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View article: Occupational Therapy for Children with DCD and Academic Difficulties: A Pan-Canadian Survey
Occupational Therapy for Children with DCD and Academic Difficulties: A Pan-Canadian Survey Open
Introduction. Children with Developmental Coordination Disorder (DCD) often experience academic challenges. Although children with DCD are frequently referred to Occupational Therapy (OT) to help alleviate some of their motor and functiona…
View article: Evidence-based early rehabilitation for children with cerebral palsy: co-development of a multifaceted knowledge translation strategy for rehabilitation professionals
Evidence-based early rehabilitation for children with cerebral palsy: co-development of a multifaceted knowledge translation strategy for rehabilitation professionals Open
Background Cerebral palsy (CP) is the most common childhood physical disability. Early and evidence-based rehabilitation is essential for improving functional outcomes in children with CP. However, rehabilitation professionals face barrier…
View article: Gamification in Mobile Apps for Children With Disabilities: Scoping Review
Gamification in Mobile Apps for Children With Disabilities: Scoping Review Open
Background Children with disabilities face numerous challenges in accessing health services. Mobile health is an emerging field that could significantly reduce health inequities by providing more accessible services. Many mobile apps incor…
View article: Evidence-informed stakeholder consultations to promote rights-based approaches for children with disabilities
Evidence-informed stakeholder consultations to promote rights-based approaches for children with disabilities Open
Purpose To strengthen the translation of evidence to actionable policy, stakeholder engagement is necessary to synthesize, prioritize and contextualize the academic research content into accessible language. In this manuscript we describe …
View article: Developing a Chatbot to Support Individuals With Neurodevelopmental Disorders: Tutorial
Developing a Chatbot to Support Individuals With Neurodevelopmental Disorders: Tutorial Open
Families of individuals with neurodevelopmental disabilities or differences (NDDs) often struggle to find reliable health information on the web. NDDs encompass various conditions affecting up to 14% of children in high-income countries, a…
View article: Lessons learned in measuring patient engagement in a Canada-wide childhood disability network
Lessons learned in measuring patient engagement in a Canada-wide childhood disability network Open
Background The CHILD-BRIGHT Network, a pan-Canadian childhood disability research Network, is dedicated to patient-oriented research, where numerous stakeholders, including patient-partners, researchers, and clinicians are involved at diff…
View article: White matter microstructure is differently associated with executive functioning in youth born with congenital heart disease and youth born preterm
White matter microstructure is differently associated with executive functioning in youth born with congenital heart disease and youth born preterm Open
Introduction Executive function deficits and adverse psychological outcomes are common in youth with congenital heart disease (CHD) or born preterm. Association white matter bundles play a critical role in higher order cognitive and emotio…
View article: Participate CP 2: optimising participation in physically active leisure for children with cerebral palsy – protocol for a phase III randomised controlled trial
Participate CP 2: optimising participation in physically active leisure for children with cerebral palsy – protocol for a phase III randomised controlled trial Open
Introduction Children with cerebral palsy (CP) participate less in physical activities and have increased sedentary behaviour compared with typically developing peers. Participate CP is a participation-focused therapy intervention for chil…
View article: Supporting families and caregivers of children with disabilities through a parent peer mentor (PPM): experiences from a patient-oriented research network
Supporting families and caregivers of children with disabilities through a parent peer mentor (PPM): experiences from a patient-oriented research network Open
Background The CHILD-BRIGHT Network created a parent peer mentor (PPM) role to support other parents who were engaging as partners in the different research projects and activities of the network. We aim to describe how a PPM functioned to…
View article: Developing a Chatbot to Support Individuals With Neurodevelopmental Disorders: Tutorial (Preprint)
Developing a Chatbot to Support Individuals With Neurodevelopmental Disorders: Tutorial (Preprint) Open
UNSTRUCTURED Families of individuals with neurodevelopmental disabilities or differences (NDDs) often struggle to find reliable health information on the web. NDDs encompass various conditions affecting up to 14% of children in high-incom…
View article: Gamification in Mobile Apps for Children With Disabilities: Scoping Review (Preprint)
Gamification in Mobile Apps for Children With Disabilities: Scoping Review (Preprint) Open
BACKGROUND Children with disabilities face numerous challenges in accessing health services. Mobile health is an emerging field that could significantly reduce health inequities by providing more accessible services. Many mobile apps inco…
View article: Navigating the healthcare system with my child with CHD: parental perspectives on developmental follow-up practices
Navigating the healthcare system with my child with CHD: parental perspectives on developmental follow-up practices Open
Background: Parents of children with CHD face several barriers when trying to access the services needed to support their child’s development. In fact, current developmental follow-up practices may not identify developmental challenges in …
View article: Patient engagement in a national research network: barriers, facilitators, and impacts
Patient engagement in a national research network: barriers, facilitators, and impacts Open
Background Little is known about patient engagement in the context of large teams or networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members suggest that patient engagement was beneficial and meaningful. To extend …
View article: Pediatric tele-coaching fidelity evaluation: Feasibility, perceived satisfaction and usefulness of a new measure
Pediatric tele-coaching fidelity evaluation: Feasibility, perceived satisfaction and usefulness of a new measure Open
Background To promote and ensure coaches' fidelity in delivering an online health coaching program to parents of children with suspected developmental delay, we developed and implemented a novel coaching fidelity rating tool, CO-FIDEL (COa…
View article: Application of the child community health inclusion index for measuring health inclusion of children with disabilities in the community: a feasibility study
Application of the child community health inclusion index for measuring health inclusion of children with disabilities in the community: a feasibility study Open
