Amicia Phillips
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Genomic findings with familial implications: agenda setting in light of mainstreaming Open
An international workshop was held in Leuven, Belgium, on June 19–20, 2023, to discuss the communication of genetic risk information within families in the context of personalized prevention. Organized as part of the Horizon Europe project…
Who has the responsibility to inform relatives at risk of hereditary cancer? A population-based survey in Sweden Open
Objectives Hereditary cancer has implications not only for patients but also for their at-risk relatives (ARRs). In current clinical practice, risk disclosure to ARRs involves collaboration between patients and healthcare providers (HCPs).…
Correction: Clinician perspectives on policy approaches to genetic risk disclosure in families Open
status: Published
Stimulating professional collective responsibility from the outset in mainstreaming genomics Open
status: Published
Clinician perspectives on policy approaches to genetic risk disclosure in families Open
Genomic sequencing has emerged as a powerful tool with significant implications for patients and their relatives, however, empirical evidence suggests that effective dissemination of risk information within families remains a challenge. Po…
View article: Understanding Pandemic Solidarity: Mutual Support During the First COVID-19 Lockdown in the United Kingdom
Understanding Pandemic Solidarity: Mutual Support During the First COVID-19 Lockdown in the United Kingdom Open
Throughout the COVID-19 pandemic, the concept of solidarity has been invoked frequently. Much interest has centred around how citizens and communities support one another during times of uncertainty. Yet, empirical research which accounts …
Clinician perspectives on policy approaches to genetic risk disclosure in families Open
Genomic sequencing has emerged as a powerful tool with significant implications for patients and their relatives, however, empirical evidence suggests that effective dissemination of risk information within families remains a challenge. Po…
View article: Ethical Reasoning During a Pandemic: Results of a Five Country European Study
Ethical Reasoning During a Pandemic: Results of a Five Country European Study Open
Introduction: There has been no work that identifies the hidden or implicit normative assumptions on which participants base their views during the COVID-19 pandemic, and their reasoning and how they reach moral or ethical judgements. Our …
View article: COVID-19 contact tracing apps: UK public perceptions
COVID-19 contact tracing apps: UK public perceptions Open
In order to combat the COVID-19 pandemic, policymakers around the globe have increasingly invested in digital health technologies to support the 'test, track and trace' approach of containing the spread of the novel coronavirus. These tech…
The Use of Samples Originating From Doping Control Procedures for Research Purposes: A Qualitative Study Open
Doping control samples may be used for research purposes by the World Anti-Doping Agency (WADA)-accredited laboratories after their compulsory storage period has expired. This study investigates opinions of stakeholders toward the governan…
Research ethics review for the use of anonymized samples and data: A systematic review of normative documents Open
While the anonymization of biological samples and data may help protect participant privacy, there is still debate over whether this alone is a sufficient safeguard to ensure the ethical conduct of research. The purpose of this systematic …