Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review Article Swipe
Ana‐Catarina Pinho‐Gomes
,
James M. Stone
,
Toni Shaw
,
Andrea Heath
,
Jane Cowl
,
Laura Norburn
,
Victoria Thomas
,
Sarah Scott
·
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.1017/s0266462322000289
YOU?
·
· 2022
· Open Access
·
· DOI: https://doi.org/10.1017/s0266462322000289
The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA.
Related Topics
Concepts
Guideline
Underpinning
Context (archaeology)
Relevance (law)
Health technology
Management science
Medicine
Consistency (knowledge bases)
Engineering ethics
Process management
Political science
Health care
Computer science
Business
Engineering
Pathology
Law
Civil engineering
Biology
Paleontology
Artificial intelligence
Metadata
- Type
- review
- Language
- en
- Landing Page
- https://doi.org/10.1017/s0266462322000289
- https://www.cambridge.org/core/services/aop-cambridge-core/content/view/57DEDD3D8CC40B4B175FAF7597328AC3/S0266462322000289a.pdf/div-class-title-values-principles-strategies-and-frameworks-underlying-patient-and-public-involvement-in-health-technology-assessment-and-guideline-development-a-scoping-review-div.pdf
- OA Status
- hybrid
- Cited By
- 12
- References
- 32
- Related Works
- 10
- OpenAlex ID
- https://openalex.org/W4282914772
All OpenAlex metadata
Raw OpenAlex JSON
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https://openalex.org/W4282914772Canonical identifier for this work in OpenAlex
- DOI
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https://doi.org/10.1017/s0266462322000289Digital Object Identifier
- Title
-
Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping reviewWork title
- Type
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reviewOpenAlex work type
- Language
-
enPrimary language
- Publication year
-
2022Year of publication
- Publication date
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2022-01-01Full publication date if available
- Authors
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Ana‐Catarina Pinho‐Gomes, James M. Stone, Toni Shaw, Andrea Heath, Jane Cowl, Laura Norburn, Victoria Thomas, Sarah ScottList of authors in order
- Landing page
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https://doi.org/10.1017/s0266462322000289Publisher landing page
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https://www.cambridge.org/core/services/aop-cambridge-core/content/view/57DEDD3D8CC40B4B175FAF7597328AC3/S0266462322000289a.pdf/div-class-title-values-principles-strategies-and-frameworks-underlying-patient-and-public-involvement-in-health-technology-assessment-and-guideline-development-a-scoping-review-div.pdfDirect link to full text PDF
- Open access
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YesWhether a free full text is available
- OA status
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hybridOpen access status per OpenAlex
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https://www.cambridge.org/core/services/aop-cambridge-core/content/view/57DEDD3D8CC40B4B175FAF7597328AC3/S0266462322000289a.pdf/div-class-title-values-principles-strategies-and-frameworks-underlying-patient-and-public-involvement-in-health-technology-assessment-and-guideline-development-a-scoping-review-div.pdfDirect OA link when available
- Concepts
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Guideline, Underpinning, Context (archaeology), Relevance (law), Health technology, Management science, Medicine, Consistency (knowledge bases), Engineering ethics, Process management, Political science, Health care, Computer science, Business, Engineering, Pathology, Law, Civil engineering, Biology, Paleontology, Artificial intelligenceTop concepts (fields/topics) attached by OpenAlex
- Cited by
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12Total citation count in OpenAlex
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2025: 4, 2024: 5, 2023: 1, 2022: 2Per-year citation counts (last 5 years)
- References (count)
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32Number of works referenced by this work
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10Other works algorithmically related by OpenAlex
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