Karen Donelan
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View article: CHURN: TRANSITIONS OUT OF HEALTH SECTOR EMPLOYMENT FOR LOW-PREPARATION WORKERS, 2017–2022
CHURN: TRANSITIONS OUT OF HEALTH SECTOR EMPLOYMENT FOR LOW-PREPARATION WORKERS, 2017–2022 Open
Shortages and turnover for front-line paid caregivers and support staff in long-term services and supports for older adults undermine quality of care. These workers are part of the health sector workforce, and also participate in a larger …
View article: Practicalities (and real‐life experiences) of dementia in adults with Down syndrome
Practicalities (and real‐life experiences) of dementia in adults with Down syndrome Open
Adults with down syndrome (DS) have a lifetime dementia risk in excess of 95%, with a median age of onset of 55 years, due to trisomy 21. Co‐occurring Alzheimer's disease (AD) has increased morbidity and mortality, and it is now recommende…
View article: Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Pilot Randomized Controlled Trial
Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Pilot Randomized Controlled Trial Open
Background Heart failure (HF) is a burdensome condition and a leading cause of 30-day hospital readmissions in the United States. Clinical and social factors are key drivers of hospitalization. These 2 strategies, digital platforms and hom…
View article: Tailored vs. General COVID-19 prevention for adults with mental disabilities residing in group homes: a randomized controlled effectiveness-implementation trial
Tailored vs. General COVID-19 prevention for adults with mental disabilities residing in group homes: a randomized controlled effectiveness-implementation trial Open
Background People with serious mental illness (SMI) and people with intellectual disabilities/developmental disabilities (ID/DD) are at higher risk for COVID-19 and more severe outcomes. We compare a tailored versus general best practice C…
View article: A Pilot Trial of CRESCENT in a Large Academic Healthcare System: A CaReEcoSystem Primary Care Embedded DemeNtia Treatment
A Pilot Trial of CRESCENT in a Large Academic Healthcare System: A CaReEcoSystem Primary Care Embedded DemeNtia Treatment Open
ObjectiveThe prevalence of Alzheimer's Disease (AD) and related dementias is escalating, with substantial societal and economic impact. Existing dementia care is often inadequate due to underdiagnosis, delayed diagnosis, and insufficient r…
View article: Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Pilot Randomized Controlled Trial (Preprint)
Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Pilot Randomized Controlled Trial (Preprint) Open
BACKGROUND Heart failure (HF) is a burdensome condition and a leading cause of 30-day hospital readmissions in the United States. Clinical and social factors are key drivers of hospitalization. These 2 strategies, digital platforms and ho…
View article: Health Insurance Navigation Tools Intervention: A Pilot Trial Within the Childhood Cancer Survivor Study
Health Insurance Navigation Tools Intervention: A Pilot Trial Within the Childhood Cancer Survivor Study Open
PURPOSE Childhood cancer survivors are at increased risk for underinsurance and health insurance–related financial burden. Interventions targeting health insurance literacy (HIL) to improve the ability to understand and use health insuranc…
View article: Projecting the Future Registered Nurse Workforce After the COVID-19 Pandemic
Projecting the Future Registered Nurse Workforce After the COVID-19 Pandemic Open
Importance Health care delivery systems rely on a well-prepared and adequately sized registered nurse (RN) workforce. The US RN workforce decreased by more than 100 000 in 2021 during the COVID-19 pandemic—a far greater single-year drop th…
View article: Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Protocol for a Randomized Controlled Trial
Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Protocol for a Randomized Controlled Trial Open
Background Interventions focused on remote monitoring and social needs care have shown promise in improving clinical outcomes for patients with heart failure (HF). However, patient willingness to use technology as well as concerns about ac…
View article: Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Protocol for a Randomized Controlled Trial (Preprint)
Feasibility, Acceptability, and Preliminary Effectiveness of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Protocol for a Randomized Controlled Trial (Preprint) Open
BACKGROUND Interventions focused on remote monitoring and social needs care have shown promise in improving clinical outcomes for patients with heart failure (HF). However, patient willingness to use technology as well as concerns about a…
View article: THE PAID AND FAMILY DEMENTIA WORKFORCE IN THE COVID-19 PANDEMIC ERA