View article: Characteristics of Inclusive Web-Based Leisure Activities for Children With Disabilities: Qualitative Descriptive Study
Characteristics of Inclusive Web-Based Leisure Activities for Children With Disabilities: Qualitative Descriptive Study Open
Background The participation of children with disabilities in leisure activities is a key determinant of their physical and mental health. The COVID-19 pandemic has limited participation in leisure activities for all children, particularly…
View article: Application of the Child Community Health Inclusion Index for measuring health inclusion of children with disabilities in the community: A feasibility study
Application of the Child Community Health Inclusion Index for measuring health inclusion of children with disabilities in the community: A feasibility study Open
Background Participation in the community is a fundamental human right for children with disabilities and is a key component of their health and development. Inclusive communities can enable children with disabilities to participate fully …
View article: Study protocol for Attachment & Child Health (ATTACHTM) program: promoting vulnerable Children’s health at scale
Study protocol for Attachment & Child Health (ATTACHTM) program: promoting vulnerable Children’s health at scale Open
View article: Identifying Potential Gamification Elements for A New Chatbot for Families With Neurodevelopmental Disorders: User-Centered Design Approach
Identifying Potential Gamification Elements for A New Chatbot for Families With Neurodevelopmental Disorders: User-Centered Design Approach Open
Background Chatbots have been increasingly considered for applications in the health care field. However, it remains unclear how a chatbot can assist users with complex health needs, such as parents of children with neurodevelopmental diso…
View article: Vitamin D supplementation and gross motor development: A 3-year follow-up of a randomized trial
Vitamin D supplementation and gross motor development: A 3-year follow-up of a randomized trial Open
GMD in young children who received 400 IU/d of supplemental vitamin D in infancy is not influenced by season-at-birth. This dose of vitamin D of 400 IU/d as recommended in North America adequately supports GMD. The modest enhancement in GM…
View article: Characteristics of Inclusive Web-Based Leisure Activities for Children With Disabilities: Qualitative Descriptive Study (Preprint)
Characteristics of Inclusive Web-Based Leisure Activities for Children With Disabilities: Qualitative Descriptive Study (Preprint) Open
BACKGROUND The participation of children with disabilities in leisure activities is a key determinant of their physical and mental health. The COVID-19 pandemic has limited participation in leisure activities for all children, particularl…
View article: Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation: Protocol for Evaluation and Rehabilitation of Mobility Across Continuums of Care
Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation: Protocol for Evaluation and Rehabilitation of Mobility Across Continuums of Care Open
Background Rapid advances in technologies over the past 10 years have enabled large-scale biomedical and psychosocial rehabilitation research to improve the function and social integration of persons with physical impairments across the li…
View article: Canadian Developmental Follow-up Practices in Children With Congenital Heart Defects: A National Environmental Scan
Canadian Developmental Follow-up Practices in Children With Congenital Heart Defects: A National Environmental Scan Open
View article: Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation: Protocol for Evaluation and Rehabilitation of Mobility Across Continuums of Care (Preprint)
Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation: Protocol for Evaluation and Rehabilitation of Mobility Across Continuums of Care (Preprint) Open
BACKGROUND Rapid advances in technologies over the past 10 years have enabled large-scale biomedical and psychosocial rehabilitation research to improve the function and social integration of persons with physical impairments across the l…
View article: Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review
Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review Open
To determine the level of evidence for the effectiveness of telerehabilitation against comparison interventions in improving child- and parent-related outcomes in children and youth with developmental disabilities. A systematic approach, c…
View article: Academic Challenges in Developmental Coordination Disorder: A Systematic Review and Meta-Analysis
Academic Challenges in Developmental Coordination Disorder: A Systematic Review and Meta-Analysis Open
Developmental Coordination Disorder (DCD) is a chronic condition affecting motor coordination in daily activities. While motor difficulties are well documented in this population, it is unclear how frequent and to what extent academic acti…
View article: The Effect of Context-Based Interventions at the Systems-Level on Participation of Children with Disabilities: A Systematic Review
The Effect of Context-Based Interventions at the Systems-Level on Participation of Children with Disabilities: A Systematic Review Open
To synthesize evidence on the impact of context-based interventions on the participation of children with disabilities in the community. A systematic review was conducted using the American Academy for Cerebral Palsy and Developmental Medi…
View article: Changes in Use of a Leisure Activity Mobile App for Children With Disabilities During the COVID-19 Pandemic: Retrospective Study
Changes in Use of a Leisure Activity Mobile App for Children With Disabilities During the COVID-19 Pandemic: Retrospective Study Open
Background Participation in leisure activities is essential for child development and a human right as per the United Nations Convention on the Rights of the Child. Children with disabilities face several restrictions when participating in…
View article: Fathers Matter: Enhancing Healthcare Experiences Among Fathers of Children With Developmental Disabilities
Fathers Matter: Enhancing Healthcare Experiences Among Fathers of Children With Developmental Disabilities Open
Background: Being a parent of a child with a developmental disability (DD; e. g., cerebral palsy, autism) comes with great challenges and apprehensions. Mothers and fathers of children with DD are experiencing heightened levels of psycholo…
View article: Changes in Use of a Leisure Activity Mobile App for Children With Disabilities During the COVID-19 Pandemic: Retrospective Study (Preprint)
Changes in Use of a Leisure Activity Mobile App for Children With Disabilities During the COVID-19 Pandemic: Retrospective Study (Preprint) Open
BACKGROUND Participation in leisure activities is essential for child development and a human right as per the United Nations Convention on the Rights of the Child. Children with disabilities face several restrictions when participating i…