Jennifer A. Miner
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View article: Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals with Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder
Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals with Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder Open
We provide evidence for the clinical utility of TBI-CareQOL measures in care partners of individuals with both TBI and PTSD. Our data also suggests that caring for individuals with both PTSD and TBI is associated with lower HRQOL and highe…
View article: Validating the CG-STYLE Measure in Family Caregivers of Individuals Living With Dementia
Validating the CG-STYLE Measure in Family Caregivers of Individuals Living With Dementia Open
Family caregivers for individuals with dementia provide care based on unique caregiving styles. Using mixed-methods approaches, we developed a measure representing five caregiving style domains: understanding, adaptability, emotional expre…
View article: A comprehensive parent training program for parents of neurodivergent children with pathological demand avoidance: The Paradigm Shift Program <sup>®</sup> Pilot Study
A comprehensive parent training program for parents of neurodivergent children with pathological demand avoidance: The Paradigm Shift Program <sup>®</sup> Pilot Study Open
Importance Although pathological demand avoidance (PDA; also known as “extreme” or “persistent” demand avoidance and persistent drive for autonomy) was first described in 1980 as a distinct behavioral profile among a subgroup of children w…
View article: Patient and Caregiver Perspectives on the Diagnosis and Management of Pediatric Renovascular Hypertension
Patient and Caregiver Perspectives on the Diagnosis and Management of Pediatric Renovascular Hypertension Open
Background Pediatric renovascular hypertension (pRVH) may lead to significant morbidity and mortality. Rare disease prevalence limits existing data and optimal management remains ill-defined. This study seeks to capture patient and family …
View article: Understanding financial hardship in families of people living with dementia: Protocol for a scoping review to identify subjective self-report measures that evaluate financial hardship
Understanding financial hardship in families of people living with dementia: Protocol for a scoping review to identify subjective self-report measures that evaluate financial hardship Open
Background Financial hardship (including financial stress, financial strain, asset depletion, and financial toxicity) is a highly relevant construct among the 6.9 million people living with Alzheimer’s disease and related dementias (ADRD) …
View article: Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial
Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial Open
Background Compliance rates for mobile health (mHealth) studies that involve intensive study designs are highly variable. Both person- and study-specific factors likely contribute to this variability. We were interested in understanding th…
View article: Understanding non-traditional caregivers: protocol for a scoping review of caregiver definitions, caregiver networks and outcome measures
Understanding non-traditional caregivers: protocol for a scoping review of caregiver definitions, caregiver networks and outcome measures Open
Introduction Dementia caregiving is typically provided through a network of multiple individuals, particularly in diverse populations. Although family members of people living with Alzheimer’s disease and Alzheimer’s disease-related dement…
Understanding Learning and Predictive Factors for Performance of AR-Based Clinical Tasks: Quantitative Performance Analysis (Preprint) Open
BACKGROUND Augmented Reality (AR) offers a risk-free training modality for medical trainees. However, little is known about the effect that prior experiences with technology and visuo-spatial ability have on performance in AR. Understandi…
View article: Exogenous estradiol increases cardiovagal baroreflex sensitivity during a hypertensive stimulus in premenopausal young women
Exogenous estradiol increases cardiovagal baroreflex sensitivity during a hypertensive stimulus in premenopausal young women Open
Attenuated cardiovagal baroreflex sensitivity is associated with cardiovascular disease. Female sex hormones have a significant impact on the development of cardiovascular disease across the lifespan. Using an experimental model of hormone…
View article: Validating the CG‐STYLE measure in family caregivers of individuals living with dementia
Validating the CG‐STYLE measure in family caregivers of individuals living with dementia Open
INTRODUCTION This study explores the validity and reliability of the measures of the five domains of caregiving style (CG‐STYLE). METHODS The sample included 209 family caregivers for an individual living with dementia. Floor and ceiling e…
View article: 157 Development of a skills assessment for the formative evaluation of clinical research professionals working in behavioral and social science research contexts
157 Development of a skills assessment for the formative evaluation of clinical research professionals working in behavioral and social science research contexts Open
Objectives/Goals: To support the growing number of clinical research professionals (CRP) working in behavioral and social science contexts, relevant formative assessments of research skills are needed. This study examines the development o…
Preliminary Testing of the Discussion of Patient Life Goals Patient-Reported Outcome Measure for Dialysis Facilities Open
Preliminary analyses indicate the D-PaLS has excellent psychometric properties. The measure provides 2 important quality metrics: facilities' level of engagement talking with patients about their life goals and the percentage of patients r…
View article: Development of a Person‐Centered Measure of Dementia Caregiving Style
Development of a Person‐Centered Measure of Dementia Caregiving Style Open
Background Approaches to caregiving interventions are often “one‐size‐fits‐all”, yet family caregivers for individuals with dementia have unique caregiving styles with which they enact daily care. Mixed‐methods work by this team identified…
View article: CRITICAL OR ENCOURAGING? CORRELATES OF FAMILY CAREGIVERS’ DEMENTIA MANAGEMENT STRATEGIES
CRITICAL OR ENCOURAGING? CORRELATES OF FAMILY CAREGIVERS’ DEMENTIA MANAGEMENT STRATEGIES Open
Family caregivers approach caregiving challenges with a variety of management strategies which may be adaptive or maladaptive and impact the quality of care provided to individuals living with dementia. This study explores caregiver demogr…
View article: Non‐traditional Dementia Caregivers: Does a more distant relation diminish burden?