THE PAID AND FAMILY DEMENTIA WORKFORCE IN THE COVID-19 PANDEMIC ERA Open
The COVID-19 pandemic has had a disproportionate impact on persons living with dementia and their carers. The early period of the pandemic led to drastic changes in dementia care at home, in healthcare services, community programs, and ins…
View article: Feasibility and Acceptability of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Single-Arm Pilot Study
Feasibility and Acceptability of a Combined Digital Platform and Community Health Worker Intervention for Patients With Heart Failure: Single-Arm Pilot Study Open
Background Heart failure (HF) is one of the leading causes of hospital admissions. Clinical (eg, complex comorbidities and low ejection fraction) and social needs factors (eg, access to transportation, food security, and housing security) …
View article: The needs of family caregivers of persons living with dementia cared for in primary care practices
The needs of family caregivers of persons living with dementia cared for in primary care practices Open
Rationale The informal caregivers who provide unpaid support for persons living with dementia (PLWD) are often unprepared to appropriately manage symptoms and navigate health services to support themselves or the PLWD. Aim To understand in…
View article: Global health measures from a <scp>N</scp>ational <scp>D</scp>own <scp>S</scp>yndrome <scp>R</scp>egistry
Global health measures from a <span>N</span>ational <span>D</span>own <span>S</span>yndrome <span>R</span>egistry Open
People with Down syndrome (DS) have a unique medical profile which may impact views of health. We aimed to study the use of global health measures for DS in a national cohort. We prospectively surveyed parents of individuals with DS from t…
View article: Group Home Staff Experiences With Work and Health in the COVID-19 Pandemic in Massachusetts
Group Home Staff Experiences With Work and Health in the COVID-19 Pandemic in Massachusetts Open
Importance Direct reports of the experiences of staff working in group homes for people with serious mental illness (SMI) and/or intellectual or developmental disabilities (ID/DD) are rarely reported. Hearing from workers about their exper…
View article: Do Resident Coaching Programs Benefit their Coaches? Impact of a Professional Development Coaching Program on The Coaches
Do Resident Coaching Programs Benefit their Coaches? Impact of a Professional Development Coaching Program on The Coaches Open
Background Coaching has been shown to decrease physician burnout; however, coachee outcomes have been the focus. We report the impact of coaching on women‐identifying surgeons who participated as coaches in a 9‐month virtual program. Metho…
View article: Health in Down syndrome: creating a conceptual model
Health in Down syndrome: creating a conceptual model Open
Background Down syndrome (DS) has a unique medical and psychological profile that could impact how health is defined on three dimensions: physical, social and mental well‐being. Methods In 2021, we presented our proposed conceptual model t…
View article: Impact of dementia care training on nurse care managers’ interactions with family caregivers
Impact of dementia care training on nurse care managers’ interactions with family caregivers Open
Background Nurse care managers (NCM) operate through care management programs to provide care for persons living with dementia (PLWD) and interact regularly with their family caregivers; however, most do not receive formal instruction in d…
View article: Proxy‐report in individuals with intellectual disability: A scoping review
Proxy‐report in individuals with intellectual disability: A scoping review Open
Background Views can be collected from individuals (self‐report) or others on their behalf (proxy‐report). Objective We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self‐report respo…
View article: Health Literacy Profiles of Early Intervention Providers: Use of the Health Literacy Questionnaire
Health Literacy Profiles of Early Intervention Providers: Use of the Health Literacy Questionnaire Open
Background: Early intervention (EI) providers work with parents of children with or who have risk factors of developmental delay or disability through Part C of the Individuals with Disabilities Education Act. Many parents in the United St…
View article: Patient Perspectives on Home-Based Care and Remote Monitoring in Heart Failure: A Qualitative Study
Patient Perspectives on Home-Based Care and Remote Monitoring in Heart Failure: A Qualitative Study Open
Introduction: As individual interventions, home-based care and remote monitoring have been shown to help prevent hospitalizations for those with heart failure (HF) although both interventions have been limited by scalability and technical …