Amy LeClair
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View article: Developing a real-time registry to track breast cancer patients across the city of Boston
Developing a real-time registry to track breast cancer patients across the city of Boston Open
Objectives Patient navigation is designed to identify and address patients’ needs throughout their cancer treatment. In the context of a clinical trial designed to deliver a standardized patient navigation protocol, a registry was needed t…
View article: Development of a Theory-Based mHealth App for Fatigue Management in Lupus: Human-Centered Design Approach
Development of a Theory-Based mHealth App for Fatigue Management in Lupus: Human-Centered Design Approach Open
Background Fatigue is a highly prevalent and debilitating symptom of systemic lupus erythematosus (SLE), significantly affecting the quality of life and employment of those living with the disease. Nonpharmacologic approaches, such as phys…
View article: Health Care Workers’ Perspectives on Collecting Sexual Orientation and Gender Identity in the Adult Primary Care Setting
Health Care Workers’ Perspectives on Collecting Sexual Orientation and Gender Identity in the Adult Primary Care Setting Open
Background: Despite numerous calls for standardized collection of sexual orientation and gender identity (SOGI) data in clinical settings, uptake of this practice still lags. Objectives: This study conducted a preimplementation assessment …
View article: The Sowers of Seeds: A Qualitative Analysis of the Role of Palliative Care Educators in Facilitating Goals-of-Care Conversations and Palliative Care Referrals
The Sowers of Seeds: A Qualitative Analysis of the Role of Palliative Care Educators in Facilitating Goals-of-Care Conversations and Palliative Care Referrals Open
Background Optimal care for seriously ill and older patients often involves advance care planning (ACP), goals-of-care (GOC) conversations, and specialty palliative care consultation, three sometimes overlapping, yet distinct practices. In…
View article: Designing an implementation strategy to increase health-related social needs screening: Applying the PRISM framework in a resource-limited clinical setting
Designing an implementation strategy to increase health-related social needs screening: Applying the PRISM framework in a resource-limited clinical setting Open
Despite growing acceptability of health-related social needs (HRSN) screening and increasing policy incentives for adoption, clinical implementation of HRSN screening remains low. HRSN screening has been particularly difficult for Communit…
View article: Nurse navigation, symptom monitoring and exercise in vulnerable patients with lung cancer: Feasibility of the NAVIGATE intervention
Nurse navigation, symptom monitoring and exercise in vulnerable patients with lung cancer: Feasibility of the NAVIGATE intervention Open
We developed the Navigate intervention to improve survival among vulnerable lung cancer patients. In this intervention-only study, we examined feasibility in terms of recruitment , retention , attendance , adherence, and acceptability to s…
View article: Measuring What Matters: A Qualitative Study of the Relevance and Clinical Utility of PROMIS Surveys in Systemic Lupus Erythematosus
Measuring What Matters: A Qualitative Study of the Relevance and Clinical Utility of PROMIS Surveys in Systemic Lupus Erythematosus Open
Objective To evaluate the relevance and clinical utility of the Patient-Reported Outcomes Measurement Information System (PROMIS) surveys in patients with systemic lupus erythematosus (SLE). Methods Adults with SLE receiving routine outpat…
View article: “To Be Honest, You Probably Would Have to Read It 50 Times”: Stakeholders Views on Using the Opt-Out Approach for Vaccination in Jails
“To Be Honest, You Probably Would Have to Read It 50 Times”: Stakeholders Views on Using the Opt-Out Approach for Vaccination in Jails Open
Background Despite national guidelines on infectious disease testing and vaccination in prisons, there is heterogeneity on the implementation of these practices in jails. We sought to better understand perspectives on the implementation of…
View article: NAVIGATE: improving survival in vulnerable patients with lung cancer through nurse navigation, symptom monitoring and exercise – study protocol for a multicentre randomised controlled trial
NAVIGATE: improving survival in vulnerable patients with lung cancer through nurse navigation, symptom monitoring and exercise – study protocol for a multicentre randomised controlled trial Open
Introduction and aim Low socioeconomic position (SEP) has been shown to be strongly associated with impaired lung cancer survival. Barriers related to receiving recommended treatment among patients with lung cancer with low SEP may include…
View article: Parent Perspectives on Screening for Social Needs During Pediatric Hospitalizations
Parent Perspectives on Screening for Social Needs During Pediatric Hospitalizations Open
OBJECTIVES Social determinants of health have been demonstrated to be important drivers of health outcomes and disparities. Screening for social needs has been routinely performed and shown to be beneficial in ambulatory settings, but litt…
