Explanipedia

The role of family caregivers in critical illness survivor recovery at home: A qualitative study Open

A. Fuchsia Howard, Kelsey Lynch, Sally Thorne, Sybil Hoiss, Rakesh C. Arora , et al. · 2025

Background When critical illness survivors are discharged home, they encounter a myriad of physical, emotional, cognitive, and socioeconomic challenges which can endure for an extended period of recovery. Given the extent of patient need, …

From hospital to home: A heightened window of vulnerability post-critical illness Open

A. Fuchsia Howard, Kelsey Lynch, Sally Thorne, Leanne M. Currie, Rakesh C. Arora , et al. · 2025

Background Healthcare innovations have not kept pace with the burden of critical illness survivorship. The majority of patients treated in an intensive care unit (ICU) will survive but suffer new or worsening physical, cognitive or mental …

Social Networks of Adolescents and Young Adults with Cancer: A Cross-Sectional Study Open

R.R. Datta, Bojana Petrović, Argerie Tsimicalis, A. Fuchsia Howard, Emily K. Drake , et al. · 2025

A cancer diagnosis disrupts the social networks of adolescents and young adults (AYAs), impacting their overall health and wellbeing. This cross-sectional study examined the social network integration (SNI; size and frequency of contact) o…

Developing a trauma-informed social media campaign to disseminate endometriosis specific qualitative arts-based research findings: A tutorial (Preprint) Open

Kerry Marshall, Hargun Dhillon, A. Fuchsia Howard, Heather Noga, Grace J. Yang , et al. · 2025

UNSTRUCTURED Trauma-informed approaches promote the creation of systems that prioritize safety and empowerment to improve patient well-being. These approaches are especially important in sexual and reproductive healthcare, where patients …

A multidisciplinary evaluation of fertility preservation for oncology patients in Canada Open

Regina-Veronicka Kalaydina, Kiera Liblik, Amar P. Dhillon, Kristin C. Marr, Karen Goddard , et al. · 2025

Introduction: Infertility represents a devastating side effect of antineoplastic agents, particularly in adolescents and young adults (AYA). A paucity of practitioner-initiated fertility preservation (FP) counseling has resulted in low upt…

Artificial Reproductive Technology Use and Family-Building Experiences of Female Adult Childhood Cancer Survivors: A Qualitative Study Open

Selena Banser, A. Fuchsia Howard, Sally Thorne, Karen Goddard · 2025

Purpose: Cancer treatments can result in subfertility or infertility in female adult childhood cancer survivors (ACCSs). While ACCSs may utilize assisted reproductive technology (ART) or other family-building options, the limited evidence …

Risk-reducing salpingectomy: considerations from an OBGYN perspective Open

Alexandra Lukey, A. Fuchsia Howard, A.P. van der Mei, Michael R. Law, David G. Huntsman , et al. · 2025

BACKGROUND: With recent evidence that opportunistic salpingectomy is effective in preventing high grade serous carcinoma, it is imperative to consider the optimal use of this procedure. In this research, we investigated the opinions of obs…

Family-Reported Outcomes Measures (FROMs) Screening Programs an Integral Part of Chronic Disease Management: A Scoping Review Open

Sylvie Lambert, Li‐Anne Audet, Lydia Ould Brahim, Jamie Schaffler, C. Tejera Ramírez , et al. · 2025

Caregivers experience physical, psychological, emotional, and practical challenges resulting from their roles and responsibilities. These challenges negatively impact caregivers’ health and well-being. Screening for patient-reported outcom…

Supplementary Table 1 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Supplementary Table 1. Logistic regression analysis of factors associated with accepting risk-reducing surgery (RRS) for ovarian cancer when lifetime risk is less than 4% compared to greater or equal to 4%, using complete case analysis

Supplementary Material 1 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Education pamphlet for participants

Risk-Reducing Salpingectomy: Considerations from an OBGYN Perspective Open

Alexandra Lukey, A. Fuchsia Howard, A.P. van der Mei, Michael R. Law, David G. Huntsman , et al. · 2025

Background With recent evidence that opportunistic salpingectomy is effective in preventing high grade serous carcinoma, it is imperative to consider the optimal use of this procedure. In this research, we investigated the opinions of obst…

Advance Care Planning in Oncology Nursing: An Interpretive Description Study Open

Heather M. Kilgour, Leah K. Lambert, A. Fuchsia Howard, Michael McKenzie, Sally Thorne · 2025

Aim To explore oncology nursing advance care planning practices and understand how to better support nurses in conducting advance care planning with patients and their families. Design Qualitative interpretive descriptive methodology. Meth…

Deep and Superficial Dyspareunia Questionnaire: a patient-reported outcome measure for genito-pelvic dyspareunia Open

Nisha Marshall, Samantha L Levang, Yang Liu, Heather Noga, Catherine Allaire , et al. · 2025

Introduction Dyspareunia affects 8%-22% of women worldwide and an unknown number of gender-diverse people. Dyspareunia is commonly categorized into deep and superficial subtypes based on pain location and underlying etiology; however, curr…

