Amanda Leggett
YOU?
Author Swipe
View article: Examining Care Network Composition by Nativity Status in Adults Living With Cognitive Impairment
Examining Care Network Composition by Nativity Status in Adults Living With Cognitive Impairment Open
Foreign-born people living with cognitive impairment (PLwCI) and their family caregivers may have distinct caregiving networks compared to their U.S.-born counterparts. Data is drawn from the 2022 wave of the National Health and Aging Tren…
View article: Understanding financial hardship in families of people living with dementia: Protocol for a scoping review to identify subjective self-report measures that evaluate financial hardship
Understanding financial hardship in families of people living with dementia: Protocol for a scoping review to identify subjective self-report measures that evaluate financial hardship Open
Background Financial hardship (including financial stress, financial strain, asset depletion, and financial toxicity) is a highly relevant construct among the 6.9 million people living with Alzheimer’s disease and related dementias (ADRD) …
View article: Understanding non-traditional caregivers: protocol for a scoping review of caregiver definitions, caregiver networks and outcome measures
Understanding non-traditional caregivers: protocol for a scoping review of caregiver definitions, caregiver networks and outcome measures Open
Introduction Dementia caregiving is typically provided through a network of multiple individuals, particularly in diverse populations. Although family members of people living with Alzheimer’s disease and Alzheimer’s disease-related dement…
View article: Validating the CG‐STYLE measure in family caregivers of individuals living with dementia
Validating the CG‐STYLE measure in family caregivers of individuals living with dementia Open
INTRODUCTION This study explores the validity and reliability of the measures of the five domains of caregiving style (CG‐STYLE). METHODS The sample included 209 family caregivers for an individual living with dementia. Floor and ceiling e…
View article: Diagnostic dilemma of avoidant/restrictive food intake disorder after bariatric surgery: A case report and review of literature
Diagnostic dilemma of avoidant/restrictive food intake disorder after bariatric surgery: A case report and review of literature Open
BACKGROUND Bariatric surgery is an effective treatment for severe obesity but is associated with an increased risk for development of eating disorders. Indeed, numerous maladaptive eating behaviors and eating disorders have been described …
View article: Size and Composition of Caregiver Networks Who Manage Medications for Persons Living With Dementia: Cross-Sectional Analysis of the 2011-2022 National Health and Aging Trends Study
Size and Composition of Caregiver Networks Who Manage Medications for Persons Living With Dementia: Cross-Sectional Analysis of the 2011-2022 National Health and Aging Trends Study Open
Background Family caregivers commonly help manage medications taken by persons living with dementia. Recent work has highlighted the importance of caregiver networks, which are multiple caregivers managing care for a single person, on mana…
View article: Changes in Long-term Services and Supports Among Adults With and Without Dementia During the First Year of the COVID-19 Pandemic
Changes in Long-term Services and Supports Among Adults With and Without Dementia During the First Year of the COVID-19 Pandemic Open
Background and Objectives This study draws upon local coronavirus disease 2019 (COVID-19) mortality rates as a proxy for pandemic severity to determine if the COVID-19 pandemic disrupted long-term services and supports (LTSS) for adults wi…
View article: Daily care hours among older emergency department patients with dementia and undiagnosed cognitive impairment: a cross‐sectional study
Daily care hours among older emergency department patients with dementia and undiagnosed cognitive impairment: a cross‐sectional study Open
Background Over 15 million informal caregivers provide assistance to persons living with dementia. Despite increasing emergency department (ED) use within the population, little is known regarding the support required of older adults seeki…
