Anna E Bone
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View article: What is the quality of care at the end of life? Qualitative findings from a nationally-representative post-bereavement survey across England and Wales
What is the quality of care at the end of life? Qualitative findings from a nationally-representative post-bereavement survey across England and Wales Open
Objectives To explore the quality of end-of-life care in England and Wales using the experiences of bereaved family carers, and to develop person-centred quality of care domains for end-of-life care. Methods Qualitative analysis of free-te…
View article: Coproducing a conceptual understanding of unmet palliative care needs: stakeholder workshops using modified nominal group technique
Coproducing a conceptual understanding of unmet palliative care needs: stakeholder workshops using modified nominal group technique Open
Background Despite growing recognition of the importance of identifying unmet needs in palliative care, there remains no clear, operational definition of what constitutes unmet palliative care needs. This gap hinders service planning, poli…
View article: Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews Open
Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-based palliative and end-of-life care are unknown. Aim: To identify, synthesise …
View article: Primary care activities associated with reduced emergency hospital admissions in the last three months of life: a national population-based, retrospective cohort study
Primary care activities associated with reduced emergency hospital admissions in the last three months of life: a national population-based, retrospective cohort study Open
ObjectiveTo examine the association between primary care activities 12 to 4 months before death and emergency hospital admissions in the last three months of life for adults with advanced illness. MethodsAn English population-based, retros…
View article: Coproducing a conceptual understanding of unmet palliative care needs: stakeholder workshops using modified nominal group technique
Coproducing a conceptual understanding of unmet palliative care needs: stakeholder workshops using modified nominal group technique Open
Background Despite growing recognition of the importance of identifying unmet needs in palliative care, there remains no clear, operational definition of what constitutes unmet palliative care needs. This gap hinders service planning, poli…
View article: Assistive technologies for people with advanced disease and in palliative care: a scoping review
Assistive technologies for people with advanced disease and in palliative care: a scoping review Open
Population ageing, multi-morbidity and associated disability is shifting global demand for health and care services. Innovative solutions are required to meet the evolving needs of people with advanced disease, support independent function…
View article: Defining and measuring unmet palliative care needs among people with life-limiting illness: a scoping review of international evidence
Defining and measuring unmet palliative care needs among people with life-limiting illness: a scoping review of international evidence Open
Background Quantifying palliative care needs and whether they are met is essential for effective service planning and provision. Estimates of palliative care needs are widely reported but less is known about unmet needs, with no accepted d…
View article: Models, components, and outcomes of palliative and end-of-life care provided to adults living at home: A systematic review of reviews
Models, components, and outcomes of palliative and end-of-life care provided to adults living at home: A systematic review of reviews Open
Background Ageing populations necessitate increased focus on home-based care. The best models and components for community-based palliative and end-of-life care are unknown. Aim To identify and synthesise review-level evidence on models of…
View article: Association between ethnicity and emergency department visits in the last three months of life in England: a retrospective population-based study using electronic health records
Association between ethnicity and emergency department visits in the last three months of life in England: a retrospective population-based study using electronic health records Open
Introduction Emergency department (ED) visits are distressing yet common in the last months of life and many could be avoided. The association between ethnicity and ED visits in the last months of life has rarely been studied in detail and…
View article: Sarcopenia interventions in long‐term care facilities targeting sedentary behaviour and physical inactivity: A systematic review
Sarcopenia interventions in long‐term care facilities targeting sedentary behaviour and physical inactivity: A systematic review Open
Background Sedentary behaviour and physical inactivity are independent risk factors for sarcopenia for long‐term care facility residents. Understanding the components, mechanisms and context of interventions that target change in these ris…
View article: Past trends and future projections of palliative care needs in Chile: analysis of routinely available death registry and population data
Past trends and future projections of palliative care needs in Chile: analysis of routinely available death registry and population data Open
Background The number of people with palliative care needs is projected to increase globally. Chile has recently introduced legislation for universal access to palliative care services for patients with severe and terminal illnesses, inclu…
View article: The influence of care home registration type and size on senior care leader’s confidence to provide palliative and end-of-life care: an explanatory sequential mixed methods study
The influence of care home registration type and size on senior care leader’s confidence to provide palliative and end-of-life care: an explanatory sequential mixed methods study Open
Background Care home staff are key providers of palliative and end-of-life care. Yet, little is known about how care home characteristics can influence care leader’s confidence in their ability to provide optimal palliative and end-of-life…
View article: The effectiveness of out-of-hours palliative care telephone advice lines: A rapid systematic review
The effectiveness of out-of-hours palliative care telephone advice lines: A rapid systematic review Open
Background: People with palliative care needs and their carers often rely on out-of-hours services to remain at home. Policymakers have recommended implementing telephone advice lines to ensure 24/7 access to support. However, the impact o…
View article: A rapid systematic review of the effectiveness of out-of-hours palliative care telephone advice lines for people living at home and their carers
A rapid systematic review of the effectiveness of out-of-hours palliative care telephone advice lines for people living at home and their carers Open
Background People with palliative and end-of-life care needs in the community and their carers often rely on out-of-hours services to remain at home. Policymakers internationally have recommended implementation of telephone advice lines to…
View article: Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations Open
Background: The number and proportion of home deaths in the UK increased during the Covid-19 pandemic. It is not known whether these changes were experienced disproportionately by people from different socioeconomic groups. Aim: To examine…
View article: Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy
Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy Open
Introduction Little consideration has been given to how the provision of palliative and end-of-life care in care homes was affected by COVID-19. The aims of this study were to: (i) investigate the response of UK care homes in meeting the r…
View article: Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis
Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis Open
Total care costs are high among people dying with dementia, and informal care costs represent an important component of end-of-life care costs. Transitions to hospital have a large impact on total costs; preventing these transitions might …
View article: Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review
Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review Open
Introduction Health and social care services worldwide need to support ageing populations to live well with advanced progressive conditions while adapting to functional decline and finitude. We aimed to identify and map common elements of …
View article: P-198 Care home staff experiences of palliative and end-of-life care in care homes during COVID-19
P-198 Care home staff experiences of palliative and end-of-life care in care homes during COVID-19 Open
Background COVID-19 has had a devastating impact on care homes, their residents and staff. Over 37,000 UK care home residents have died from COVID-19; many more have experienced symptoms and distress (Scobie, 2021). There has been very lim…
View article: Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations
Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations Open
Background: Understanding patterns of mortality and place of death during the COVID-19 pandemic is important to help provide appropriate services and resources. Aims: To analyse patterns of mortality including place of death in the United …
View article: Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study
Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study Open
We identified missed opportunities to optimise older people's recovery during hospital admission, such as improved food and a timely and coordinated discharge, which may reduce reattendances. Proactive care in the community with systematic…
View article: How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery
How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery Open
Objective To estimate future palliative care need and complexity of need in Scotland, and to identify priorities for future service delivery. Design We estimated the prevalence of palliative care need by analysing the proportion of deaths …