Pelvic pain & endometriosis: the development of a patient-centred e-health resource for those affected by endometriosis-associated dyspareunia Open

Gurkiran Parmar, A. Fuchsia Howard, Heather Noga, Leah Tannock, Abdul‐Fatawu Abdulai , et al. · 2025

Addressing technology-mediated stigma in sexual health-related digital platforms: Insights from design team members Open

Abdul‐Fatawu Abdulai, A. Fuchsia Howard, Paul J. Yong, Leanne M. Currie · 2025

Digital health technologies are increasingly used as complementary tools in accessing sexual health-related services. At the same time, there are concerns regarding how some interface features and content of these technologies could inadve…

Exploring the Landscape of Social and Economic Factors in Critical Illness Survivorship: A Scoping Review Open

Hong Li, A. Fuchsia Howard, Kelsey Lynch, Jian Chu, Gregory Haljan · 2025

OBJECTIVES: To explore the breadth of social, demographic, and economic (SDE) factors reported in critical illness survivorship research, with a focus on how they impact survivorship outcomes. DATA SOURCES: We obtained articles from Medlin…

Table 2 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Logistic regression analysis of factors associated with accepting risk-reducing surgery (RRS) for ovarian cancer when the lifetime risk is less than 4%, compared with greater than or equal to 4%, using hot deck imputation

Table 1 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Sample characteristics of 211 participants

Data from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

With evidence that salpingectomy is effective in preventing high-grade serous carcinoma, it is time to consider offering this procedure to people at higher-than-average lifetime risk for ovarian cancer, despite not having a pathogenic gene…

Supplementary Table 1 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Supplementary Table 1. Logistic regression analysis of factors associated with accepting risk-reducing surgery (RRS) for ovarian cancer when lifetime risk is less than 4% compared to greater or equal to 4%, using complete case analysis

Supplementary Material 1 from Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

Education pamphlet for participants

Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey Open

Alexandra Lukey, Ramlogan Sowamber, David G. Huntsman, Celeste Leigh Pearce, A. Fuchsia Howard , et al. · 2025

With evidence that salpingectomy is effective in preventing high-grade serous carcinoma, it is time to consider offering this procedure to people at higher-than-average lifetime risk for ovarian cancer, despite not having a pathogenic gene…

Relationship between critical illness recovery and social determinants of health: a multiperspective qualitative study in British Columbia, Canada Open

A. Fuchsia Howard, Kelsey Lynch, Sally Thorne, Sybil Hoiss, Omar Ahmad , et al. · 2024

Objectives There are health disparities and inequities in the outcomes of critical illness survivors related to the influence of social determinants of health on recovery. The purpose of this study was to describe the relationship between …

Assessment of long-term psychosocial outcomes in N-methyl-D-aspartate receptor encephalitis – the SAPIENCE study protocol Open

Ole Jonas Boeken, J. Heine, Marta Duda-Sikuła, Víctor Patricio, Géraldine Picard , et al. · 2024

Patient-driven research priorities for patient-centered measurement Open

A. Fuchsia Howard, Linda Sue Warner, Lena Cuthbertson, Richard Sawatzky · 2024

The use of Arts-Based Research in Chronic Pain: A Scoping Review Open

Sophie J. Harasymchuk, A. Fuchsia Howard, Heather Noga, Mary T. Kelly, Paul J. Yong · 2024

Despite the wide variation in sample and art modalities across reviewed articles, arts-based methods were considered suitable and highly effective for investigating chronic non-cancer pain.

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care Open

Christina Signorelli, Beverley Lim Høeg, Chioma Asuzu, Isabel Centeno, Tania Estapé , et al. · 2024

PURPOSE The number of cancer survivors living with and beyond cancer treatment is rising globally. It is fundamental to understand the extent and type of psychosocial care services offered worldwide. We evaluated models of cancer survivors…

Women’s Self-Management of Dyspareunia Associated With Endometriosis: A Qualitative Study Open

A. Fuchsia Howard, Heather Noga, Mary T. Kelly, Bita Gholamian, Sarah Lett , et al. · 2024

Given the limitations of medical treatment for endometriosis, self-management is a critical component of symptom management, and providing patients with information and education is a necessary complement to medical interventions. Though 5…

‘I want to be a member of my heart team’: Insights from patients’ experiences of minimalist transcatheter aortic valve implantation Open

Celeste G. Percy, A. Fuchsia Howard, Bobby Lee, Janarthanan Sathananthan, David Wood , et al. · 2024

Background: Internationally, transcatheter aortic valve implantation (TAVI) is the most common approach for treating aortic stenosis. There is growing evidence to support the implementation of a streamlined clinical pathway to optimise out…

Composing adult lives with a ventilator at the intersection of developmental and neoliberal discourses of time Open

Elizabeth Straus, Helen Brown, A. Fuchsia Howard, Gail Teachman · 2024

This paper explores temporalities and experiences of time drawn from an analysis of interview data from a critical narrative inquiry of the experiences of young adults living with home mechanical ventilation (HMV). The analysis centers the…

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