Agneta Markström
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View article: No socioeconomic disparities in the availability of personal care assistance: a population-based cohort analysis of children living with respiratory support
No socioeconomic disparities in the availability of personal care assistance: a population-based cohort analysis of children living with respiratory support Open
Background Children aged 0–18 years who need long-term respiratory support rely on medical technology and comprehensive medical care. For this care to be provided at home, access to medical and social support and care is essential. In Swed…
View article: Swedish national cohort of children living with long-term respiratory support (DISCOVERY-P): cohort profile
Swedish national cohort of children living with long-term respiratory support (DISCOVERY-P): cohort profile Open
Purpose Children living with respiratory support rely on medical technology, either fully or partially, throughout the day to meet their breathing requirements. Although children and young people living with respiratory support at home und…
View article: Sleep‐Disordered Breathing and Dimensions of The Maxillary Dental Arch and Hard Palate in Children With Class <scp>II</scp> and Large Overjet—A Case‐Control Study
Sleep‐Disordered Breathing and Dimensions of The Maxillary Dental Arch and Hard Palate in Children With Class <span>II</span> and Large Overjet—A Case‐Control Study Open
Background Class II occlusion is associated with narrow dimensions of the maxillary dental arch and hard palate (maxillary dimensions), which may increase the risk of narrow upper airways and sleep‐disordered breathing (SDB). Objectives Th…
View article: Nocturnal sleep phenotypes in idiopathic hypersomnia – A data-driven cluster analysis
Nocturnal sleep phenotypes in idiopathic hypersomnia – A data-driven cluster analysis Open
This exploratory two-step cluster analysis of IH-diagnosed patients discerned two subgroups with distinct nocturnal sleep characteristics, aligning with prior findings and endorsing the notion that IH may encompass several phenotypes, each…
View article: The transition from children to young people living with home mechanical ventilation
The transition from children to young people living with home mechanical ventilation Open
The transition into adulthood is a sensitive and challenging time for young people with HMV, but stable, close relationships and a well-organized transfer can enable this group to feel safe and able to find and use their own voice.
View article: Young adults’ narratives about living with home mechanical ventilation – a phenomenological hermeneutical study
Young adults’ narratives about living with home mechanical ventilation – a phenomenological hermeneutical study Open
The findings of this study prove the importance of having long-standing access to a competent and supportive available multi-professional healthcare team when living with a long-term complex condition. These teams provided well-functioning…
View article: Signal quality of home polygraphy in children and adolescents
Signal quality of home polygraphy in children and adolescents Open
Aim The aims of the study were to examine the signal quality (SQ) of home polygraphy (PG) in children and adolescents and to compare automatic and manual scoring of the PGs. Methods Clinical Trials Registration: NCT04964830. Participants a…
View article: Multifocal Neuroblastoma and Central Hypoventilation in An Infant with Germline ALK F1174I Mutation
Multifocal Neuroblastoma and Central Hypoventilation in An Infant with Germline ALK F1174I Mutation Open
A preterm infant with central hypoventilation was diagnosed with multifocal neuroblastoma. Congenital anomalies of the autonomic nervous system in association with neuroblastoma are commonly associated with germline mutations in PHOX2B. Fu…
View article: Applying diaphragm pacing in previously tracheostomised children with congenital central hypoventilation syndrome is a safe tool
Applying diaphragm pacing in previously tracheostomised children with congenital central hypoventilation syndrome is a safe tool Open
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View article: Strategy of changing from tracheostomy and non‐invasive mechanical ventilation to diaphragm pacing in children with congenital central hypoventilation syndrome
Strategy of changing from tracheostomy and non‐invasive mechanical ventilation to diaphragm pacing in children with congenital central hypoventilation syndrome Open
Congenital central hypoventilation syndrome (CCHS) is a rare disorder that affects central control of breathing and paediatric treatment varies worldwide. One approach is diaphragm pacing (DP), by phrenic nerve stimulation or direct diaphr…
View article: Children with home mechanical ventilation—Parents' health‐related quality of life, family functioning and sleep
Children with home mechanical ventilation—Parents' health‐related quality of life, family functioning and sleep Open
Aim Children requiring home mechanical ventilation (HMV) have grown in number and complexity. Parents of children with HMV are often responsible for the advanced homecare. This study explored the health‐related quality of life (HRQoL), fam…
View article: Rapid Maxillary Expansion in Children with Nocturnal Enuresis: <i>A Randomized Placebo-controlled trial</i>
Rapid Maxillary Expansion in Children with Nocturnal Enuresis: <i>A Randomized Placebo-controlled trial</i> Open
Objective To investigate whether rapid maxillary expansion (RME) is a useful treatment method for nocturnal enuresis (NE) and whether the treatment effect is due to placebo. The study also aimed to identify prognostic variables in patients…
View article: Sleep and Quality of Life Under Prolonged Release Oxycodone/Naloxone for Severe Restless Legs Syndrome: An Analysis of Secondary Efficacy Variables of a Double-Blind, Randomized, Placebo-Controlled Study with an Open-Label Extension
Sleep and Quality of Life Under Prolonged Release Oxycodone/Naloxone for Severe Restless Legs Syndrome: An Analysis of Secondary Efficacy Variables of a Double-Blind, Randomized, Placebo-Controlled Study with an Open-Label Extension Open
ClinicalTrials.gov (NCT01112644) and EudraCT (2009-011107-23).
View article: Auricular Acupuncture and Cognitive Behavioural Therapy for Insomnia: A Randomised Controlled Study
Auricular Acupuncture and Cognitive Behavioural Therapy for Insomnia: A Randomised Controlled Study Open
Objective . The most effective nonpharmacological treatment for insomnia disorder is cognitive behavioural therapy-insomnia (CBT-i). However CBT-i may not suit everyone. Auricular acupuncture (AA) is a complementary treatment. Studies show…