Non‐traditional Dementia Caregivers: Does a more distant relation diminish burden? Open
Background Examination of family caregiving and the stress process has focused on a “primary” caregiver (e.g., spouse, adult child) at the exclusion of other members of the caregiving network. Yet “non‐traditional” (e.g., grandchild, frien…
View article: Four New Patient-Reported Outcome Measures Examining Health-Seeking Behavior in Persons With Type 2 Diabetes Mellitus (REDD-CAT): Instrument Development Study
Four New Patient-Reported Outcome Measures Examining Health-Seeking Behavior in Persons With Type 2 Diabetes Mellitus (REDD-CAT): Instrument Development Study Open
Background The management of type 2 diabetes mellitus (T2DM) includes mastery of complex care activities, self-management skills, and routine health care encounters to optimize glucose control and achieve good health. Given the lifelong co…
View article: Four New Patient-Reported Outcome Measures Examining Health-Seeking Behavior in Persons With Type 2 Diabetes Mellitus (REDD-CAT): Instrument Development Study (Preprint)
Four New Patient-Reported Outcome Measures Examining Health-Seeking Behavior in Persons With Type 2 Diabetes Mellitus (REDD-CAT): Instrument Development Study (Preprint) Open
BACKGROUND The management of type 2 diabetes mellitus (T2DM) includes mastery of complex care activities, self-management skills, and routine health care encounters to optimize glucose control and achieve good health. Given the lifelong c…
Iterative refinement: Developing items to build an assessment of dementia caregivers’ caregiving style Open
Background Prior mixed‐methods research has classified 5 distinct dementia caregiving style profiles based on how caregivers vary across 5 domains: understanding of dementia, adaptability, orientation towards oneself vs. the care recipient…
View article: Identifying Design Opportunities for Adaptive mHealth Interventions That Target General Well-Being: Interview Study With Informal Care Partners
Identifying Design Opportunities for Adaptive mHealth Interventions That Target General Well-Being: Interview Study With Informal Care Partners Open
Background Mobile health (mHealth) interventions can deliver personalized behavioral support to users in daily contexts. These interventions have been increasingly adopted to support individuals who require low-cost and low-burden support.…
View article: The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study
The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study Open
Background Caregivers of people with chronic illnesses often face negative stress-related health outcomes and are unavailable for traditional face-to-face interventions due to the intensity and constraints of their caregiver role. Just-in-…
View article: Identifying Design Opportunities for Adaptive mHealth Interventions That Target General Well-Being: Interview Study With Informal Care Partners (Preprint)
Identifying Design Opportunities for Adaptive mHealth Interventions That Target General Well-Being: Interview Study With Informal Care Partners (Preprint) Open
BACKGROUND Mobile health (mHealth) interventions can deliver personalized behavioral support to users in daily contexts. These interventions have been increasingly adopted to support individuals who require low-cost and low-burden support…
View article: Implementing a mentoring program for clinical research professionals: A novel professional development initiative for university health research staff
Implementing a mentoring program for clinical research professionals: A novel professional development initiative for university health research staff Open
Clinical and translational research relies on a well-trained workforce, but mentorship programs designed expressly for this workforce are lacking. This paper presents the development of a mentoring program for research staff and identifies…
A pilot intervention of using a mobile health app (ONC Roadmap) to enhance health-related quality of life in family caregivers of pediatric patients with cancer Open
This study supports that mHealth technology may be a promising platform to provide HRQOL support for caregivers of pediatric patients with cancer. Importantly, the findings suggest that the study protocol was feasible, and participants wer…
View article: An app-based just-in-time-adaptive self-management intervention for care partners: The CareQOL feasibility pilot study.
An app-based just-in-time-adaptive self-management intervention for care partners: The CareQOL feasibility pilot study. Open
Findings provide strong support for the acceptability and feasibility of an intensive data collection protocol that involved the administration of a JITAI. Although this trial was not powered to establish efficacy, findings indicated impro…