Ann Kavanaugh‐McHugh
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View article: How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease
How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease Open
Fetal cardiology consultations offer an important opportunity to support families navigating uncertainty following a prenatal diagnosis of CHD. Clinicians approached these conversations with empathy and a focus on long-term outcomes, thoug…
View article: Discussion of the Fetus in Fetal Cardiology Consultations: A Qualitative Study
Discussion of the Fetus in Fetal Cardiology Consultations: A Qualitative Study Open
Background: While prenatal diagnosis of congenital heart disease is increasingly common, and communication is essential to minimizing familial stress, little is known about how the fetus is discussed in this setting. This study observed ho…
View article: Survival to Hospital Discharge in the Fetus With Moderate to Severe Mitral Regurgitation Either in Isolation or in Combination With Aortic Valve Stenosis or Atresia, a Fetal Heart Society Collaborative Study
Survival to Hospital Discharge in the Fetus With Moderate to Severe Mitral Regurgitation Either in Isolation or in Combination With Aortic Valve Stenosis or Atresia, a Fetal Heart Society Collaborative Study Open
Background Case series report high mortality after fetal diagnosis of moderate to severe mitral regurgitation in combination with left atrial dilation, hydrops, or restrictive atrial septum. However, overall outcomes and specific high‐risk…
View article: Current Trends in Fetal Cardiology: Results from an International Benchmarking Survey of Fetal Cardiac Programs Through the Fetal Heart Society Research Collaborative
Current Trends in Fetal Cardiology: Results from an International Benchmarking Survey of Fetal Cardiac Programs Through the Fetal Heart Society Research Collaborative Open
Fetal cardiology has grown into a robust pediatric cardiology subspecialty in the last two decades, with many congenital heart centers having a dedicated fetal cardiac program. Despite the subspeciality’s clear maturation, there are no mul…
View article: Management of Ebstein Anomaly in the Current Era: The Story of One Fetus and the Collaboration of Many—A Case Report
Management of Ebstein Anomaly in the Current Era: The Story of One Fetus and the Collaboration of Many—A Case Report Open
Collaborative multicenter research has significantly increased our understanding of fetal Ebstein anomaly, delineating risk factors for adverse outcomes as well as predictors of postnatal management. These data are incorporated into prenat…
View article: “I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations
“I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations Open
The way clinicians communicate with parents during pregnancy about congenital heart disease (CHD) can significantly influence parental understanding of and psychological response to the diagnosis. A necessary first step to improving commun…
View article: Mitral valve abnormalities associated with single-ventricle palliation, cardiac death or transplant in fetuses with postnatally confirmed coarctation of the aorta
Mitral valve abnormalities associated with single-ventricle palliation, cardiac death or transplant in fetuses with postnatally confirmed coarctation of the aorta Open
Introduction: Predicting if a fetus with borderline left heart structures and coarctation of the aorta (CoA) will require single ventricle palliation (SVP) is challenging, partly due to the limitations of fetal echocardiography in defining…
View article: Pseudoaneurysm of Mitral-Aortic Intervalvular Fibrosa Imitating a Rhabdomyoma in a Fetus
Pseudoaneurysm of Mitral-Aortic Intervalvular Fibrosa Imitating a Rhabdomyoma in a Fetus Open
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View article: Associations Between Maternal Sociodemographics and Hospital Mortality in Newborns With Prenatally Diagnosed Hypoplastic Left Heart Syndrome
Associations Between Maternal Sociodemographics and Hospital Mortality in Newborns With Prenatally Diagnosed Hypoplastic Left Heart Syndrome Open
ace and ethnicity, socioeconomic status (SES), and geography have been associated with differential outcomes in congenital heart disease death.In patients with hypoplastic left heart syndrome (HLHS), lower SES has been associated with incr…
View article: Mapping parents’ journey following prenatal diagnosis of CHD: a qualitative study
Mapping parents’ journey following prenatal diagnosis of CHD: a qualitative study Open
Objective: To better understand parents’ accounts of their prenatal and postnatal experience after prenatal diagnosis of CHD – particularly emotional processing and coping mechanisms – to identify strategies to improve support. Methods: Th…
View article: Contemporary Outcomes in Tetralogy of Fallot With Absent Pulmonary Valve After Fetal Diagnosis
Contemporary Outcomes in Tetralogy of Fallot With Absent Pulmonary Valve After Fetal Diagnosis Open
Background Tetralogy of Fallot with absent pulmonary valve is associated with high mortality, but it remains difficult to predict outcomes prenatally. We aimed to identify risk factors for mortality in a large multicenter cohort. Methods a…
View article: Impact of Socioeconomic Status, Race and Ethnicity, and Geography on Prenatal Detection of Hypoplastic Left Heart Syndrome and Transposition of the Great Arteries
Impact of Socioeconomic Status, Race and Ethnicity, and Geography on Prenatal Detection of Hypoplastic Left Heart Syndrome and Transposition of the Great Arteries Open
Background: Prenatal detection (PND) has benefits for infants with hypoplastic left heart syndrome (HLHS) and transposition of the great arteries (TGA), but associations between sociodemographic and geographic factors with PND have not bee…
View article: Extracardiac Doppler indices predict perinatal mortality in fetuses with Ebstein anomaly and tricuspid valve dysplasia
Extracardiac Doppler indices predict perinatal mortality in fetuses with Ebstein anomaly and tricuspid valve dysplasia Open
Objectives Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) carry high perinatal mortality. Past studies have focused on cardiac predictors of mortality; we sought to describe the fetal echo (FE) extracardiac Dopplers in this cohort …
View article: Risk Factors for Mortality and Circulatory Outcome Among Neonates Prenatally Diagnosed With Ebstein Anomaly or Tricuspid Valve Dysplasia: A Multicenter Study
Risk Factors for Mortality and Circulatory Outcome Among Neonates Prenatally Diagnosed With Ebstein Anomaly or Tricuspid Valve Dysplasia: A Multicenter Study Open
Background In a recent multicenter study of perinatal outcome in fetuses with Ebstein anomaly or tricuspid valve dysplasia, we found that one third of live‐born patients died before hospital discharge. We sought to further describe postnat…
View article: Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study
Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study Open
Families walk an uncertain path following a fetal diagnosis of severe congenital heart disease. The challenges faced by the cardiologists caring for them overlap in many ways with those experienced by pediatric palliative care practitioner…