View article: PROFILING DEMENTIA FAMILY CAREGIVING NETWORK MEMBERSHIP AND PSYCHOSOCIAL FUNCTIONING
PROFILING DEMENTIA FAMILY CAREGIVING NETWORK MEMBERSHIP AND PSYCHOSOCIAL FUNCTIONING Open
Family caregiving research predominantly takes a “primary” caregiver lens, while ignoring the multifaceted caregiving networks surrounding a person living with dementia (PLWD). We explore profiles of dementia family caregiving networks bas…
View article: EXPLORING CAREGIVING NETWORK CHARACTERISTICS FOR OLDER ADULTS LIVING WITH DEMENTIA ACROSS RACE/ETHNICITY
EXPLORING CAREGIVING NETWORK CHARACTERISTICS FOR OLDER ADULTS LIVING WITH DEMENTIA ACROSS RACE/ETHNICITY Open
Black and Latinx older adults face a heightened risk of dementia or cognitive impairment. While minority communities often have family-focused supportive networks compared to White individuals, limited research has explored racial/ethnic d…
View article: Development of a Person‐Centered Measure of Dementia Caregiving Style
Development of a Person‐Centered Measure of Dementia Caregiving Style Open
Background Approaches to caregiving interventions are often “one‐size‐fits‐all”, yet family caregivers for individuals with dementia have unique caregiving styles with which they enact daily care. Mixed‐methods work by this team identified…
View article: CRITICAL OR ENCOURAGING? CORRELATES OF FAMILY CAREGIVERS’ DEMENTIA MANAGEMENT STRATEGIES
CRITICAL OR ENCOURAGING? CORRELATES OF FAMILY CAREGIVERS’ DEMENTIA MANAGEMENT STRATEGIES Open
Family caregivers approach caregiving challenges with a variety of management strategies which may be adaptive or maladaptive and impact the quality of care provided to individuals living with dementia. This study explores caregiver demogr…
View article: CHANGES IN CARE TRAJECTORIES DURING THE COVID-19 PANDEMIC AMONG OLDER ADULTS WITH CARE NEEDS
CHANGES IN CARE TRAJECTORIES DURING THE COVID-19 PANDEMIC AMONG OLDER ADULTS WITH CARE NEEDS Open
Background and Objectives This study examined whether the progression of care after the onset of an activity limitation changed during the COVID-19 pandemic. Because the pandemic caused widespread disruptions in care, we considered changes…
View article: Non‐traditional Dementia Caregivers: Does a more distant relation diminish burden?
Non‐traditional Dementia Caregivers: Does a more distant relation diminish burden? Open
Background Examination of family caregiving and the stress process has focused on a “primary” caregiver (e.g., spouse, adult child) at the exclusion of other members of the caregiving network. Yet “non‐traditional” (e.g., grandchild, frien…
View article: PREDICTING OLDER ADULTS’ RESIDENTIAL CARE RELOCATION RISKS BASED ON CAREGIVER NETWORK CHARACTERISTICS
PREDICTING OLDER ADULTS’ RESIDENTIAL CARE RELOCATION RISKS BASED ON CAREGIVER NETWORK CHARACTERISTICS Open
When older adults face increasing care needs or limited support, remaining safely and comfortably at home becomes challenging. Extant research has primarily concentrated on characteristics of the older adult or their primary caregiver on n…
View article: Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment
Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment Open
All other authors declare no conflicts of interest that are relevant to this study.
View article: Insights into designing educational materials for persons living with dementia: a focus group study
Insights into designing educational materials for persons living with dementia: a focus group study Open
Background Persons living with dementia (PLWD) may experience communication difficulties that impact their ability to process written and pictorial information. Patient-facing education may help promote discontinuation of potentially inapp…
View article: Use of preventive service and potentially preventable hospitalization among American adults with disability: Longitudinal analysis of Traditional Medicare and commercial insurance
Use of preventive service and potentially preventable hospitalization among American adults with disability: Longitudinal analysis of Traditional Medicare and commercial insurance Open
TM, relative to commercial insurance, was associated with lower receipt of preventive care and higher PPH risk among adults with disability.