View article: Development of a workflow process mapping protocol to inform the implementation of regional patient navigation programs in breast oncology
Development of a workflow process mapping protocol to inform the implementation of regional patient navigation programs in breast oncology Open
BACKGROUND Implementing city‐wide patient navigation processes that support patients across the continuum of cancer care is impeded by a lack of standardized tools to integrate workflows and reduce gaps in care. The authors present an acti…
View article: 136 Implementing a Standardized Breast Cancer Patient Navigation Program to Advance Health Equity Across the City of Boston: Challenges and Opportunities
136 Implementing a Standardized Breast Cancer Patient Navigation Program to Advance Health Equity Across the City of Boston: Challenges and Opportunities Open
OBJECTIVES/GOALS: Translating Research into Practice (TRIP), a hybrid implementation pragmatic clinical trial and CTSA collaboration, aims to implement a standardized breast cancer patient navigation protocol across five sites in Boston, M…
View article: Clinical integration of patient-reported outcome measures to enhance the care of patients with SLE: a multi-centre prospective cohort study
Clinical integration of patient-reported outcome measures to enhance the care of patients with SLE: a multi-centre prospective cohort study Open
Objective To assess the feasibility and impact of integrating electronic patient-reported outcome measures (PROMs) into the routine outpatient care of patients with SLE. Methods We conducted a prospective cohort study, utilizing a mixed-me…
View article: “I’m not gonna be able to do anything about it, then what’s the point?”: A broad group of stakeholders identify barriers and facilitators to HCV testing in a Massachusetts jail
“I’m not gonna be able to do anything about it, then what’s the point?”: A broad group of stakeholders identify barriers and facilitators to HCV testing in a Massachusetts jail Open
Background Despite national guidelines promoting hepatitis C virus (HCV) testing in prisons, there is substantial heterogeneity on the implementation of HCV testing in jails. We sought to better understand barriers and opportunities for HC…
View article: The Influence of Health Insurance Stability on Racial/Ethnic Differences in Diabetes Control and Management
The Influence of Health Insurance Stability on Racial/Ethnic Differences in Diabetes Control and Management Open
Objective: This study examined whether health insurance stability was associated with improved type 2 diabetes mellitus (DM) control and reduced racial/ethnic health disparities.Methods: We utilized electronic medical record data (2005-201…
View article: RE: How the Coronavirus Disease-2019 May Improve Care: Rethinking Cervical Cancer Prevention
RE: How the Coronavirus Disease-2019 May Improve Care: Rethinking Cervical Cancer Prevention Open
These past months of the coronavirus disease-2019 (COVID-2019) pandemic have given us ample opportunity to reflect on the US health-care system. Despite overwhelming tragedy, it is an opportunity for us to learn and to change. As we postpo…
View article: Facilitating stakeholder engagement in early stage translational research
Facilitating stakeholder engagement in early stage translational research Open
The National Center for Advancing Translational Sciences (NCATS), the consortium of CTSAs, and the individual CTSA "hubs" are three actors that can help early stage translational researchers develop shared terms of reference, build the nec…
View article: “Unspoken Questions”: A Qualitative Study of Rheumatologists’ Perspectives on the Clinical Implementation of Patient-reported Outcome Measures
“Unspoken Questions”: A Qualitative Study of Rheumatologists’ Perspectives on the Clinical Implementation of Patient-reported Outcome Measures Open
Objective To identify rheumatologists’ views on perceived barriers and facilitators to the clinical implementation of patient-reported outcome measures (PROM). Methods Semistructured interviews were conducted with academically affiliated c…
View article: Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study Open
OBJECTIVES: Children with medical complexity (CMC) have high readmission rates, but relatively little is known from the parent perspective regarding care experiences surrounding and factors contributing to readmissions. We aimed to elicit …
View article: Scientific Review Committees as part of institutional review of human participant research: Initial implementation at institutions with Clinical and Translational Science Awards
Scientific Review Committees as part of institutional review of human participant research: Initial implementation at institutions with Clinical and Translational Science Awards Open
Introduction: Scientific quality and feasibility are part of ethics review by Institutional Review Boards (IRBs). Scientific Review Committees (SRCs) were proposed to facilitate this assessment by the Clinical and Translational Science Awa…