Visual analogue scale, Physical therapy, Proxy (statistics), Statistics, Nursing, MathematicsTop concepts (fields/topics) attached by OpenAlex
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3Total citation count in OpenAlex
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2025: 1, 2024: 1, 2023: 1Per-year citation counts (last 5 years)
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32Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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