View article: Examining Care Network Characteristics in Older Adults’ Relocation to Residential Care Settings
Examining Care Network Characteristics in Older Adults’ Relocation to Residential Care Settings Open
Background and Objectives When older adults face increasing care needs or limited support, remaining safely and comfortably at home becomes challenging. Extant research has primarily concentrated on characteristics of the older adult or th…
View article: ALL IN THE FAMILY: DIFFERENTIAL IMPACT OF COVID-19 BY TYPE OF CAREGIVER FOR PERSONS LIVING WITH DEMENTIA
ALL IN THE FAMILY: DIFFERENTIAL IMPACT OF COVID-19 BY TYPE OF CAREGIVER FOR PERSONS LIVING WITH DEMENTIA Open
Existing research points toward higher burden for spousal, and particularly wife, caregivers for persons living with dementia (PLwD). Yet how relationship roles and stressors shifted during the COVID-19 pandemic, where some care dyads were…
View article: FAMILY DYNAMICS IN CARING FOR PEOPLE WITH DEMENTIA DURING THE COVID-19 PANDEMIC
FAMILY DYNAMICS IN CARING FOR PEOPLE WITH DEMENTIA DURING THE COVID-19 PANDEMIC Open
A nuanced understanding of family care dynamics (e.g., change in care availability, care network, and care involvement) is important to assess the coping mechanism in dementia care during the pandemic. We conducted an explanatory sequentia…
View article: THE USE OF CAREGIVER SUPPORT SERVICES AND CAREGIVING IMPACT AMONG DIVERSE CAREGIVERS OF OLDER ADULTS WITH DEMENTIA
THE USE OF CAREGIVER SUPPORT SERVICES AND CAREGIVING IMPACT AMONG DIVERSE CAREGIVERS OF OLDER ADULTS WITH DEMENTIA Open
Caregiver support services may improve experiences among caregivers of people with dementia, but racial/ethnic disparities exist in service use. Using data from the 2021 National Study of Caregiving, we measured caregiver service use and c…
View article: RELATIONSHIPS BETWEEN DEMENTIA CAREGIVER PERSONALITY, OUTCOMES, AND MANAGEMENT AND COPING STRATEGIES
RELATIONSHIPS BETWEEN DEMENTIA CAREGIVER PERSONALITY, OUTCOMES, AND MANAGEMENT AND COPING STRATEGIES Open
Family caregivers of people living with dementia are at higher risk for negative outcomes such as depression and burden. However, the experiences of family caregivers are widely variable due to individual differences. Five-factor model per…
View article: CHANGES IN LONG-TERM CARE ARRANGEMENTS AMONG OLDER ADULTS WITH ADRD DURING THE FIRST YEAR OF THE COVID-19 PANDEMIC
CHANGES IN LONG-TERM CARE ARRANGEMENTS AMONG OLDER ADULTS WITH ADRD DURING THE FIRST YEAR OF THE COVID-19 PANDEMIC Open
This study will examine how COVID-19 affected care needs and immediate long-term care (LTC) outcomes including paid and family care, coresidence with adult children, and nursing home use for older adults living with ADRD. For this study we…
View article: WHO’S ON YOUR TEAM? DEMENTIA FAMILY NETWORKS AND CAREGIVER WELL-BEING
WHO’S ON YOUR TEAM? DEMENTIA FAMILY NETWORKS AND CAREGIVER WELL-BEING Open
While caregivers are typically enmeshed in broad networks of family and friends assisting with care, this network is largely neglected, in favor of examining a “primary” caregiver. This study examines types of family/unpaid friend networks…
View article: Iterative refinement: Developing items to build an assessment of dementia caregivers’ caregiving style
Iterative refinement: Developing items to build an assessment of dementia caregivers’ caregiving style Open
Background Prior mixed‐methods research has classified 5 distinct dementia caregiving style profiles based on how caregivers vary across 5 domains: understanding of dementia, adaptability, orientation towards oneself vs. the care recipient…
View article: Functional Decline Over Time and Change in Family and Other Unpaid Care Provided to Community-Dwelling Older Adults Living With and Without Dementia
Functional Decline Over Time and Change in Family and Other Unpaid Care Provided to Community-Dwelling Older Adults Living With and Without Dementia Open
Objectives To provide a longitudinal analysis of how functional decline over time among older adults affects provision of family and unpaid care, overall and stratified by dementia status. Methods Longitudinal cohorts of community-dwelling…
View article: Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study
Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study Open
Background Family caregivers of people with dementia are critical to the quality of life of care recipients and the sustainability of health care systems but face an increased risk of emotional distress and negative physical and mental hea…
View article: Gatekeepers: The Association of Caregiving Network Characteristics With Emergency Department Use by Persons Living With Dementia
Gatekeepers: The Association of Caregiving Network Characteristics With Emergency Department Use by Persons Living With Dementia Open
Objectives Caregivers are typically enmeshed in networks of family and friends who assist with care, yet this network is largely neglected in research. In light of the fact that caregivers are key medical decision makers and play a critica…
View article: A national profile of sandwich generation caregivers providing care to both older adults and children
A national profile of sandwich generation caregivers providing care to both older adults and children Open
Background Many U.S. caregivers provide care to the generation above and below simultaneously, described as “sandwich” generation caregivers. We seek to provide the first national estimates characterizing sandwich generation caregivers and…