Arvind Nagra
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View article: Fifteen-minute consultation: Empowering children, young people and families through shared decision-making: a practical guide
Fifteen-minute consultation: Empowering children, young people and families through shared decision-making: a practical guide Open
Shared decision-making (SDM) is a collaborative approach to healthcare decision-making that involves patients and healthcare professionals working together to make decisions that are informed by the best available medical evidence, as well…
View article: 1955 An effective digital health education tool that improves lower rates of health literacy reported amongst young people living with sickle cell disease
1955 An effective digital health education tool that improves lower rates of health literacy reported amongst young people living with sickle cell disease Open
Objectives Developing health literacy is a cornerstone of transitional care (TC) programs for young people (YP) living with long-term conditions. Lower rates of health literacy correspond with a decreased likelihood of appropriate, effecti…
View article: 1769 Virtual art therapy: meeting the psychosocial needs of children and young people with a long term health condition during the Covid-19 pandemic
1769 Virtual art therapy: meeting the psychosocial needs of children and young people with a long term health condition during the Covid-19 pandemic Open
Background Children and young people (CYP) with a long term condition (LTC) are known to have increased psychosocial needs. This is also true for siblings of CYP with a LTC. The current COVID-19 pandemic has had an adverse impact on the ps…
View article: 1532 Virtual youth work: meeting the increased psychosocial needs of children and young people with a long term condition during the Covid-19 pandemic
1532 Virtual youth work: meeting the increased psychosocial needs of children and young people with a long term condition during the Covid-19 pandemic Open
Background Studies show that young people (YP) aged 16–30 years with a long-term condition (LTC) do less well than their healthy peers in terms of their mental health and employability. 30% of YP with a LTC have mental health issues compar…
View article: 571 COVID-19: Experiences of lockdown and support needs in children and young adults with kidney conditions
571 COVID-19: Experiences of lockdown and support needs in children and young adults with kidney conditions Open
Background During the initial COVID-19 pandemic, young United Kingdom (UK) kidney patients underwent lockdown and those with increased vulnerabilities socially isolated or 'shielded' at home. The experiences, information needs, decision-ma…
View article: COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions
COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions Open
Background During the initial COVID-19 pandemic, young United Kingdom (UK) kidney patients underwent lockdown and those with increased vulnerabilities socially isolated or ‘shielded’ at home. The experiences, information needs, decision-ma…
View article: Tolvaptan treatment for severe neonatal autosomal-dominant polycystic kidney disease
Tolvaptan treatment for severe neonatal autosomal-dominant polycystic kidney disease Open
Tolvaptan may be a useful treatment for severe neonatal PKD.
View article: Implementing transition: Ready Steady Go
Implementing transition: Ready Steady Go Open
There is good evidence that morbidity and mortality increase for young persons (YP) following the move from paediatric to adult services. Studies show that effective transition between paediatric and adult care improves long-term outcomes.…